Williams Syndrome Association

Please join the Xaverian Girls Lacrosse team in making a difference for Williams Syndrome. They are raising money to benefit research for Williams Syndrome, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to this community. Anthony is a 12 year old boy living with Williams syndrome. Williams Syndrome is a rare, multi organ disease caused by a micro deletion of chromosome #7. This deletion causes systemic vascular disease among other complications.

More information about Williams Syndrome Association: The Williams Syndrome Association is the most comprehensive resource for people and families living with Williams syndrome as well as doctors, researchers, and educators. The WSA provides resources, referrals, and a strong and supportive community. To learn more about the Anthony Filippazzo Grant for Williams Syndrome Research visit: www.wsresearch.org & check us out on instagram: @afresearchgrant

It is Williams Syndrome Awareness Month. I know a lot of people don't know what that is. Well, I explain it like this: it's a sister of Down's Syndrome. Instead of an extra chromosome, Williams Syndrome has a part of chromosome number 7 missing. It affects 1 in over 10,000 people.

Anyways, my first grandbaby has this syndrome and what I would like to give so much to the Williams Syndrome Foundation for camps, testing, or even just a family like ours to make it to appointments (a monthly visit and sometimes it's hours drive). I want to earn this, so I am going to walk a mile a day for all of May. I will track it somehow on Facebook or here daily.