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Cyberknife Treatment for Charlie

£36,599 of £60,000 goal

Raised by 580 people in 11 months
In 2015, Charlie, aged 8 was diagnosed with a brain tumour called a medulloblastoma. He endured emergency surgery to remove the tumour and then many rounds of radiation followed by 4 stem cells transplants. He was recovering well, until the devastating news in March 2018 that the tumour had returned in two places on his spine. He's since had 2 further rounds of chemo which have not halted the growth and the tumours have unfortunately doubled in size during this period. Options on the NHS are now extremely limited and the chance of a clinical trial is slim.

Cyberknife treatment could offer real hope in this urgent situation. This is a precise radiosurgery which is painless and non invasive but comes at a cost of £30,000 - which the NHS wont fund.

Charlie's family are desperate for him to have this treatment as soon as possible before his condition deteriorates. This treatment is offered in Europe and America with great results.

Any help would be much appreciated for this much loved, cheeky and very brave little soldier!
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Charlie continues to do well and is feeling good. The current plan is for him to go to Germany for Immunotherapy which could offer hope of a long term cure. This would not cause him any adverse effects and is not like chemotherapy.

To help raise the £40,000 needed for this we are holding a vintage fete in Shiplake on the 7th July. This will include a bouncy castle, fortune teller, magician and free organised children's games, 3 singers will perform throughout the afternoon around a family picnic area.

Entry will be £1.50 each or £5 for a family.
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Charlie is doing really well at the moment. His MRI scan this week was very positive.

Since the stem cell transplant he's been on a little trip to Spain, had a new fixed wig - which he is so delighted with and he won a Henley's Hero award!

He's back at school part time while he rebuilds his strength but hopefully life will be able to return to normal very soon. This really would not have been possible without everyone's huge generosity.

We are so very grateful to everyone who has contributed towards his treatment and to giving us hope for the future.
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It's been a tough few weeks for Charlie. The stem cell transplant process was always going to be the worst part due to the extremely high dose of chemotherapy drugs given. I'll spare you the details of all that Charlie has gone through but the positive news is that his blood counts are increasing and the stem cells are starting to do their work. Hopefully he'll be able to come out of isolation and return to his usual ward in the next couple of days. All being well he should be able to come home and celebrate his missed birthday around 2 weeks later.
Thanks again for all the continued interest and support.
Karen
xx
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Some good news from Charlie. His latest MRI scan shows only the very smallest trace amount of cancer left. His doctor is very pleased and is happy that Charlie can stop his current course of chemo and start the stem cell transplant process. This is a very high dose of chemo followed by the reintroduction of Charlies stem cells which were harvested in December. Charlie will be very poorly after this dose of chemo, unlike what he's had previously so it's not easy but does mean his treatment is coming towards the end. They should be in Turkey for around 5 weeks waiting for his immune system to rebuild.
As something to keep him positive during this hopefully final hurdle the lovely people at Make a Wish are arranging for Charlie to swim with the dolphins in Florida in May which he is very excited by - they weren't so keen on his first suggestion of a skydive!
Thank you so much for all of the new donations they are so so much appreciated. It is Toni's wish that after Charlie's treatment ends she helps to make changes to how other families, given devastating news, are treated and that help and advice is available to all on how and where you can access potential treatment options not currently available on the NHS.

Thanks Again
Karen xx
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£36,599 of £60,000 goal

Raised by 580 people in 11 months
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