Burn victim and family still in need of help

$11,330 of $100,000 goal

Raised by 164 people in 24 months
Created June 10, 2017
My son was in a terrible hotel fire in Manton, Mi on 5/17/17 .My son Brian has lots of special needs, he was burned on 90 percent of his body. He requires around the clock care and help I am unable to work and wont be able to work for a very long time, my son is a a great child who will be undergoing surgery's for a very very long time, my sons airway is compromised and he has a huge airway procedure coming up at the end of this month, Brian recieves care mainly in Boston Massachusetts and we have to travel from Detroit to get him the best care possible, to the Shriners Hospital for Burns aswell as mott hospital in Ann Arbor. If you are able to help in anyway my family and I will be truly greatful, please continue to share my posts and updates its greatly appreciated.
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Hello everyone, well we went to have a direct bronchoscopy And laryngoscopy at U of M. It turns out that my airway is the size of a ball point pin. They want to do a different procedure that is called a segmental trachea resection which is where they cut out the narrowing and stitch the two ends together. There’s quite a few risks. I honestly don’t feel trustworthy enough of this hospital to do this procedure. I would feel much more safe having the Ent’s do it that know my airway the best. Which also happen to be some of the best doctors in the world for the stenosis I have. If you guys could please continue to share this page and donate if you’re able to. Every single bit helps. If the little black hole pictured above closes at any point in time my voice is gone for good.
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Hello everyone it’s Brian just wanted to give a short update. We’re still trying to figure stuff out with the insurance company for the airway procedure. Please keep us in your thoughts and prayers and have a great day!
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Well today marks 2 years since Brians nightmare began and has gotten worse we planned on celebrating in Boston but because medicaid refused to pay for his procedure, we are here in Michigan trying to find a way to get this procedure covered . We continue to face challenges just to get his medical needs covered. There are lots of procedures that he needs that medicaid wont pay for at all. I dont know how people get there pages to go viral, im doing everything the rightway i only use funding from this site to cover medical needs and travel. I still have every donation raised since November because i was trying to save enough money to be in boston for 6 weeks. And we believe god will anwser prayers and this procedure will somehow get covered. Im begging everyone to share my updates, share my posts it takes 2 seconds, please help Brian and I come up with this miracle, we need lots of prayers and shares. Please contribute if you are able. Thankyou for taking the time to read this update, its a bad situation to face at 15yrs old, please help me open doors for my son so we can advance his medical needs. Your help means the world to Brian and I without your prayers and support we wouldnt of made it this far. Thankyou
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Well it comes with great sadness and anger within this update please forgive me in advance.
Brian and I were ready and set to leave to Boston Massachusetts on the 7th. Unfortunately we recieved a call on Friday morning to inform us that Michigan Medicaid refused to pay for a procedure that would save Brians airway and guarantee he would not lose his voice, Now im being forced moreless to return to Michigan to have a less expensive procedure done that they attempted to do prior that would of costed Brian his ability to speak. The Shriners are a marvelous hospital and No finances will ever stand in the way of a childs treatment ,unfortunately this procedure needs to be done at Mass genral and they dont do what the shriners do for there paitents, The Shriners are amazing in everything they do for there paitents and familys. As a parent im scared to death the b. S politics of the very broken health care system is going to take his voice away because its cheaper, So now Brian is being forced to start all the tests over again, and Medicaid is going to pay out lots of unnecessary procedures and appointments to end up at the same diagnosis Brian has already been given and then still pay for a procedure, it would be smarter for medicaid to pay for this procedure now instead of in the long run its going to cost more, Medicaid denied to pay his bills already i have stacks of bills for things they havent paid for or covered. That should be. Im left with 2 options either go along with procedure at U of M or childrens Hospital of Detroit that both rendered the same procedure with a negative result. (loss of voice) so thats option 1, option 2 is figure out the total cost and try to raise the money, it sickens me we have a crime victim benefit fund here in Michigan and i applied but my app was lost in the mail allegedly, jml. But we need a miracle and im lost, Brian is scared to death to recieve this procedure by someone he has no trust in. As a parent whos not allowed to work because of his airway complications and if i do leave him to work its considered a hazzard to his health and I can get introuble legally if I do, So as a parent going through this we only get medical and 200.00 in food assistance, My roof was destroyed due to a windstorm and leaks water and we were denied assitance with that aswell. We never recieved any of the donations from the benefit held by the temple hill 3 on 3 tournament sponsored by the Temple Hill Baptist Church in Cadillac Michigan . If you donated to this fundraiser please contact us immediately we are attempting to recover the donations that were made all over the state and if we had these funds we might be able to pay for the procedure needed. I will explain to donors in person or over a telephone call or email but please contact me. Further more i cant start to explain to everyone the nightmares we have to go thru ontop of all of the medical issues. Please if you have any ideals on what to do or how to maneuver the insurance please please help me. Im completely lost and trapped into time constraints aswell because of how bad his airway is. We have to do something fast before it completely closes, if you are able and wealthy and willing to pay for this procedure please contact me and I will put you intouch with the billing dept and do a verbal release so it can be discussed with possible donor. This is a total nightmare ,please continue to share my page, please continue to pray, please continue to donate, please continue to follow us on Recovery4Brian its a group on facebook aswell, ask questions get anwsers or if you just wanna offer words of encouragement or advice we need your help to find a way to overcome. Ty for your supp
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Read a Previous Update
Bonnie Davis-Lacko
23 months ago
7
7

