Skip to content

National Initiative for Cockayne Syndrome

The National Initiative for Cockayne Syndrome (NICS) is dedicated to the improvement of quality of life for children and families ...Learn more

Donate now

A new way to support National Initiative for Cockayne Syndrome

Make an impact with a quick-start fundraiser tailored to your next occasion.

See all occasions

From the community

Fundraisers created by supporters like you

About National Initiative for Cockayne Syndrome

The National Initiative for Cockayne Syndrome (NICS) is dedicated to the improvement of quality of life for children and families affected by Cockayne Syndrome through medical education, early diagnosis, treatment, advocacy and the promotion of available resources. To provide accessible, evidence-based, online education for pediatricians to support recognition, diagnosis and treatment of the syndrome; particularly to develop on line protocols for emergency and hospital visits. To establish an online resource center for CS parents and caretakers to include therapeutic options, medications, latest research, quality of life issues, and healthcare providers. To establish an online virtual CS community, through which families and caretakers can seek out advice, ask questions and share their

3 Melissa TrailLong Valley, NJ 07853

Find National Initiative for Cockayne Syndrome at

Causes

Diseases and conditions

Established

2018

Tax ID

82-4234919

NTEE code

Specifically Named Diseases

National Initiative for Cockayne Syndrome is a 501(c)(3) public charity, EIN 82-4234919. Donations are tax-deductible. Selected content is provided by GuideStar.

Affiliated with National Initiative for Cockayne Syndrome?

Claim this page to track donations, access key insights, and get a verified badge

Claim page

Recent Donations