Madison's medical expenses

$4,195 of $5,000 goal

Raised by 84 people in 18 months
Joni Gatlin  CRESTVIEW, FL
This is our  19th  month old daughter Madison RayLynn Gatlin. She has cloves syndrome or also what's called lymphatic malformation.  

Congenital
Lipomatous
Overgrowth
Vascular malformation 
Epidermal nevi
Spinal/skeletal anomalies and or scoliosis

Approximately 150 to 200 people worldwide have this syndrome.  Madison has the majority of her upper body and arms filled with lymphatic fluid that is unable to drain back into her bloodstream which has caused cystic masses to develop in these areas. Due to her medical condition she needs custom made compression  garments, she will have to also take oral medication to help reduce the fluid production. This is only the start of her treatment needed. Only a few hospitals are  familiar with proper treatment, one of which is Texas Children's Hospital in Houston TX. Currently we live in Florida and we travel to Houston For treatments and upcoming surgeries. We are a single-income family and finances are stretched to their limit. The donations will fund copays for doctors visits. Now that a new year is upon us so comes insurance renewal. Our  deductible  $5000 dollars. The money we have already raised funded past medical expenses and travel, please help our family! If you can't help please pray.
thank you
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Update 14
Posted by Joni Gatlin
3 months ago
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Madison has had four treatments since we've started our campaign. Tearful days for our little miss. Baby doesn't know what it's like not to be poked by needles.. she is so strong I believe the treatments are helping.
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Update 13
Posted by Joni Gatlin
13 months ago
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1
1
Madison's treatment is working!!!! We are currently paying $100.00 a month for her treatment. Her visits are now costing hundreds. We are still hopeful and thankful that Madison is doing so great. The doctors are taking such good care of her.
This is her larger arm
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Update 12
Posted by Joni Gatlin
15 months ago
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1
Madison has started her treatment! it was a bumpy start. As her mother I worry all the time, I do try follow the doctors orders.. But I do have some concerns with the amount of water that the instructions are telling me to give to Madison. up to 6oz of water including her treatment.. nothing more, meaning just water.

The last time that I checked I was told that Babies aren't suppose to have water until a specific age . I am going to look up the age that I can give water and get back with you guys.. Just showing some concern for my Mighty Madison!
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Update 11
Posted by Joni Gatlin
16 months ago
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2
madison being silly
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Read a Previous Update
Joni Gatlin
17 months ago
2
2

Madison is going in to the doctors office on the 15th for her six month shots..

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Kyle Gatlin
18 months ago
2
2

More pictures to come...

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$4,195 of $5,000 goal

Raised by 84 people in 18 months
Created September 29, 2015
LF
$20
Lizete Fernandes
15 days ago
1
1
PJ
$15
Penny Jackson
25 days ago
$25
Anonymous
25 days ago
BR
$10
Brooke Rebstock
28 days ago
$30
Anonymous
29 days ago
$50
John Sheetz
29 days ago

I know how hard keeping up with medical bills is in this country, and I just want to say I wish you all the best, and hope you have the best of luck with all this. God speed.

MT
$20
Melissa Timithy
29 days ago
ET
$10
Elizabeth Terlecki
29 days ago
LC
$50
Lacey Coburn
29 days ago

Your little girl is beautiful.

BS
$10
Baptiste Sire
1 month ago
Joni Gatlin
17 months ago
2
2

Madison is going in to the doctors office on the 15th for her six month shots..

+ Read More
Kyle Gatlin
18 months ago
2
2

More pictures to come...

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