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CLUSTER HEADACHE aka 'SUICIDE HEADACHE' TREATMENT

$9,475 of $25,000 goal

Raised by 178 people in 2 months
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Created May 6, 2019
Fundraising Team
on behalf of Tom Termeer
Hi folks, it's Mike Smith/Bubbles from the Netflix series 'Trailer Park Boys' here. I'm starting this GoFundMe campaign for a long time Trailer Park Boys fan, and now our friend, Tom Termeer. Tom is from London, Ontario, Canada and he suffers from what a lot of doctors refer to as 'the most painful disease known to science - Trigeminal Autonomic Cephalgia, or more commonly known as the Cluster Headache, or 'Suicide Headache'. It's a very rare condition that affects .01% of the worlds population, but it is aptly nicknamed the suicide headache because the pain can be so intense that, in many cases, people afflicted by it simply aren't able to withstand the pain, and take their own lives to escape it. And if you watch the video below, you can begin to understand why.  Since 2005, Tom has been suffering from the chronic version of this disease, which means he endures this excruciating pain on a daily basis, often multiple times a day, for anywhere between 30 minutes to 3 hours, per attack. Just take a minute to think about that. Every. Single. Day. Multiple times. Since 2005.  Since getting to know Tom better over the past several months he's been truly inspiring to me. During the precious moments he has where he isn't suffering through one of these horrendous episodes, he uses that time to help the people around him, including working tirelessly to help the homeless. Meeting him, talking to him, and seeing first hand not only what he endures on a daily basis, but seeing the lengths he goes to help other people, despite his own condition, has been a truly humbling experience. There is no known cure for this disease. BUT there is a clinic in NY that I've arranged to send Tom and his wife to, that is going to perform a promising new stem cell procedure on him, which hopefully will give him some much needed relief and healing. He deserves this chance to have any amount of improvement for his quality of life. Every penny I raise from this page is going directly to Tom's treatment and any follow ups that we can arrange. I've also setup a page at: www.cameo.com/bubblestpb where, if you haven't seen it yet, you can pay to have celebrities record you a personalized shoutout.  I thought this might be a fun way to give something back to you hardcore Trailer Park Boys who wanna donate, so every penny I raise from selling cameos will also go to Tom's treatment. On behalf of myself, and Tom, thanks for taking the time to read this and for anything you're able to contribute! Every dollar counts!! Bubbles 8-)
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Hi everyone, and a HUGE heartfelt thank you of Gratitude to every single person who took part in this with us. We are deeply grateful and humbled. This would have never happened without the love, support and encouragement of some very special people and all of you.
The procedure went very well. And I am a very slow healer so I am still in a bit of pain but ill be ok.
Literally overnight my APHASIA ( difficulty speaking and stutter like) with 90% improvement.
My sciatica pain which is 24/7 but about 4 or 5x spikes a day in pain is literally cut in half. And I know in time will be much better.
Labido.....incredible. Mental health, 100%. I wake up everyday with a smile that you can not punch off my face. My head will take time. It is very sick. But I believe in my heart in time it will help me. And get off medications that are ending my life sooner than later.
Never in a million years did we ever think this could happen to us. Because it affects my entire family. So this gift not only helps me but helps everyone around me. If I had won a million dollars in the lottery, I would have spent every cent trying to feel better, So to me, this was winning the lottery, The ONLY thing I wished for was that I could help others who are hurting too. I hope my journey of the relentless suffering and having this treatment done can give HOPE to others.
I had lost all hope prior to all of this. Mike saved my life. I am forever grateful for that.
All the years we helped the homeless handing out HOPE bags I was selling HOPE, And I never knew what HOPE was until I lost it completely prior to all of this. Now Kristen and I can get back to helping those who have nothing. Which we have already started. And all of this is possible because all of you.
I know how lucky I am. And consider every moment a gift. All I ever wanted in life( for almost last 15 years) was a better quality of life. This is my chance, Thank you.
Much love, kindness and gratitude.
Tom & Kristen
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UPDATE: TOM IS GOING TO NY!

A huge, heartfelt thank you is in order to everyone who donated to the the campaign for Tom!! Through your donations, plus what I made for Tom through Cameo.com, PLUS the incredible donation from Redecan Cannabis of a private plane, we have made enough to get Tom to NY for the treatment!! Things are going to happen pretty quickly now, I was able to get Tom into the clinic immediately so he and his wife will be travelling to NY to get the treatment done on Thursday! None of this would be possible without your donations, without those of you who bought personalized shoutouts on Cameo and without the generosity of REDECAN. Thank you all!

Mike
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I am so humbled everyone. Thank you for your kind words thoughts well wishes and prayers. I wanted to address some comments to save some confusion. Yes magic mushrooms are a very beneficial medicine. I also have had 4 brain surgeries which have left me with PTSD. A TBI. Neuropathic pain in me. A new head/neck pain they are unable to diagnose. Which snow balled into a medication that is destroying my insides. Without the medication I am 100% bedridden. With it. I’ll end up passing away much sooner and or kidney failure or on dialysis. It’s a long story but I am very sick from surgeries and it has greatly reduced the quality of life I have. This treatment option is NOT covered by OHIP and I have had every test available ( MRIs. Several cat scans and x Rays). Waited a year to get into pain clinic only to be told. I’m sorry we don’t know what is wrong with you. Sometimes we just don’t know. And said if I stay on this medicine. My life will end a whole lot sooner. I said I’m not living 30 years bedridden. I’ll take 5 if I can get it out of bed. They told me there is no more tests. No more options for me. My mornings start everyday between 3-5 am with 1-3 hours on toilet everyday. Woken up by headaches or severe stomach aches. I’m chronic pain 24/7. Non stop for years. No break. No relief. No remission. Add headaches, sciatica. Ibs-d. This is an opportunity for me to have some quality of life. My only hope is to get off this medication and hopefully didn’t do long term damage. It’s not narcotics btw. If there was an avenue to try. I have. If there was a test to be done. I asked for it. From brain surgeons to neurologists to my own GP. No one knows what’s wrong. They all say I dunno. This in Dr in NYC wants to fix me. I never once a second thought I deserve this. My wife deserves a healthier me. I want to feel better. Cluster headaches caused the 4 brain surgeries. Me almost dying several times from surgery to a suicide attempt a decade ago. And it has ruined any quality of life I have left with all these side effects. I believe this treatment in time will regrow cells and damage in my head/neck. Again. I want to thank every person who donated. Who wishes me well with kind words and prayers. Means so much to my wife and I. I owe my life to Mike. He saved my life. I never asked him for any of this. He is just a kind human being with a really good heart. I am very humbled and eternally grateful not just Mike. But everyone who is helping. To anyone suffering out there. I believe you. You do have value. I’m glad you are here and do not give up. Stay positive.
Tom and Kristen Termeer
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Thank you to every single person who has donated so far!! We made the CTV News in Canada so hopefully the donations will keep pouring in and we can get Tom to the clinic in NY.

https://london.ctvnews.ca/video?clipId=1677902&jwsource=cl
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$9,475 of $25,000 goal

Raised by 178 people in 2 months
No Longer Accepting Donations
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Created May 6, 2019
Fundraising Team
on behalf of Tom Termeer
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