Arthrogryposis Multiplex Congenita Support, Inc.

As we approach what would have been my son Cian’s 5th birthday, I wanted to honor and celebrate him. I’ve decided to raise awareness for the rare condition he had AMC, by running the Detroit Free Press Half Marathon again this year. Every step I take will carry his memory and the stories of countless others facing similar struggles. This journey is not just for me, but for my son, and for all the families fighting through the challenges of AMC.

On February 26th 2020, Mike and I said goodbye to our baby boy, Cian James Gandy, who had Arthrogryposis. There are many unknown factors and questions around this condition because it is very rare. I want to raise money to benefit Arthrogryposis Multiplex Congenita Support, Inc., for research and to help raise awareness. 

Any donation will help make a huge impact and help those families who are dealing with AMC. Thank you in advance for your contribution to this cause that means so much to me and my family.

More information about Arthrogryposis Multiplex Congenita Support, Inc.:

OUR MISSION: To provide and encourage more understanding and mutual support among anyone affected with the diagnosis of arthrogryposis multiplex congenita (AMC). To create a higher standard of AMC awareness by means of conferences, meetings, and studies.

OUR VISION: To provide educational material to new parents, or soon-to-be parents regarding the diagnosis of arthrogryposis multiplex congenita (AMC).