Woman belongs in prison for the rest of her life, she was manufacturing dope and blew her own children up any of this money should go directly to the children and not to this evil woman. And everyone should donate some time to clean up the crackhouse looking blown up hotel with the burned-out car in front of it this is your community on drugs

+ Read More
Deb Schafer McGrew
18 months ago
2
2

Praying everything went well yesterday

+ Read More
Marc Jiardina
22 months ago
2
2

Thank you Jesus for your healing power and giving Brian strength to continue to fight through this rough time in his life....I ask you to continue to build him up and with a fast recovery in Jesus name....I love and miss you kiddo, You're an amazing young man i love you and i miss you and hope to be able to see you soon. love always your uncle Marc

+ Read More
Charity
1 month ago
1
1

I'm thinking about you every day, Brian! I will keep sharing and do everything I can to help!

+ Read More
Donna Colwell
18 months ago
1
1

Merry Christmas Rob and Brian May God continue to heal the physical and mental scars for you both. !

+ Read More
Tanya Armstrong
19 months ago
1
1

I can not donate but it makes me sick to see this happened to your child.. I hope and pray for a strong recovery for him yes i followed the story on the news . sad just sad

+ Read More
Patti Moore-Pacola
21 months ago
1
1

Such a brave young man-keep up the fight Brian. We are praying strong for you!!

+ Read More
Donna Colwell
21 months ago
1
1

Rob, I met you on the plane today. It was my pleasure!! Keep up your strength ! You are an amazing Dad, your son is very lucky to have you! They are seeing your actions verses their mother. They will be better men because of you! I hope and pray for very good things to come to you all very soon!!

+ Read More
Carol Olson Blazejak
23 months ago
1
1

Go fund me takes a cut of the money. Won't give to it but directly to the person.

+ Read More
Bonnie Davis-Lacko
23 months ago
1
1

Looking forward to the fundraiser address, & times :)

+ Read More
Trudy Galla
23 months ago
1
1

Happy Birthday, Brian. Praying for you and the family.

+ Read More
Tammy Mcnamara
23 months ago
1
1

My thoughts and prayers are with you all including the doctors taking care of him that they can do whatever it takes to help this innocent young man prayers to all involved God bless❤

+ Read More
Rosemarie Bullock
23 months ago
1
1

Praying for your boy and family ❤❤❤

+ Read More
Patti O'Dell
23 months ago
1
1

Praying hard for your son and Marcus.

+ Read More
Deb Schafer McGrew
23 months ago
1
1

praying they figure the high temps and infections out

+ Read More
Patricia Fleury Berg
23 months ago
1
1

Praying that Brian improves Keep up your strength. Take a walk outside every day.

