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Cooling Off for CHM

$7,205 of $10,000 goal

Raised by 57 people in 5 months
I am trying to raise money for a disease called Choroideremia(CHM) because my 2 sons and my 2 brothers are going blind. Please help me save their sight. CHM has no cure or treatment at the moment, but are we going to change that! Please join our fundraiser "Cooling off for CHM" and spread the word about CHM(Choroideremia). We are challenging you to.... 

1) Record yourself cooling off this summer (be creative)
2) Post your video online to ALL social media outlets that you subscribe to, (fb, snapchat, insta, twitter youtube, etc) and challenge 3 friends to cool off for CHM. 
3) DON'T FORGET TO DONATE @ gofundme.com "Cooling off for CHM".

Please know that every dime we receive will go directly to finding  treatment and/or a cure.

Thank you for helping us make a difference! We couldn't do it without you.

Here's our story....
My grandfather was blind, but we never really knew why. It was the unspoken understanding...Pop was independent didn't want or need anyone's help. He embraced life with humor and never complained, so  we all just went about our lives.

That was until about 15 years ago when my teenage brother went for a doctor's appointment to diagnose the migraine headaches he had been experiencing. Instead, the appointment turned into a diagnosis for one of the rarest blindness diseases in existence.

CHM is a genetic disease, so after Kevin was diagnosed, then came my other brother EJ. Next, it was my turn to be diagnosed as a carrier. We were told that as a carrier, I had a 50/50 chance of passing the gene on to my children. Dreaming of a family, my husband and I chose to roll the dice and have 2 children. Both of whom were later diagnosed to have Choroideremia.

Choroideremia (CHM) is a rare inherited disorder that causes progressive vision loss, ultimately leading to complete blindness. The first symptom is generally night-blindness, followed by loss of peripheral vision. Picture your eyes going through a tunnel as it closes in on you until you are in total darkness. This is the life of a CHM'er.

CHM is progressive, so we are all feeling an overwhelming sense of urgency to find a cure or treatment. Time is running out for CHM'ers, we thank you for your help!

To learn more about CHM go to:  CURECHM.ORG
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Thanks again for the outpouring of support for our "Cooling off for CHM" campaign. We have made over $5,000 so far and it isn't over yet! So, please continue to share our story and spread the word about Choroideremia(CHM).
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$7,205 of $10,000 goal

Raised by 57 people in 5 months
Funds raised will benefit:
Choroideremia Research Foundation, Inc.
Certified Charity
+ Learn More
Springfield, MA
EIN: 043511754
How it Works
  1. You make a donation using a PayPal account or a credit/debit card to PayPal Giving Fund (a 501(c)(3) charitable organization).
  2. After the deduction of payment processing fees, PayPal Giving Fund delivers the funds it receives to the chosen charity on a monthly basis.*
* If, after reasonable efforts, PayPal Giving Fund cannot deliver donations to this charity, the funds may be donated to another charity per PayPal Giving Fund’s policies.
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NG
$5
Nestor Jose Gomez
29 days ago
ID
$50
Ian Denson
2 months ago
DA
$25
Deanna App
2 months ago
MD
$100
Meegan Dollard
2 months ago
TG
$5
Thomas Garrett
2 months ago
SD
$25
Shelby Dockery
2 months ago
AC
$15
Amanda Curtin
2 months ago
SF
$25
Stott Family
2 months ago
MB
$5
Michael Badu
2 months ago
MB
$100
Mechthild Böttger
2 months ago
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