VerifiedAssociation for Creatine Deficiencies, Inc.
The Association for Creatine Deficiencies (ACD) was established in 2012 by dedicated parents of children diagnosed with Cerebral C...Learn more
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About Association for Creatine Deficiencies, Inc.
The Association for Creatine Deficiencies (ACD) was established in 2012 by dedicated parents of children diagnosed with Cerebral Creatine Deficiency Syndromes (CCDS). This non-profit organization plays a pivotal role in the fight against CCDS, a group of three rare diseases often overlooked and misdiagnosed due to symptom overlap with other conditions. ACD's mission is threefold: to educate the public and medical community, to advocate for early intervention through newborn screening, and to fuel research for treatments and cures. ACD's commitment is to transform the CCDS diagnostic journey from a seven-year odyssey to a rapid seven-day route to effective treatments. In striving towards its future vision - a world where effective treatments and newborn screening for CCDS are the norm.
Find Association for Creatine Deficiencies, Inc. at
guidestar.org/profile/46-2133007Causes
Public health, Developmental disability services, Diseases and conditions, Genetic research, Family disability resources
Established
2013
Verified on GoFundMe
2023
Tax ID
46-2133007
NTEE code
Specifically Named Diseases
Association for Creatine Deficiencies, Inc. is a 501(c)(3) public charity, EIN 46-2133007. Donations are tax-deductible. Select content is provided by Candid.
Recent Donations
- Jack Thoms donated to Association for Creatine Deficiencies, Inc.$25
- Ellie Wallis donated to Association for Creatine Deficiencies, Inc.$20