Cheyenne's Medical Fund

$21,050 of $30,000 goal

Raised by 358 people in 33 months
How do I even begin....Cheyenne is an amazing, beautiful, sweet, smart 15 year old that has overcome so much in her short life. She touches the heart of everyone she meets. She teaches us how to live our lives gracefully and appreciate life. Unfortunately, now she faces another mountain to climb.

Chey has had an extensive medical history stemming from a genetic disorder known as Familial Adenomatous Polyposis. She also has a seizure disorder and a vp shunt. She has already undergone multiple surgeries, traditional radiation, chemo and proton radiation for one tumor in her brain approximately 8 years ago. Cheyenne has overcome all of the problems and deficits related to that brain tumor and was doing very well until a new, dangerous tumor was discovered last November. It has quickly grown to a nearly inoperable size and is located in her skull base and c2 vertebrae of her spine. We have found a team of talented and amazing doctors including an oncologist, neurosurgeon, ENT surgeon and plastic surgeon at Cedars-Sinai and UCLA that are willing to do the time intensive and dangerous surgery to remove as much of the tumor as possible.

Her surgery is scheduled for December 7th with a vertebral artery occlusion procedure to be done 2 days before. The surgery and the occlusion are very risky but at this point due to the growth and size of the tumor, we have no other options. Cheyenne will then have to go to San Diego Rady Children's Hospital for very specific proton radiation to try to completely stop and kill the remaining tumor that IS inoperable due to its location in the C2 vertebrae and spinal cord.

We decided to start this gofundme account because not only will the surgery and radiation treatments be extremely expensive but we will have to get an apartment for a few months in San Diego during her radiation. Cheyenne will have proton radiation 5 days a week. It would be too far to drive daily and cause Cheyenne a lot of pain and distress. Paul, her dad, and 3 younger sisters will be with her everyday in San Diego while I remain in LA to work. We will be maintaining two households and a full time care provider.

It is important that Cheyenne be as comfortable as possible while she undergoes these treatments, especially so close to her major brain and neck surgery and reconstruction.

We are fortunate and blessed to have a wonderful employer that has completely supported us throughout this complicated process and illness. Any and all money will go to Cheyenne: to her treatments, any medical equipment, therapies or necessities she will need to keep her as happy and pain free as possible. This is a very complicated and scary procedure. Any help, prayers and positive energy you can send will help her family and her. We deeply thank you in advance for all you help.

Sincerely,

Cheyenne and family

https://youtu.be/KYIlmE9bO90
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Our precious daughter has been gone for one week today.....we miss her so much.... it’s a comfort to know that my work family and the community loved her as much as we did and do....
We appreciate the gorgeous flowers from Cherish’s best friend Clara and her family, from my close friend, Tiffany, and my work family at Cedars-sinai. It’s beautiful to know that Chey touched so many lives beyond our own ❤️❤️❤️❤️
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Trying to find a new normal.....we feel Chey’s presence with us and that’s comforting ❤️ She was worried about how her sisters would manage before she passed and I know she stays around us to watch over us. She was and is the strongest and sweetest person I’ve ever met. I am honoring her by trying to be hard to be half as strong as she is.
Our home seems empty without her physical presence but I feel her love with us everyday. We talk about her and our memories of her everyday. I don’t think there will ever be a day that goes by that we won’t say her name. We love you Chey ❤️
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Our beautiful Cheyenne passed away this morning. Although we knew this day was coming, it still crushes us beyond words. We are thankful that Cheyenne got to decide how things went and did it her way...just like we would expect from our brave independent young woman.

Cheyenne and our family have appreciated all the prayers, love and encouragement sent during the last few years as she fought hard and won battles.

