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Help Heal Elliott's Heart

$23,231 of $25,000 goal

Raised by 532 people in 23 months
Created June 20, 2017
*UPDATE*  Elliott is now 8 months old and is fighting for his life at OU Children's PICU in Oklahoma City.  Elliott had a routine heart surgery, but due to complications he ended up on life support.  Elliott's heart and lungs were unable to provide oxygen to his body which caused him to go into renal failure.  Elliott also suffered numerous strokes.  His parents have had to take extended time off work without pay.  All of the funds raised go directly from GoFundMe to Elliott's parents (Andy and Mariah Johnston) and will help them stay afloat while they are unable to work (since normal every day bills do not stop coming in situations like this) as well as help pay for the huge amount of medical bills they will be receiving.

You can follow along with Elliott's story at Hearts for Elliott.

Every parent's dream is a perfect pregnancy, a perfectly planned delivery, and most importantly a perfectly healthy baby. Andy and Mariah are having their perfect baby boy, Elliott, on August 1, 2017, but not without a challenging road ahead. They live in Tulsa, but Elliott will need to be delivered a little early, at 38 weeks, in Oklahoma City where his specialists are located.

In-utero, Elliott was diagnosed with a double outlet right ventricle with non-committed VSD and malposed vessels with aortic hypoplasia. His condition can be corrected with surgery or a series of surgeries (either one surgery shortly after birth or a series of 3 surgeries over the course of a couple of years). They won't know for certain until after he is born which surgical route will be required for Elliott. However, at this time, the cardiologist thinks it will have to be the more lengthy process of three surgeries over his first couple of years. He is expected be in the NICU for at least his first 4-6 weeks and undergo his first surgery within 3-10 days after being born.

As a family member, I have established this campaign to help ease the financial issues this couple will face with medical expenses, travel expenses, time off work, as well as simple daily living expenses, while away from home, as Andy and Mariah face this journey from Elliott's birth until he is able to safely remain home after his final surgery.


Every $1 counts. No amount is too small. It's never too late.

Thank you in advance.

Leah Bacon



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WE ARE GOING HOME! This has been the longest five and a half months of our life. Living in a hospital has definitely not been the most fun we’ve ever had, but this day makes everything so worth it. For the first time during this journey, I honestly don’t have words. We thought this day would never come, and our hearts are overflowing with joy and thankfulness. Elliott’s journey isn’t ending, he’ll still require a lot of doctor visits, medicine, and eventually more surgery, but after what we’ve been through, we know we can handle it.

I wish I could say that everything is absolutely perfect now, but I can’t. The same day we were able to bring Elliott home, I also lost my job. Things were tight when both my husband and I were working, but now that it’s just my husband, we don’t know what we’re going to do. Elliott should now qualify for insurance through SoonerCare as well as disability. Because of Elliott’s intense medical needs, it is unsafe for him to go to daycare. While I wish the answer to this new problem was as easy as me going out and finding any job possible, it isn’t. Either me or my husband needs to be home with Elliott at all times. Please keep us in your prayers as we start this terrifying new chapter in our life, and continue to share this campaign as we attempt to pay medical bills from a five and a half month long hospital stay that included numerous surgeries and procedures, the continued medical care that Elliott’s needs which includes numerous doctor visits and medications, as well as our normal daily bills.
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Elliott is now day 5 post-op, and this evening he has finally felt okay enough to start moving around. One of the nurses took apart a syringe and gave it to him, and he’s hardly let go of it since. He’s also completely off oxygen and he got his IJ line removed today!
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After five months of being in the hospital, everything is finally going in Elliott’s favor! Today, he’s been able to get his art line removed, feeds have been started at 5 mls/hour, and he’s been switched from high flow oxygen to the wall! It’s still very apparent that he isn’t feeling well by his lack of smiles, and he hates being messed with, so we’re spending another restful day watching his favorite shows and movies. We’ve also about made it through the first Magic Tree House book, and seems to be enjoying it, so I can’t wait to get the next few books to read aloud to him! He did allow me to sit him up for a few minutes, and he didn’t seem to mind too much. We really cannot thank you all enough for the prayers and good thoughts you’ve sent his way. Finally, after six heart surgeries, he’s recovering the way he should have all along! Honestly, we’re still super nervous about him because of these past few months. This is the first time things have gone smoothly for him, so we can’t help but hold our breaths waiting for the shoe to drop. At the end of the day though, we’re still thankful for every second we have been given with him, and we know God continues to hold Elliott in His hand.
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Elliott has now been in the hospital for five months, and today is his first birthday! We’ve had an absolutely terrifying past few weeks. About a month and a half ago, when they were finally starting to talk about sending us home, a pseudoaneurysm was discovered in Elliott’s right ventricle. After monitoring it for a month and seeing that it was growing, we were given two options: we could take him home knowing that it could burst at any time leading to his death or opt to have a very high risk complicated surgery with only a 20% success rate. It felt like an impossible decision, but we did go for the surgery. We spent those weeks leading up to it cherishing every second with our sweet boy. The weekend before surgery, we threw a huge birthday party for him, just in case he didn’t make it to his actual birthday. On August 1, I carried my baby into the OR and gave him one last kiss. He was in there for twelve and a half hours, but he made it out alive. Elliott has now had six heart surgeries, two general surgeries, and seven other procedures, all before turning one. He is the biggest miracle I’ve ever known and he clearly has a huge purpose in this life. Please continue to shower him in your prayers and healing vibes. His journey is unfortunately far from over. Thank you all so much for your incredible generosity and willingness to help our family. Hospital life is not easy, nor is it cheap. The unpaid time off work, extra bills, travel expenses, food, and much more adds up so fast, but you’ve all helped us breathe just a little easier.
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$23,231 of $25,000 goal

Raised by 532 people in 23 months
Created June 20, 2017
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