Epilepsy Foundation of Greater Los Angeles

Odette is raising money for the Epilepsy Foundation! Any little bit helps fund the incredible research happening to help manage and even cure Epilepsy. If you can’t contribute financially, spread the word about Epilepsy—awareness is the first step!

Facts About Odie:

Loves a tutu, doll, sparkly nail polish, or anything pink.

Excellent dance partner.

Doesn’t like fruit (I know.) but eats salmon like a tiny grizzly bear.

It is physically impossible to be in the same room as her without smiling. Go ahead, try it.

Facts About Epilepsy:

1 in 26 people have Epilepsy

Infantile Spasms (IS) is a form of epilepsy that affects babies typically under 12 months old (this is Odie!) The good news is two thirds of kids outgrow this diagnosis by their teens.

Only 1 in 2,000 children have Infantile Spasms and only about 30 people in the world have been diagnosed with Odie’s genetic mutation, TUBB2A.

Epilepsy is one of the most underfunded diseases given how many people have been diagnosed.

Thank you for any contribution you’ve made this year, financial or otherwise. It has been absolutely essential in Odie’s development and recovery. If you’ve read this far, you’re a fan of Odie and so we are a fan of you. Thank you to our incredible community. We love you.

If you want more information on IS, take a look at the videos below.

STOP

2 Minutes Can Save a Life

IS Awareness

Hi, I am Arden Gerics I would like to raise money for the Epilepsy Foundation of The Greater Los Angeles Area because I believe we need more research for Epilepsy. Having had dealt with Epilepsy for the past two years, it is shocking how little we know about the condition.

Epilepsy is heavily underfunded compared to other medical issues including other neruological conditions. There are many different medical issues that compete for funding but comparatively Epilepsy, with its conplexity and diverse causes and presentations, it is grossly underfunded. Research and therapies should be prioritized to create change. Epilepsy is a prevelent condition effecting over 3 million Americans. There is a need for better research, resources and therapies.

Please help if you can so we can make the changes we need to understand and help those that have Epilepsy.