Indo US Organization for Rare Diseases

An online Carnatic performance raising awareness and funds to support education and research for rare diseases Our Mission Currently, there is a gap between the western and eastern hemispheres for diagnosing and treating rare diseases. Through the power of music, we hope to spread awareness and educate our community regarding the process for treating rare diseases, including Valosin Containing Protein disease, Multiple System Atrophy, Ehlers-Danlos syndromes, Rett Syndrome, Lysosomal Storage Disorder, Mitochondrial Enoyl CoA Reductase Protein-Associated Neurodegeneration, and Muscular dystrophy. Through our performance, we aim to inform the viewers about these rare diseases and help encourage the Indian diaspora around the world to become more involved in Clinical Trials, as, for many of them, it will be the closest they get to real treatment. Join us in raising money for IndoUSRare, as both of us strive to help build collaborative bridges between the United States and India. Thank you. To learn more about IndoUSrare visit indousrare.org Event Details   Date: Saturday, August 1, 2020   Time: 11:00am to 1:00pm Eastern time   Location: https://www.youtube.com/channel/UCjmHOjlpWXibmHHLIAzMUWQ/videos?view=2&flow=grid Event website: https://tinyurl.com/natyaswara2020   Description:  Abhishek Kulkarni, Joshua Alexander, Shreyas Wadwekar, Shakthi Ramasamy, and Archit Kumar will be performing Classical Carnatic music in an entertaining show of singing, instrumentals, and dancing