Today we are devastated and heart broken that our Chey Chey is gone but so very happy for all the time we had with such a phenomenal person, a amazingly wonderful daughter and best big sister. The world is definitely darker without her light shining out upon us.
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So over the last day, her sweet hospice nurse and clinical partner have come to see Chey and offer words of encouragement and hope for all of us. It’s become quite clear that Chey is in the final times of her life... she is comfortable as much as possible. We spend last night pulling out old pictures and memories of Chey and we gathered all around her and talked to her and laughed about all the good times. We remembered all the times Chey made us laugh or how she was sooo sweet and special. She had written a card to her dad as a gift and said in it how he would just be able to read it over and over again and laugh over and over forever. Like she knew we would someday need that card....
We love this little angel more than anything in the world and it’s terribly hard to say, not goodbye, but I’ll see you on the other side. We don’t know how long it will be until we join her but we will join her someday....
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Read a Previous Update
Andrea Reddemann
17 months ago
4
4

I’m just going to say a prayer that you may be feeling as a family right now, “Dear LORD , please give our precious Cheyenne a break!!! Lord we pray it’s your will to let this be a temporary sign of things to be cognizant of and thank you for the forewarning before Cheyenne’s procedures. But now, dear LORD, please let her have some positive outcomes, responses and feelings of HOPE! In JESUS name we pray this AMEN!”

+ Read More
Tracy Charlene-Zito Bohte
16 months ago
3
3

Dearest Amy, You are one of the strongest women I know. God has given you precious time with your daughter. I believe you have been a wonderful mother and friend to your daughter. Praise God for all the days you've had with your daughter and the days to come. I couldn't imagine all the emotion you are going through. I hurt for you. Right now, your daughter is here and she knows that you are going to be by her side, and her daddy too. You are a fighter and I know that's where Chey gets from. He knows what you are going through. He's God of all comfort. Isaiah 41:10 So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand. God is looking down on Chey and you and your family and He knows your name. In Isaiah 43: 1&2, “Do not fear, for I have redeemed you; I have summoned you by name; you are mine. 2 When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. I know this when you are going through the moment it's hard to see comfort or any good in the matter, but, it's okay to hurt, it's okay to cry, it's okay to feel all the emotions, anger, confusion, etc. You and your family are loved, you are precious in God's eyes. In John 11:3b “Lord, the one you love (Cheyanne) is sick.”, although it's talking about Lazarus, it's also is for Cheyanne. God is taking care of your daughter, and God has you, your husband and her siblings in her life because He knew you all would be faithful to God to help Cheyanne through this matter. I wish I could the pain all away, but you are doing so good, so much better than I would. In His love, Tracy.

+ Read More
Russell
8 months ago
1
1

My family sends our prayers and we thank you for sharing your daughters story or bravery, courage and steadfast faith. Cheyanne’s impact on us and so many people will last forever.

+ Read More
Julie Lee Kimura
16 months ago
1
1

We've been praying for you guys every day, and of course will continue to do so. You're all so strong and loving. My daughter came home the other day with her hair in a braid and she looked just like Chey to me. Please Lord, bring peace, joy and good health to this family who have captured the hearts of so many strangers. Amen.

+ Read More
Sharon Lajer
16 months ago
1
1

Everyone who has been following Cheyenne's progress has heavy hearts as we read your update. May God bless your family, bring you even more strength, and give Cheyenne comfort, as we will continue to pray for a miracle of healing.

+ Read More
Julie Lee Kimura
16 months ago
1
1

Sending you all prayers! Cheyenne, that dog is the cutest thing. I'm glad Elsie got to stop by and brighten your day.

+ Read More
Julie Lee Kimura
17 months ago
1
1

What a great video! You're so beautiful, Cheyenne, and so loved. Keep your eye on the light at the end of the tunnel to get through tough times, and soon it will all be behind you. Sending prayers and love.

+ Read More
Daniela Djahandideh Reagan
17 months ago
1
1

Cheyenne, you are such a strong and beautiful person and you will beat this. Together with family and the millions of prayers you are getting anything is possible. ❤️

+ Read More
Julie Lee Kimura
19 months ago
1
1

I know this isn't the news you wanted, but I do have a lot of faith in you Cheyenne. Please know we're praying even harder for you and I hope you can feel our virtual hugs.

