CHRISTIAN'S MEDICAL FUND
I have just recently been diagnosed with recurring Medulloblastoma in my brain which has now spread to the spine. While being told that there was nothing that could be done at this point, my mom has not given up hope and is working tirelessly to find clinical trials and treatments available in other states. We believe we have found hope in a clinical trial that is currently being done at Boston's Children's Hospital/Dana Farber Children's Cancer Institute. This will require a lot of medical and travel expenses for my family. This fund will help with those expenses not covered by insurance. I cannot tell you how much your help will mean to me and to my family. This treatment, if I am a candidate could help to save my life...your help will allow me to seek this treatment. I still have a lot of fight left in me and am not ready to give up yet...thank you so much for all the support, love, and especially prayers that I continue to receive from all of you! God Bless!
Christian has been in MUSC for almost a week now. He has been hooked up to wires for his EEG since day one with nothing happening...finally today he had two episodes of what we have been witnessing with him over the last few months continually getting worse. They were able to pick 2 seizures in a few hours today. The neurologist said they are from the chemo and radiation treatment he had years ago. He will now start treatment for the seizures and hopefully that will help him feel better. He had is feeding tube changed while there so that is done for now. We will follow up with oncology and neurology in 4 weeks and go from there...special thank to Patrick Callahan of the Hanahan Police Department for visiting him today and bringing the canine to visit as well! That made his day! Huge hugs and love to everyone who visited and called to check on him....
Christian has just been admitted to the hospital at MUSC for seizures. They have hooked him up to have an EEG over the next several days and possibly another MRI even though he just had one 2 weeks ago. Neuro surgery will also be meeting with us sometime this week about the blood clot near his shunt...as well as the neuro oncology team and neurology team...Please continue to keep him in your prayers! I will post updates through this website since it is easier to get the word out to everyone this way.
It is with a broken heart that we received the news yesterday that the medulloblastoma has spread to several other areas in the brain. Christian has what is called leptomeningeal mestastases which means that the cancer is now in the meninges (lining) of the brain. We are still waiting for the CSF results to come back to see if it has spread up the spine. The neuro-oncologist will meet with the Tumor Board next Thursday to discuss our options (chemo vs no treatment). Unfortunately there is no cure, we are just trying to prolong his life for as long as possible. They have estimated he may have up to a year but cannot guarantee that time. Only God knows how long he will bless us all with this amazing child. We have a lot of decisions to make going forward and needless to say this has been a very emotional two days for all of us and there are no words to express what we are going through right now...It is heart wrenching to have to watch your child go through such a horrible disease. We don't want him to suffer but we also want him with us for as long as possible, I pray for God's guidance with all the decisions that we are facing. It has been an amazing thing to watch all the lives this child has touched in his short life....he brings such light and laughter to everyone he meets, he has such an amazing attitude and faith in God and I am so proud to be his mother...please continue to pray for our family as we try to make the most of the precious time we have left with our amazing son!