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#courage4Lyonscubs Medical Fund

What started out as seizures that we thought were controlled by medications, turned into a journey that our entire family is affected by.  Having 5 children is a blessing.  Raising 5 kids can be expensive, but raising 5 kids where 3 of those are medically complex is another story.  It is one that has pushed our family to our financial limits.  These 3 children, Carley, Greyson and Landon all share the diagnosis of Chiari Malformation and Ehlers Danlos Syndrome.  They each have their own other conditions that they suffer from  as well : hydrocephalus, epilepsy, syringomyelia, POTS, Mitral Valve Prolapse are just to name a few.  Between the 3 of them they have had 4 brain surgeries, 15 other surgeries/procedures and over 20 scans.  Within the next 12 months 2 of them are facing more operations.  Due to their most recent diagnosis of Ehlers Danlos, it has left Landon in a neck brace for the majority of his day because his neck is very unstable because of the complex surgery he has had.  These children push through their daily pain with a smile on their face.  They have not had a chance to be a child and do typical childhood things. 

Their new neurosurgeon is in NYC and that requires a lot of travel, hotel cost, and out of pocket medical expenses.  Our family will be separated for weeks at a time during their surgeries.  We are turning to our community for support.  This is a lot for a family with just 1 child to face, but having multiples has made it more challenging.  It will not stop us from getting them the care that they need, but the support we receive will ease the burden. 

These children deserve a childhood free from pain and that is what we are hoping this doctor can help give them.  Please consider making a donation to this cause.  If you would like more information about their conditions or their treatment, comment below.

You can follow their journey and learn more at:

https://www.facebook.com/courage4lyonscubs/





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Donations 

  • Elizabeth Hartnett
    • $50 
    • 7 yrs
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Organizer

Lisa Lyons
Organizer
Buffalo, NY

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