#courage4Lyonscubs Medical Fund
Their new neurosurgeon is in NYC and that requires a lot of travel, hotel cost, and out of pocket medical expenses. Our family will be separated for weeks at a time during their surgeries. We are turning to our community for support. This is a lot for a family with just 1 child to face, but having multiples has made it more challenging. It will not stop us from getting them the care that they need, but the support we receive will ease the burden.
These children deserve a childhood free from pain and that is what we are hoping this doctor can help give them. Please consider making a donation to this cause. If you would like more information about their conditions or their treatment, comment below.
You can follow their journey and learn more at:
His hydrocephalus is a raging maniac and out of control. We are going to drain the 20cc every hour and Monday morning back in the OR for either an external shunt from his Omoya on the top of head or place an external lumbar shunt. We are here for 4-5 days after that and hoping this plan works. If it does not work he will get a shunt placed. His ETV is working for his hydrocephalus, but he now has ICP.
I will most likely be extending my stay past the 6th, which means that my family at home is going to rely on daddy for a lot longer. If you feel led to offer help in any way, please do so. I'm trying so hard to be strong, keep checking in on my family, but it's proving to be a bit much.
This next week is filled with getting ready, surgery for Carley, school appointments, creating daily routine charts and emergency plans for those helping, organizing the house so people that aren't me know where to find things, and then trying to find time to take in every minute with my kids. They are my world.
3 weeks of me away in NYC is also a financial hardship. It's 4 months of our mortgage to be there just for the hotel alone. I know this is temporary, but it's still a lot.
Thank you to those who have reminded me how strong I am and this will be ok.