+ Read More
Sharon Lajer
19 months ago
1
1

Cheyenne, you are a beautiful soul who is loved so much by your family and friends. And many of us, who have never met you, have you in our prayers for healing.

+ Read More
James Kafieh
19 months ago
1
1

You are stronger than you think. We are with you, you are not alone. Best is yet to come

+ Read More
Tracy Charlene-Zito Bohte
19 months ago
1
1

Praying. God has a plan and so far He's gotten you all this far so I know He'll get you further. :)

+ Read More
Alisa Grant
26 months ago
1
1

Way to go Chey! You are almost finished with your treatments! We are so happy that you are doing well. You are in our thoughts and we pray that God gives you continued strength!

+ Read More
Sharon Lajer
26 months ago
1
1

Please tell her we are keeping her and all of you in our prayers. She IS a true warrior.

+ Read More
Julie Lee Kimura
27 months ago
1
1

I'm sorry the proton treatment is causing you problems, Cheyenne. I have faith in you that you will persevere if this is a "mind over matter" situation. Because you've already proven to have a very strong and determined mindset. I'll be praying for you.

+ Read More
Julie Lee Kimura
28 months ago
1
1

Please tell Cheyenne she's so inspiring with her awesome bravery!

+ Read More
Christy Underwood
31 months ago
1
1

Thank you for all the updates! We have been praying and are overjoyed that Cheyenne is doing so well and God is being glorified!!

+ Read More
Kevin Tonoian
31 months ago
1
1

Cheyenne's story and her strength moves me beyond words. I am so happy for this beautiful young lady and her extended family.

+ Read More
Jim Ventress
31 months ago
1
1

She is strong. What a beautiful soul. Continued prayers.

+ Read More
Sarah Caduff
31 months ago
1
1

Cheyenne, I am so incredibly proud of your strength. You show me what it's like to be brave. ❤️ Keep it up girlie. -Miss. Sarah and your GV friends

+ Read More

$21,050 of $30,000 goal

Raised by 358 people in 33 months
Created November 3, 2016
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$40
Anonymous
8 months ago
NA
$100
Natasha Adamski
8 months ago

❤️❤️❤️

CR
$50
Caitlin Reagan
8 months ago
SM
$500
Stella Macey
9 months ago

I love the Lord Jesus, and people. May His love and hope surround you all, today and always.

$50
Anonymous
9 months ago
$20
9 months ago
$50
Anonymous
13 months ago
HM
$100
Hugh McDonald
13 months ago

Lord, please help Cheyenne and her family through their trials.

HM
$100
Hugh McDonald
14 months ago
Andrea Reddemann
17 months ago
4
4

I’m just going to say a prayer that you may be feeling as a family right now, “Dear LORD , please give our precious Cheyenne a break!!! Lord we pray it’s your will to let this be a temporary sign of things to be cognizant of and thank you for the forewarning before Cheyenne’s procedures. But now, dear LORD, please let her have some positive outcomes, responses and feelings of HOPE! In JESUS name we pray this AMEN!”

+ Read More
Tracy Charlene-Zito Bohte
16 months ago
3
3

Dearest Amy, You are one of the strongest women I know. God has given you precious time with your daughter. I believe you have been a wonderful mother and friend to your daughter. Praise God for all the days you've had with your daughter and the days to come. I couldn't imagine all the emotion you are going through. I hurt for you. Right now, your daughter is here and she knows that you are going to be by her side, and her daddy too. You are a fighter and I know that's where Chey gets from. He knows what you are going through. He's God of all comfort. Isaiah 41:10 So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand. God is looking down on Chey and you and your family and He knows your name. In Isaiah 43: 1&2, “Do not fear, for I have redeemed you; I have summoned you by name; you are mine. 2 When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. I know this when you are going through the moment it's hard to see comfort or any good in the matter, but, it's okay to hurt, it's okay to cry, it's okay to feel all the emotions, anger, confusion, etc. You and your family are loved, you are precious in God's eyes. In John 11:3b “Lord, the one you love (Cheyanne) is sick.”, although it's talking about Lazarus, it's also is for Cheyanne. God is taking care of your daughter, and God has you, your husband and her siblings in her life because He knew you all would be faithful to God to help Cheyanne through this matter. I wish I could the pain all away, but you are doing so good, so much better than I would. In His love, Tracy.

