Madison's medical expenses

$5,210 of $20,000 goal

Raised by 104 people in 33 months
This is our  19th  month old daughter Madison RayLynn Gatlin. She has cloves syndrome or also what's called lymphatic malformation.  

Congenital
Lipomatous
Overgrowth
Vascular malformation 
Epidermal nevi
Spinal/skeletal anomalies and or scoliosis

Approximately 150 to 200 people worldwide have this syndrome.  Madison has the majority of her upper body and arms filled with lymphatic fluid that is unable to drain back into her bloodstream which has caused cystic masses to develop in these areas. Due to her medical condition she needs custom made compression  garments, she will have to also take oral medication to help reduce the fluid production. This is only the start of her treatment needed. Only a few hospitals are  familiar with proper treatment, one of which is Texas Children's Hospital in Houston TX. Currently we live in Florida and we travel to Houston For treatments and upcoming surgeries. We are a single-income family and finances are stretched to their limit. The donations will fund copays for doctors visits. Now that a new year is upon us so comes insurance renewal. Our  deductible  $5000 dollars. The money we have already raised funded past medical expenses and travel, please help our family! If you can't help please pray.
thank you
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Thank you, another year and more surgery. Liposuction will be done on her back April. Scary!
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Madison has had four treatments since we've started our campaign. Tearful days for our little miss. Baby doesn't know what it's like not to be poked by needles.. she is so strong I believe the treatments are helping.
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Madison's treatment is working!!!! We are currently paying $100.00 a month for her treatment. Her visits are now costing hundreds. We are still hopeful and thankful that Madison is doing so great. The doctors are taking such good care of her.
This is her larger arm
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Madison has started her treatment! it was a bumpy start. As her mother I worry all the time, I do try follow the doctors orders.. But I do have some concerns with the amount of water that the instructions are telling me to give to Madison. up to 6oz of water including her treatment.. nothing more, meaning just water.

The last time that I checked I was told that Babies aren't suppose to have water until a specific age . I am going to look up the age that I can give water and get back with you guys.. Just showing some concern for my Mighty Madison!
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Read a Previous Update
Joni Gatlin
33 months ago
3
3

Madison is going in to the doctors office on the 15th for her six month shots..

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Kyle Gatlin
33 months ago
3
3

More pictures to come...

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Brogan Banks
12 months ago

What beautiful eyes Madison has ♥ Wish luck to you all :)

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$5,210 of $20,000 goal

Raised by 104 people in 33 months
Created September 29, 2015
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$50
Anonymous
1 month ago
$50
Anonymous
3 months ago
LE
$30
Louise Edmondson
7 months ago

I have just read Madisons story. What gorgeous little girl. Good luck to her and her loving family

$20
Anonymous
7 months ago
Joni Gatlin
33 months ago
3
3

Madison is going in to the doctors office on the 15th for her six month shots..

+ Read More
Kyle Gatlin
33 months ago
3
3

More pictures to come...

+ Read More
Brogan Banks
12 months ago

What beautiful eyes Madison has ♥ Wish luck to you all :)

+ Read More
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