+ Read More
Kristal Leann Griffin
24 months ago
1
1

I dont personally know any of you but I have been following your story very closely. My heart and prayers is with you, your boys, and your family! It literally pains me to think about all the pain and suffering you all are going through right now because of one persons bad decision. You dropped the world to be with your boys during the most difficult time of their life and for that i give you so much love and respect! I admire your strength, perseverance, effort, and motivation. As a mother of 3 i can only imagine the pain you feel right now... When I first read about this on the news I was flooded with so many different emotions.. Heartbreak for the pain and suffering your boys are going through. Sadness for you, your kids, your family, and everyone going through this horrible time right now. Disappointment because your boys are paying the ultimate price because of one person's bad decision. Anger because these 2 boys own mother put them in a dangerous situation even though she knew it was wrong and now these boys are suffering just because their mom was being selfish and wanted to cook drugs. Your son's were just innocent children that got put in a bad situation and now they are going through something that no person and especially no child should ever have to endure! I almost lost my daughter a couple years ago when she was 15 months old. She had a random blood infection that caused sepsis and went to her brain. It caused massive brain swelling. We were air lifted to Helen devos children's hospital and she was in the Pediatric Intensive Care Unit on a ventilator for over a month. The doctors told me she wouldn't survive but that if she did she would be on a ventilator for the rest of her life and the most she would ever be able to do is blink if I was lucky. I refused to give up. I knew my daughter was strong and I knew she was still in there fighting. I refused to take her off the ventilator. After a month passed she started to have more brain activity and then she started to fight and breathe on her own and then one day she woke up!! She wasn't out of the clear yet and she had brain damage but everyday she made progress. After over 1 1/2 months she was stable enough to move us over to Mary free bed rehabilitation where we stayed at least another month. She had extensive therapy and was improving every day. We went home after a couple months. July 2nd marks three years since this happened. She is doing amazing! She walks, talks, and is very smart. The long term effect this has caused is right side weakness. She especially has a difficult time with her right arm/hand but she is even starting to use that now. The doctors don't understand how she is still alive but they especially don't understand how she is doing so well. They medically and scientifically have no explanation as to how she has recovered so well. I have an explanation though.. She is loved, she's a fighter, she is tough, and it wasn't her time to leave this earth. God is the explanation as to why my daughter survived and is now excelling. He saved my baby. I realized after this situation that Miracles do happen!!! Keep faith and keep praying! ♡♡ This will get better. I know it feels like the weight of the world is on your shoulders right now but it will get better and easier so don't give up or lose hope no matter what. I'm so glad these boys have all this love and support from their father, friends, family, and even people like me that are complete strangers. Keep your head up and continue to stay strong. Don't ever lose hope. Right now you are your son's strength. You are their rock. You are their love and support. Your everything to them. I tried to write you on your page privately but Facebook wouldn't let me. I wrote this long comment hoping to give you hope and to let you know that right now you have an army of people behind you guys giving you our full support. I know I'm technically just a stranger but your all in my heart and I've been praying for all of you since this incident happened! I hope for nothing but the very best for you, your kids, and your family. It's during these times that people need to be reminded how much people really do care. I'm glad your kids have a father that is so supportive, caring, and dedicated to being there for his kids while they fight this battle and recover. It takes a lot of strength to deal with something so tragic like this so I commend you and applaud you for staying so strong and bending over backwards to make sure your boys have all the best medical care, help, support, and love that they deserve and need. ♡ Please continue to keep us all updated.

+ Read More
Bernadette Johnson
24 months ago
1
1

I don't personally know you or the boys but my children and I have been following your updates. This situation has hit home with me because I have 4 boys that are 8,7,5 and 3. I can't imagine what you or those precious boys are going through! My boys have taken it upon themselves to walk around Manton collecting pop bottles to donate the money to you and the boys. They would like to send you this money personally. If you could send me an address that would be wonderful.

