Cooper Is A Trooper

$5,683 of $10,000 goal

Raised by 125 people in 8 months
Created March 5, 2018
Cooper McElvain was born February 18, 2018. He was placed on a ventilator immediately as he could not breath on his own and was life flighted to Norton Hospital in Louisville, KY the following day. Cooper has been diagnosed with CHARGE syndrome, which is a rare disease caused by a genetic disorder. This disease affects about 1 in 10,000 babies and affects multiple aspects of the body, many of which are life threatening. Cooper has undergone two surgeries so far and will have more down the road to continue to repair his airways. It is likely that because of the issues with his airways that he will need a feeding tube for his first year of life. Cooper will also need either a bone marrow transplant which will take place in Louisville, or a Thymus transplant which can only be done at Duke University Hospital in Durham, North Carolina.

As you can see, this child has a long road ahead of him. We are raising money to help his parents,  Allison and Wayne, who have been and will continue to be by his side every step of the way. This includes an undetermined time off work for them both, the cost of living out of town/travel added to their expenses at home, and medical costs. They also have another son, Chance, at home who they are having to be away from which is hard also. Any little bit will help to alleviate some stress for this family during this time.
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Update on Cooper:

The genetic immunology panel came back indicating Cooper will need a thymus transplant. This transplant in a non FDA approved procedure, but is his only chance to live a healthy life. Cooper and his parents will be transferred to Duke as soon as possible. If the transplant is successful, he will still come home with a severely compromised immune system. They will have to make significant changes to their house to keep it as sterile as the hospital until he builds up an immune system. The first thing they will need to do is put new flooring in their house that can be cleaned with hospital grade sanitizer.

Cooper has also since had a Tracheostomy and feeding tube placed. He is making improvements, but still has a long road ahead. Please continue the prayers, and again, thank you to those who have donated or even simply shared to help get the word out. With medical bills coming in every day, being moved to Duke University and the changes that will need to be made at their home anything will help.
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Update on Cooper. Yesterday he turned one month old! This a huge milestone for him considering everything he is going through.

Cooper has received two more surgeries to open the airways in his nose, which makes four total surgeries so far. This is due to what is called Choanal atresia, which is one of many symptoms of CHARGE. There will be more of those surgeries to come. He has also received two blood transfusions.

Cooper has coloboma in both eyes (another symptom of CHARGE) which can affect his vision as well as Laryngeal cleft that will have to wait to be operated on as he is too small at the current time.

Due to the absence of his thymus gland, he has no T-cells to fight off virus and infection. So it is imperative that he not get sick. There is also a pending SCID (Severe combined immunodeficiency) diagnosis, this affects 1 in 30,000. He will have to have a bone marrow transplant to treat both.

Cooper has a very long road ahead of him, as well as his family. Please continue to pray and thank you to those that have contributed.



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$5,683 of $10,000 goal

Raised by 125 people in 8 months
Created March 5, 2018
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LR
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Lauren Rutherford
3 days ago
$25
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Donna Mayhew
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LR
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