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CLOUDCircles™ | #ChangeTheFight

$28,550 of $55,000 goal

Raised by 91 people in 24 months
CLOUD - Consortium for Local Ownership and Use of Data - is an open source software effort to rethink our broken information system, broken far beyond healthcare. To find new answers not in the complexity of current approaches but the simplicity of a new vision, a new path forward. 

We've reset the campaign goal to $55K, $5K above the $50K level for an Engaging Level crowd-sourced CLOUDCircle™.  $1K for each of Maureen (my bride and inspiration) 55 years of life, a birthday she would have marked on April 28 but for her passing almost 5 years ago on 10.21.2014. Yesterday, 7.14.2019 marked what would have been Gary and Maureen's 29th wedding anniversary.
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Loriana Hernandez Aldama (blood cancer survivor, former Fox7 Austin anchor, and friend) puts it this way:

I meet so many cancer patients or caregivers and our fights often determine our mission and purpose.

For my friend Gary Thompson, losing his wife Maureen to cancer set him on a mission to help #ChangeTheFight for all cancer patients.

Gary asked — What if he could use technology to connect the data so that doctors can help us connect the dots?

Why? He got tired of carrying around medical records from so many different doctors. During Maureen’s battle Gary discovered a gap in the treatment process that made the journey more difficult. He was often carrying out medical records from 9 different treatment facilities and accessing data from various patient portals to share with one doctor what the other doctor found. The stress and frustration with the system fueled Gary to look for a better solution to lessen the stress and streamline the process for not just Maureen but for ALL patients.

He found his answer in an unexpected place. Rethinking the very roots of the Internet so that we are in control of our data, just like HTML allows us to build websites like Weather.com, Travelocity, or the various patient portals that made it all so complicated along Maureen's journey or any patient's journey.

With CLOUD - Consortium for Local Ownership and Use of Data - new language of CTML - context markup language - we can do away with carrying around DVDs of chest scans, copies of blood work, or the myriad of medical records and streamline this process for everyone.

It can lessen the stress and burden on YOU the patient and YOU the caregiver and also close gaps in medical treatment so fewer medical problems go undiagnosed or misdiagnosed.

But we need your help to make it happen…

Here’s where you can help fund this mission.. and Gary's video about his wife Maureen for whom CLOUD was founded. He tells her story and its connection in a truly moving way.

It is very powerful!

Please take a look... this help can go beyond cancer patients.

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Thanks Loriana... so glad we met at the record-setting Man and Woman of the Year Gala in Austin this June... your story of survivorship is powerful, and like Maureen, is the reason I do what I do and why CLOUD is so very important to bring to life!
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The fact that Easter Day fell on the 21st on #powdereddonutday touched me deeply. The Resurrection is all about love, God’s love for us. We celebrate that love in Seders. We celebrate it at Mass. Love is love. I suspect that Heaven on Earth is the day we all love, and darkness is replaced by light. We could have lived in darkness after Maureen Diercxsens Thompson passing, we chose light. We chose love. And, 48 months later, her light shines brightly because of the Resurrection. So does love. And, because of you, so does my work to #ChangeTheFight with cancer.

http://theloveofmylife.us/2015/04/the-love-of-my-life-heaven-was-pink-for-one-day/
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"I have tears in my eyes because I paused from my writing to read Chapter 8, Make It Last, in Nancy Brinker’s book, Promise Me. I received the book at Susan G. Komen’s Partner Summit in Dallas just a few weeks ago." - The Love of My Life | Tzedakah - Being Kind, November 18, 2018

I write to share a post I made this past Sunday at The Love of My Life. About Tzedakah. Being kind. I started writing at CaringBridge about 6 months before Maureen's passing, as her cancer metastasized. Got tougher. I chose to write about love, not cancer. Before she passed, Maureen told me to keep writing. I have, and she keeps giving me reasons 4 years later that remind me of our love for each other.

The same reasons I write are the reason I engage in my work to #ChangeTheFight with cancer. Why your support over the past year means so much. Why your Tzedakah has allowed CLOUD to reach the precipice of a significant philanthropic investment next month. To advance our work, born of my love for Maureen and all who fight cancer. Why I am thankful for each of you. Why being just $2000 away from the Supporting level of $25K is so cool. Why I know that this Circle will reach its next goal of $50K, the Enduring Level.

Thank you for being kind. Happy Thanksgiving!

http://theloveofmylife.us/2018/11/the-love-of-my-life-tzedakah-being-kind/
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In addition to my passion for CLOUD, my other joy is writing. It is both therapeutic, as well as something I love to do.

Just now, I published a new blog post titled, "Grief is Not a Phase | The Unexpected Journey." I think it is important to share a bit of myself and not just my work. As you read, you will understand my gratitude to all who have supported my many campaigns.

This line in particular will give you a glimpse into that gratitude, "Look around, someone might be falling. Today. Right now. And you are their clown. Today may be the day that your “star” is throwing away that tub of ice cream. You can be there for them. Clown paint and all. And, so, I close with a note of gratitude. To our many, many “clowns” as we, and I, have fallen. Thank you."

Grief Is Not a Phase | The Unexpected Journey
http://theloveofmylife.us/2018/05/grief-not-phase-unexpected-journey/
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In addition to my passion for CLOUD, my other joy is writing. It is both therapeutic, as well as something I love to do.

Earlier this week, I wrote again for the first time in a few months, and I wanted to share this part 3 of my Survivorship is Not a Phase series with each of you. I write not just because it allows me to process my own thoughts but because I know that regretfully too many others are on a similar path to mine.

Survivorship Is Not a Phase | Part III
http://theendoflinearity.com/survivorship-is-not-a-phase-part-3/

Best wishes for your New Year celebrations and thank you for your support of #ChangeTheFight. Looking forward to 2018.
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$28,550 of $55,000 goal

Raised by 91 people in 24 months
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