Cure Mucolipidosis

Almost 2 years ago our daughter Amelija was diagnosed with a disease probably half a world never knew about. We didn’t either until that very day when we heard: VERY RARE GENETIC DISEASE MUCOLIPIDOSIS. That’s when we started digging into internet and all this information popped out: excruciating bone and joint pain, ongoing surgeries, relentless complications with vital organs and many more, the worst of all was accepting that our little girl has this, seeing her going to sleep with pain and waking up with same pain again, feeling helpless, being told by doctors that there is no cure, no stopping it, just medicine which might ease the pain sometimes. Due to the disease Amelija is much smaller then kids her age, she can’t do all the things that she dreams of like doing gymnastics, playing football, even as simple as running around , being a simple normal 7 year old is not something that she can do, she still manages to smile through the day and find happiness in other things like reading, drawing, playing with play-doh or slime. She is our light, she taught us to never give up, and when we finally heard that there is a hope we couldn’t believe that. There is a hope to stop this disease from developing further, and we need your help, to fund this research to help kids like Amelija live life without pain. Any amount you are willing to donate is so greatly appreciated, it can be couple of pounds for you but for us it’s life changing, if you can’t contribute at this time, please share this with your family and friends it would mean the world to us.