CLOUDCircles™ | #ChangeTheFight

$20,125 of $25,000 goal

Raised by 65 people in 12 months
CLOUD - Consortium for Local Ownership and Use of Data - is an open source software effort to rethink our broken information system, broken far beyond healthcare. To find new answers not in the complexity of current approaches but the simplicity of a new vision, a new path forward. 

One of our partners, a private family foundation dedicated to inflammatory breast cancer research (IBC) put it this way, "We see CLOUD as providing a unique opportunity to transform data within the IBC community for not only their benefit, but for the soon to follow benefit of all patients receiving treatment for some form of cancer. 

We are raising funds in preparation for upcoming prototypes at NCI-designated comprehensive cancer centers and to continue the momentum of our work, ahead of larger commitments from industry, foundations and other organizations, as well as prepare our filings for both 501(c)(3) and 501(c)(6) status with the IRS, since we will have a philanthropic arm and an open source software arm.

As I discussed at TEDxAustin in my first talk on CLOUD , the problem with privacy, security, identity and data on the Internet is in how we look at the problem. With respect to cancer, we need to allow connections betweens patients and oncologists, patients and clinical trials, and patients and researchers to unfold faster to create cures faster and link patients to those cures not only more quickly but more accurately. Together, we can #changethefight.

We have assembled a world-class team and global partners that we will announce over the next several months. Join us on the journey with your contribution. Thank you.
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In addition to my passion for CLOUD, my other joy is writing. It is both therapeutic, as well as something I love to do.

Just now, I published a new blog post titled, "Grief is Not a Phase | The Unexpected Journey." I think it is important to share a bit of myself and not just my work. As you read, you will understand my gratitude to all who have supported my many campaigns.

This line in particular will give you a glimpse into that gratitude, "Look around, someone might be falling. Today. Right now. And you are their clown. Today may be the day that your “star” is throwing away that tub of ice cream. You can be there for them. Clown paint and all. And, so, I close with a note of gratitude. To our many, many “clowns” as we, and I, have fallen. Thank you."

Grief Is Not a Phase | The Unexpected Journey
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In addition to my passion for CLOUD, my other joy is writing. It is both therapeutic, as well as something I love to do.

Earlier this week, I wrote again for the first time in a few months, and I wanted to share this part 3 of my Survivorship is Not a Phase series with each of you. I write not just because it allows me to process my own thoughts but because I know that regretfully too many others are on a similar path to mine.

Survivorship Is Not a Phase | Part III

Best wishes for your New Year celebrations and thank you for your support of #ChangeTheFight. Looking forward to 2018.
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$20,125 of $25,000 goal

Raised by 65 people in 12 months
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Martin Kohout
3 days ago
David J. Neff
6 days ago
Maureen Townsend
7 days ago
Cyrus Krohn
12 days ago
Glenn Dubin
13 days ago (Offline Donation)
Tom and Joan Wilkinson
15 days ago
Laurie and Jeff Poore
20 days ago
Gavin Villareal
26 days ago
Randy Cubriel
27 days ago (Offline Donation)
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