
In honor of my Brother Michael❤️
More information about Shwachman-Diamond Syndrome Foundation: Shwachman Diamond Syndrome Foundation was founded in 1994 by Joan Mowery, a mother of a SDS patient. Shwachman-Diamond Syndrome Foundation is a national, not for profit, patient advocacy organization. Our goals are to advocate and fund research towards improved treatment and a cure. We provide educational services and emotional support to SDS families. We sponsor a bi-annual family conference which allows patients and their families the opportunity to hear and speak to members of our Medical/Scientific Med
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