Heather Johnson is fundraising
Dravet Syndrome Awareness for Luella
Luella had her first seizure at nine months old. She's had hundreds of seizures over the years... some lasting longer than an hour. Luella has tried many medications. She's been through a lot. Our family has been through a lot. We are grateful she is currently doing very well however, that can change in an instant. Luella, and so many like her, need a CURE!
The early days with Dravet...
Luella is growing up!!
Want to join us in making a difference? We are raising money to benefit the Dravet Syndrome Foundation in honor of Luella and any donation will help make an impact! Thanks in advance for your contribution to this cause that means so much to all of us.
Want to join us in making a difference? We are raising money to benefit the Dravet Syndrome Foundation in honor of Luella and any donation will help make an impact! Thanks in advance for your contribution to this cause that means so much to all of us.
More information about Dravet Syndrome Foundation: The Dravet Syndrome Foundation (DSF) is a volunteer-based non-profit organization dedicated to aggressively raising research funds for Dravet syndrome and related conditions, while providing support to affected individuals and families.
You can read more about Luella on her blog at http://littleluella.blogspot.com/
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