+ Read More
Vona Mae Sheele Chachulski
24 months ago
1
1

I wish I had the funds to help, all I can do is pray for you and your son and share this, My Prayer's are with you all

+ Read More
Barbara A Stephenson
24 months ago
1
1

Rob, you don't know me but I just read about your son. I'm so very sorry. I can't send money but I am praying for all of you. I will also spread the word. I will keep praying.

+ Read More

$11,330 of $100,000 goal

Raised by 164 people in 24 months
Created June 10, 2017
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$25
Anonymous
7 days ago
$100
Anonymous
1 month ago
MM
$25
Megan McCarren
1 month ago
SE
$100
Susan and Doug Elliott
1 month ago

Facebook

ML
$200
Melinda Lerma
1 month ago
1
1

Praying for Brian and a successful trip to Boston!

$20
Charity Hood
1 month ago

I am praying for you Brian, and for your family. I wish I could give more and will keep sharing and praying for others to help if they can. Sending you love

PB
$100
Patricia Berg
1 month ago
ML
$200
Maureen Loper
1 month ago

Wishing you both all the best. Be well.

AA
$30
Anonymous Anonymous
2 months ago
$30
Holly Krueger
2 months ago
Bonnie Davis-Lacko
23 months ago
7
7

Woman belongs in prison for the rest of her life, she was manufacturing dope and blew her own children up any of this money should go directly to the children and not to this evil woman. And everyone should donate some time to clean up the crackhouse looking blown up hotel with the burned-out car in front of it this is your community on drugs

+ Read More
Deb Schafer McGrew
18 months ago
2
2

Praying everything went well yesterday

+ Read More
Marc Jiardina
22 months ago
2
2

Thank you Jesus for your healing power and giving Brian strength to continue to fight through this rough time in his life....I ask you to continue to build him up and with a fast recovery in Jesus name....I love and miss you kiddo, You're an amazing young man i love you and i miss you and hope to be able to see you soon. love always your uncle Marc

+ Read More
Charity
1 month ago
1
1

I'm thinking about you every day, Brian! I will keep sharing and do everything I can to help!

+ Read More
Donna Colwell
18 months ago
1
1

Merry Christmas Rob and Brian May God continue to heal the physical and mental scars for you both. !

+ Read More
Tanya Armstrong
19 months ago
1
1

I can not donate but it makes me sick to see this happened to your child.. I hope and pray for a strong recovery for him yes i followed the story on the news . sad just sad

+ Read More
Patti Moore-Pacola
21 months ago
1
1

Such a brave young man-keep up the fight Brian. We are praying strong for you!!

+ Read More
Donna Colwell
21 months ago
1
1

Rob, I met you on the plane today. It was my pleasure!! Keep up your strength ! You are an amazing Dad, your son is very lucky to have you! They are seeing your actions verses their mother. They will be better men because of you! I hope and pray for very good things to come to you all very soon!!

+ Read More
Carol Olson Blazejak
23 months ago
1
1

Go fund me takes a cut of the money. Won't give to it but directly to the person.

+ Read More
Bonnie Davis-Lacko
23 months ago
1
1

Looking forward to the fundraiser address, & times :)

+ Read More
Trudy Galla
23 months ago
1
1

Happy Birthday, Brian. Praying for you and the family.

+ Read More
Tammy Mcnamara
23 months ago
1
1

My thoughts and prayers are with you all including the doctors taking care of him that they can do whatever it takes to help this innocent young man prayers to all involved God bless❤

+ Read More
Rosemarie Bullock
23 months ago
1
1

Praying for your boy and family ❤❤❤

+ Read More
Patti O'Dell
23 months ago
1
1

Praying hard for your son and Marcus.

+ Read More
Deb Schafer McGrew
23 months ago
1
1

praying they figure the high temps and infections out

+ Read More
Patricia Fleury Berg
23 months ago
1
1

Praying that Brian improves Keep up your strength. Take a walk outside every day.

