CRYSTAL'S ROAD TO RECOVERY
She has recently just come out of hospital where she had spent the last 10months.
Due to Guillain-Barré syndrome.
(GBS) is a disorder in which the body's immune system attacks part of the peripheral nervous system.
These symptoms can increase in intensity until certain muscles cannot be used at all and, when severe, the person is almost totally paralyzed. In these cases the disorder is life threatening - potentially interfering with breathing and, at times, with blood pressure or heart rate - and is considered a medical emergency.
I watched my dear friend go through this and wanted to give something back as she is never one to ask for anything.
She has a young beautiful family and the most caring partner and I know that now since leaving the hospital the financial strain of on going cost, for meds, home care nurses, not being able to work and also renting and having a family to support.
With her partner having time off work to help as much as he can.
I would like to help raise some money to her and her beautiful family to take some of the stress away.
If anyone could please help me help them,
Any donations are welcome no matter how big or small.
Thank you everyone!
Your help is truly appreciated
I'd like to personally help Crystal and her family financially or with my time.... whatever you need. How can I contact someone directly? If someone from the family want's to contact me directly at 850-502-6472 that would be much appreciated. I've been blessed financially and have all the time in the world to make a difference. I've recently lost my mother to something very familiar so I understand a little bit of what you guys are going through. God bless and hope to hear from someone soon.
I wish I had something monatry to give. But currently I do not. I myself suffered a demylenatling neurological disease in January 2016 resulting in coma and paralysis followed by an incurable autoimmune disease. I'm a single mother of two on disability who wants nothing more than to help those who find themselves in situations beyond their darkest nightmares. But what I can provide is this. You've just overcome the impossible. You are literally a superhero now. Your children will never look at you the same. They'll forever remember you as the woman who turned it all around and came back stronger than ever. You'll have days where you feel unstoppable. And you'll have days where you want to crumble. Your story is an inspiration to many and I am sure it isn't over. You seem to have an overwhelmingly large support system, and you need that, I certainly did, and still do. But if you ever want to reach out to someone who's lived through a piece of what you went through, just reply to my comment with a way to contact you and maybe we can share our experiences.
my daughter had this terrible disease last year but luckily she didn't have it as bad to be put on a breathing machine. but it was horrendous watching her go through it. she was paralysed and had to be helped eat wash do her hair etc a year on and she has fully recovered and is now expecting her first baby !! x
Crystal- I'm from the US and also had a severe case of GBS in 2016. Unfortunately, I only have one video of my experience, and it was when I took my first steps. I was a marathoner and b/c of the abnormal presentation and severity I had, doctors suspected I would not walk again. But I did. And 10 months later, I ran a full marathon again. Watching your video hit home so deeply, it brought me to tears. I had forgotten so much of the experience; the nighttime nerve pain, having PT's lift my limbs to exercise them, the joy of barely twitching my foot for the first time. Thank you for sharing your story. Please reach out if you'd like to connect. xoxo
Keep fighting girl! I have been down this same road I know everything you are going thu! Our stories as so similar only I was able to get out of the hospital in theee weeks I had the miller-fisher variation. You are amazing keep pushing forward even on the days you want to give up! Do not give up!!!
I'm a GBS survivor. The pain is unbelievable. Missed my sons first birthday due to GB. Small things like holding your own toilet paper was great. Being able to squeeze out toothpaste. Simply getting out of bed on your own was a dream come true. Since then i have made a full recovery, did my first IRONMAN, but been keeping fit ever since my recovery. APPRECIATE LIFE AND ALL THE SMALL THINGS IN IT! Good luck for the next few months Crystal Brown. xx
Prahing for you my oldest son had this when he was 10 yrs old scared me to death doctors couldn't figure it out it took 4 different hospitals to get an answer it was almost to late. He was an amazing athlete world champion wrestler. He is now 25 yrs old and still struggles at times. Good luck and pray you have a full recovery.
I was diagnosed with this in 2011 in China after contracting a cold....i tried to get to Hong Kong to fly home to my family..unfortunately i collapsed trying to get from the Taxi onto the pathment This was 36 hours after first symptoms to being completely paralysed and one eye closed I was treated in St Margret's Hospital Hong Kong with a 5 day course of immunoglobin After 10 days in Hong Kong I managed to travel home and took another 3 months to learn to walk...I was lucky to be diagnosed and treated so quickly . It remains the most scarry thing that has happened to me and my best wishes go out to anyone who is suffering with this or the side affects that you can be left with
My hart breaks!!!! My daughter was also diagnosed with Guillian Barre Syndrome in January 2016 only being 2 years old. We nearly lost our little girl. But she was given a second chance and just like the pain I saw from this video in the recovery so was the pain for my little girl in every step. Even after a year where she is back on her feet she still suffers and her body is still weak but I will never give up. Hope the road ahead will bring you strength and happiness!!!! X X X
Hard to watch this as I helped a guy who also had this disorder to regain his full driving licence. It was hard work for the both of us, but I just wanted to say, stick with it, he did and he got his Licence which was the only thing he really desired. You're a breath of fresh air. Good luck with your recovery. Much love and respect.
I'd like to say Wow, God is amazing, this video has reach Canada I'm in Beautiful British Columbia and living in Prince George with that your courage and pure determination has shown the world that anything is possible if we believe in "Faith" u have the most amazing family and husband, you will be on the show Ellen soon as across the world has cried with you but the come back is feirce and god will use his best angels here on earth to show just how great his love is, so With That " local first nations people here in B.C Canada will be praying 4 you all ;) God bless you all