Friends and fellow supporters,
In connection with the Running for Answers 5K & Fun Run on September 24th, we are raising money to benefit The Desmoid Tumor Research Foundation (DTRF) and any donation will help make an impact.
DTRF's Mission:
The Desmoid Tumor Research Foundation (DTRF) empowers and unites everyone committed to finding answers for the desmoid tumor community. They aggressively fund desmoid tumor research, accelerate the development of improved therapies, drive collaborations among clinicians and researchers worldwide, and support patients and doctors through education. Their goal is to find a cure for each and every patient diagnosed with this rare disease.
The Urgency:
With only 5-6 per million people diagnosed each year, desmoid tumors are exceedingly rare. Outside of large academic medical centers and sarcoma specialists, awareness of these invasive and destructive tumors is low. Funding to study rare diseases, like desmoid tumors, is scarce. Organizations like the DTRF are critical to advancing the science to help patients.
How Your Donation Makes a Difference:
We're committed to making a difference in the lives of those battling desmoid tumors, and we need your help. By contributing to this fundraiser, your donation will fund cutting-edge research projects aimed at understanding the causes and finding effective treatments for desmoid tumors. Every dollar counts and brings us one step closer to a cure.
Running for Answers 5K & Fun Run (September 24th on Philadelphia)
Running for Answers (RFA), founded by desmoid tumor patient Sera Snyder in 2009, is the annual DTRF signature fundraising event. The desmoid tumor patient community and supporters will come together to walk, run, and roll (wheelchairs are welcome!) as a unified force against desmoid tumors. If you're in the Philadelphia area on September 24th, I invite you to join our DTRF Fun Run team.
Details
- Sunday, Sept. 24, 2023
- Onsite registration opens at 7am
- Fairmount Park (Across from The Please Touch Museum)
- Philadelphia, Pennsylvania
No donation is too small, and every contribution is deeply appreciated. Your generosity has the power to change lives and make a lasting impact on desmoid tumor research. Please consider supporting our fundraiser and sharing it with your friends, family, and social networks.