+ Read More
Kristal Leann Griffin
24 months ago
1
1

I dont personally know any of you but I have been following your story very closely. My heart and prayers is with you, your boys, and your family! It literally pains me to think about all the pain and suffering you all are going through right now because of one persons bad decision. You dropped the world to be with your boys during the most difficult time of their life and for that i give you so much love and respect! I admire your strength, perseverance, effort, and motivation. As a mother of 3 i can only imagine the pain you feel right now... When I first read about this on the news I was flooded with so many different emotions.. Heartbreak for the pain and suffering your boys are going through. Sadness for you, your kids, your family, and everyone going through this horrible time right now. Disappointment because your boys are paying the ultimate price because of one person's bad decision. Anger because these 2 boys own mother put them in a dangerous situation even though she knew it was wrong and now these boys are suffering just because their mom was being selfish and wanted to cook drugs. Your son's were just innocent children that got put in a bad situation and now they are going through something that no person and especially no child should ever have to endure! I almost lost my daughter a couple years ago when she was 15 months old. She had a random blood infection that caused sepsis and went to her brain. It caused massive brain swelling. We were air lifted to Helen devos children's hospital and she was in the Pediatric Intensive Care Unit on a ventilator for over a month. The doctors told me she wouldn't survive but that if she did she would be on a ventilator for the rest of her life and the most she would ever be able to do is blink if I was lucky. I refused to give up. I knew my daughter was strong and I knew she was still in there fighting. I refused to take her off the ventilator. After a month passed she started to have more brain activity and then she started to fight and breathe on her own and then one day she woke up!! She wasn't out of the clear yet and she had brain damage but everyday she made progress. After over 1 1/2 months she was stable enough to move us over to Mary free bed rehabilitation where we stayed at least another month. She had extensive therapy and was improving every day. We went home after a couple months. July 2nd marks three years since this happened. She is doing amazing! She walks, talks, and is very smart. The long term effect this has caused is right side weakness. She especially has a difficult time with her right arm/hand but she is even starting to use that now. The doctors don't understand how she is still alive but they especially don't understand how she is doing so well. They medically and scientifically have no explanation as to how she has recovered so well. I have an explanation though.. She is loved, she's a fighter, she is tough, and it wasn't her time to leave this earth. God is the explanation as to why my daughter survived and is now excelling. He saved my baby. I realized after this situation that Miracles do happen!!! Keep faith and keep praying! ♡♡ This will get better. I know it feels like the weight of the world is on your shoulders right now but it will get better and easier so don't give up or lose hope no matter what. I'm so glad these boys have all this love and support from their father, friends, family, and even people like me that are complete strangers. Keep your head up and continue to stay strong. Don't ever lose hope. Right now you are your son's strength. You are their rock. You are their love and support. Your everything to them. I tried to write you on your page privately but Facebook wouldn't let me. I wrote this long comment hoping to give you hope and to let you know that right now you have an army of people behind you guys giving you our full support. I know I'm technically just a stranger but your all in my heart and I've been praying for all of you since this incident happened! I hope for nothing but the very best for you, your kids, and your family. It's during these times that people need to be reminded how much people really do care. I'm glad your kids have a father that is so supportive, caring, and dedicated to being there for his kids while they fight this battle and recover. It takes a lot of strength to deal with something so tragic like this so I commend you and applaud you for staying so strong and bending over backwards to make sure your boys have all the best medical care, help, support, and love that they deserve and need. ♡ Please continue to keep us all updated.

+ Read More
Bernadette Johnson
24 months ago
1
1

I don't personally know you or the boys but my children and I have been following your updates. This situation has hit home with me because I have 4 boys that are 8,7,5 and 3. I can't imagine what you or those precious boys are going through! My boys have taken it upon themselves to walk around Manton collecting pop bottles to donate the money to you and the boys. They would like to send you this money personally. If you could send me an address that would be wonderful.

+ Read More
Vona Mae Sheele Chachulski
24 months ago
1
1

I wish I had the funds to help, all I can do is pray for you and your son and share this, My Prayer's are with you all

+ Read More
Barbara A Stephenson
24 months ago
1
1

Rob, you don't know me but I just read about your son. I'm so very sorry. I can't send money but I am praying for all of you. I will also spread the word. I will keep praying.

+ Read More
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