+ Read More
Russell
8 months ago
1
1

My family sends our prayers and we thank you for sharing your daughters story or bravery, courage and steadfast faith. Cheyanne’s impact on us and so many people will last forever.

+ Read More
Julie Lee Kimura
16 months ago
1
1

We've been praying for you guys every day, and of course will continue to do so. You're all so strong and loving. My daughter came home the other day with her hair in a braid and she looked just like Chey to me. Please Lord, bring peace, joy and good health to this family who have captured the hearts of so many strangers. Amen.

+ Read More
Sharon Lajer
16 months ago
1
1

Everyone who has been following Cheyenne's progress has heavy hearts as we read your update. May God bless your family, bring you even more strength, and give Cheyenne comfort, as we will continue to pray for a miracle of healing.

+ Read More
Julie Lee Kimura
16 months ago
1
1

Sending you all prayers! Cheyenne, that dog is the cutest thing. I'm glad Elsie got to stop by and brighten your day.

+ Read More
Julie Lee Kimura
17 months ago
1
1

What a great video! You're so beautiful, Cheyenne, and so loved. Keep your eye on the light at the end of the tunnel to get through tough times, and soon it will all be behind you. Sending prayers and love.

+ Read More
Daniela Djahandideh Reagan
17 months ago
1
1

Cheyenne, you are such a strong and beautiful person and you will beat this. Together with family and the millions of prayers you are getting anything is possible. ❤️

+ Read More
Julie Lee Kimura
19 months ago
1
1

I know this isn't the news you wanted, but I do have a lot of faith in you Cheyenne. Please know we're praying even harder for you and I hope you can feel our virtual hugs.

+ Read More
Sharon Lajer
19 months ago
1
1

Cheyenne, you are a beautiful soul who is loved so much by your family and friends. And many of us, who have never met you, have you in our prayers for healing.

+ Read More
James Kafieh
19 months ago
1
1

You are stronger than you think. We are with you, you are not alone. Best is yet to come

+ Read More
Tracy Charlene-Zito Bohte
19 months ago
1
1

Praying. God has a plan and so far He's gotten you all this far so I know He'll get you further. :)

+ Read More
Alisa Grant
26 months ago
1
1

Way to go Chey! You are almost finished with your treatments! We are so happy that you are doing well. You are in our thoughts and we pray that God gives you continued strength!

+ Read More
Sharon Lajer
26 months ago
1
1

Please tell her we are keeping her and all of you in our prayers. She IS a true warrior.

+ Read More
Julie Lee Kimura
27 months ago
1
1

I'm sorry the proton treatment is causing you problems, Cheyenne. I have faith in you that you will persevere if this is a "mind over matter" situation. Because you've already proven to have a very strong and determined mindset. I'll be praying for you.

+ Read More
Julie Lee Kimura
28 months ago
1
1

Please tell Cheyenne she's so inspiring with her awesome bravery!

+ Read More
Christy Underwood
31 months ago
1
1

Thank you for all the updates! We have been praying and are overjoyed that Cheyenne is doing so well and God is being glorified!!

+ Read More
Kevin Tonoian
31 months ago
1
1

Cheyenne's story and her strength moves me beyond words. I am so happy for this beautiful young lady and her extended family.

+ Read More
Jim Ventress
31 months ago
1
1

She is strong. What a beautiful soul. Continued prayers.

+ Read More
Sarah Caduff
31 months ago
1
1

Cheyenne, I am so incredibly proud of your strength. You show me what it's like to be brave. ❤️ Keep it up girlie. -Miss. Sarah and your GV friends

+ Read More
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