141
141
6

Cooper Is A Trooper

$6,018 of $10,000 goal

Raised by 136 people in 15 months
Created March 5, 2018
Cooper McElvain was born February 18, 2018. He was placed on a ventilator immediately as he could not breath on his own and was life flighted to Norton Hospital in Louisville, KY the following day. Cooper has been diagnosed with CHARGE syndrome, which is a rare disease caused by a genetic disorder. This disease affects about 1 in 10,000 babies and affects multiple aspects of the body, many of which are life threatening. Cooper has undergone two surgeries so far and will have more down the road to continue to repair his airways. It is likely that because of the issues with his airways that he will need a feeding tube for his first year of life. Cooper will also need either a bone marrow transplant which will take place in Louisville, or a Thymus transplant which can only be done at Duke University Hospital in Durham, North Carolina.

As you can see, this child has a long road ahead of him. We are raising money to help his parents,  Allison and Wayne, who have been and will continue to be by his side every step of the way. This includes an undetermined time off work for them both, the cost of living out of town/travel added to their expenses at home, and medical costs. They also have another son, Chance, at home who they are having to be away from which is hard also. Any little bit will help to alleviate some stress for this family during this time.
+ Read More
Cooper has been doing well. He’s had 3 surgeries this winter, that have all been successful. Another operation is scheduled for this Wednesday. He got hearing aids last month and celebrated his first birthday! We’ve had some issues resolved and discovered new issues. It’s been quite the rollercoaster this past year. We’re still being followed by high risk neonatology, immunology, oncology, opthamology, audiology, otolaryngology, gastroenterology, pulmonology, cardiology, endocrinology and a geneticist.

Most importantly, Duke has reopened their thymus transplant department after a 14 month shutdown! Cooper is on the waiting list for a life saving thymus transplant that will help his immune system. We’re still living in isolation. Duke in North Carolina is the only place in the United States that does thymus transplants. They’ve done less than 100 in the last 25 years. The transplant still doesn’t have FDA approval, therefore, is still considered experimental. We hope our time to travel to Duke for our sweet boy’s second chance is coming soon. We anticipate having to relocate to Duke for several weeks.

Thank you to everyone for your support, and most importantly the thoughts and prayers ♥️
+ Read More
Cooper’s care is being transitioned to the CHARGE center at Cincinnati Children’s. He and his parents were in Cincinnati last week for appointments with nutrition, audiology, otolaryngology, pulmonology, gastroenterology and ophthalmology. He also went to the OR and had an exploratory triple scope and received Botox injections in his salivary glands to help with secretion management.
Cooper’s parents received news that his lungs are in critical condition due to constant aspiration, which they were not expecting. He is scheduled to have a laryngeal cleft repair on January 9th, 2019. Please join us in praying for a successful and minimally invasive surgery. Also, Cooper is still waiting for a thymus transplant. Duke is hoping to resume transplants in January 2019.
+ Read More
Update on Cooper:

The genetic immunology panel came back indicating Cooper will need a thymus transplant. This transplant in a non FDA approved procedure, but is his only chance to live a healthy life. Cooper and his parents will be transferred to Duke as soon as possible. If the transplant is successful, he will still come home with a severely compromised immune system. They will have to make significant changes to their house to keep it as sterile as the hospital until he builds up an immune system. The first thing they will need to do is put new flooring in their house that can be cleaned with hospital grade sanitizer.

Cooper has also since had a Tracheostomy and feeding tube placed. He is making improvements, but still has a long road ahead. Please continue the prayers, and again, thank you to those who have donated or even simply shared to help get the word out. With medical bills coming in every day, being moved to Duke University and the changes that will need to be made at their home anything will help.
+ Read More
Update on Cooper. Yesterday he turned one month old! This a huge milestone for him considering everything he is going through.

Cooper has received two more surgeries to open the airways in his nose, which makes four total surgeries so far. This is due to what is called Choanal atresia, which is one of many symptoms of CHARGE. There will be more of those surgeries to come. He has also received two blood transfusions.

Cooper has coloboma in both eyes (another symptom of CHARGE) which can affect his vision as well as Laryngeal cleft that will have to wait to be operated on as he is too small at the current time.

Due to the absence of his thymus gland, he has no T-cells to fight off virus and infection. So it is imperative that he not get sick. There is also a pending SCID (Severe combined immunodeficiency) diagnosis, this affects 1 in 30,000. He will have to have a bone marrow transplant to treat both.

Cooper has a very long road ahead of him, as well as his family. Please continue to pray and thank you to those that have contributed.



+ Read More
Read a Previous Update

$6,018 of $10,000 goal

Raised by 136 people in 15 months
Created March 5, 2018
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
SH
$25
Sandy Holloway
3 months ago
LR
$20
Lauren Rutherford
3 months ago
MR
$20
Megan Ross
3 months ago
$100
Ashley Payne
3 months ago
TB
$25
Thelma Bell
3 months ago
JH
$25
Jared Hatfield
3 months ago
$25
Anonymous
3 months ago
LC
$10
Leigh Carter
3 months ago
$25
Anonymous
3 months ago
LJ
$50
Lu Johnson
3 months ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.