The Lambert-Eaton LEMS Family Association

We advocate for patients, family and caregivers who have the extremely rare neuromuscular disorder, Lambert-Eaton Myasthenic Syndrome. We are developing and administering a LEMS Patient Registry of medical data to encourage research for better treatments and outcomes for LEMS patients. We are working to educate and inform the medial community, other interested parties, and our own group to better understand Lambert-Eaton, its challenges, and impact on quality of life for patients and family. We are advocating for LEMS patients in state and federal legislation.