Casey has F-ing Cancer

$70,010 of $72,500 goal

Raised by 783 people in 14 months
At 40 yrs old to get handed a diagnosis of Pancreatic Cancer is the worst nightmare imaginable. Instantly your life has vanished, and the new puzzle of your existence beginnings. You are launched into a very dark scary isolated world. For us this happened to my husband a young man in his prime.
So on top of the pain and agony of the disease & super aggressive treatment that makes you terribly ill.... You can't work , you realize your insurance and short term disability are laughable, and half your meds and supplements are out of pocket. Cancer is truly the fastest way to emotional and physical bankruptcy. Unfortantaley our story is all to common.
We have be inundated with incredible friends & family that keep asking how they can help and wanting to "help" , as anyone who is sick or a caregiver can attest too, that question is unanswerable.... I need a miracle , I need a million dollars, I need more time.... But what you can do is provide any financial gift. As many know this type of cancer is super aggressive so we need to be just as aggressive on all fronts, we can't wait.
Funds will allow us to pay co-pays, try all forms of treatments that are out of pocket, get to and from out of state hospitals, pay the bills, & keep fighting hard and giving it everything we got. No one wants to ask for help but since many have, that's really what we need. Thank you for all the positive energy we do feel it and I will continue to update.

Xo- Casey, Michelle, Tutu & Betty
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Unfortunately, but without any surprise Casey’s chemo regimen has been stopped permanently, as scans show disease progression. Most chemo’s work for roughly 6 months. So as mentioned in previous posts we have now exhausted all chemotherapy options for pancreatic cancer.
Trial is all we have. IF, A BIG IF, we can find one that will accept him. ( stage iv pancreatic patients are about the most difficult to get accepted)
With that being said I will be exploring trials all over the entire country. Which means that if one agrees to interview him and or enter him into a trial I have to have the financial resources to very quickly book flights & accommodations for the entire treatment cycle. This is all the patients responsibility,
( insurance plays /pays no part).
I would love to be able to throw a fundraiser, ( I do believe in entertaining & giving back to folks that donate) , but unfortunately I do not have the luxury of time or resources, as I have been basically doing everything myself for the last 15 months. Help is needed immediately.
My full efforts have to be on securing a trial by any means possible ( the amount of paperwork is enormous and you have to do it all yourself, it’s a full time job), continuing my around the clock care of Casey, meal prep, medication prep, fighting with insurance/Cobra running a business & maintaining a home etc...
Am I emotionally drained, you bet, have I even considered once giving up NEVER, never even a thought. Even if we were turned down for every trial , I will take him for Mexico for alternative treatments (if I have the funds). I’m asking if you donated once , maybe a year ago, to consider another gift.. now would be the time. Any amount helps. I need to know no matter what happens we collectively did everything and anything to save my best friend. Thank you for your love and unwavering support. Michelle , Casey , Betty & Tutu.
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Thought it was time for an update. It’s hard coming to terms with how much Casey has lost, mostly physically, but certainly mentally as well. His walking & balance is very bad. Walking any distance (few city blocks) is like climbing a mountain. We have to take lots of breaks as he easily gets winded,(chemo kills lung function), his feet swell, his joints crack & ache, his muscle mass is depleted, and he’s exhausted almost even before we start. We tried swimming and that was pretty scary... this is a guy who surfs/snorkels/dives and now I’m carrying him around the shallow end. This is not the result of cancer itself, but his hard chemo regimen. Yes the chemo is probably the only reason he’s still here but at what cost? I really don’t think he can take much more chemo my guess would be another month.... but who knows...it’s just stealing any remaining quality of life he has and I’m very conflicted. When we were discussing a wheelchair for an up coming event you realize just how much damage and toxicity he has endured, ( most people are not on this aggressive of a chemo for 13 months nonstop nor can most people handle it, most are hospitalized multiple times, but not him!)
Yet he continues to push!! So I will continue to be there to catch him, pick him up or push him along, quite literally. We have a lot of very troubling things coming our way, losing his(our) healthcare in a few months, then we may lose his current treating hospital/Dr, not being on chemo or any treatment, no plan, looking for a trial and anticipating mostly all turn downs, potentially closing my business to be his full time caregiver, loss of my income etc.... lots of big frightening losses... but not the biggest loss, so in that I am temporarily grateful. Caseys continues to defy the odds. With his positive attitude and will to live, create, & pursue all the things he loves regardless of his pain.
Always with our deepest love & gratitude.
M & C
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It is one year to the date Caseys Dr called us on the phone in the very early am with results of his cat scan. Instead of telling us he had gallstones, he very bluntly said : “it’s pancreatic cancer it’s everywhere, it’s very very bad”. And in that moment still laying in bed in our pjs eyes barely opened we knew nothing could ever be the same.
I don’t know if I’ve ever really even smiled or laughed since.... But .... Casey is alive ... not because of great medical care, but because of his will and determination!
If you received a call from your doctor and in that moment they were estimating 3 to 6 months left of life and those months would be in excruciating pain because of the cancer and because of the treatments, you would lose your ability to feel your hands and feet he would lose 40% of your muscle mass, your vision would go, you would lose all the hair on your body, you’re brilliant brain would turn its back on you, you would need to sleep 12 hours every day, you need to take 100 pills a day and receive chemotherapy every week, you can never enjoy even one beer again you eat any of the food you once enjoyed, pain, vomit, illness & disease, with no light at the end, no great reward or payoff or finish line...how would you fair?
Casey is teaching us all an incredible lesson in strength & courage. I don’t think anyone, until you live it everyday truly understands when I say we fight everyday for his life! If I’m fighting drs , bills, medication cost, traffic, our own brains , we fight and will continue to do so.
Thank you all for the support over the last year, be it financial, edible, or just being a good consistent friend to Casey. I worst thing people can do is disappear from our lives.
I wish I could say we won’t need support anymore but that’s just simply not true the more we fight the more we still need all the support we can get.
We will also be walking this year at the Wilmington Riverfront for the Pancreatic Cancer Action Network under #TeamCasey it’s a 5K walk (or run) I’d love to have a local friends come it’s only $25 to register and we have a very realistic team goal of $1000 these monies go directly to PanCan (not to Casey). ( more info about walk on my FB)

Casey will be scanned again in 2 weeks. Always a terrible & unnerving experience . Results will determine if he continues on this last chemo option or chemo is stopped.
Please think about his strength and resilience and maybe how you can apply it in your own life. He’s my hero, & he should be yours too
xoxo Michelle & Casey
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http://www.philly.com/philly/news/philly-zine-fest-founder-maintains-successful-gofundme-page-for-his-cancer-and-it-still-isnt-enough-20180320.html?mobi=true

So happy to have The Philadelphia Inquirer/Philly.com
Share Casey’s Cancer/Music/Arts/Healthcare costs story... Please read and share & care xoxo
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Read a Previous Update
Casey Grabowski
12 months ago
6
6

Thanks everyone for your continued support!

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Jaimie Watts
14 months ago
3
3

I work for the American Cancer Society - I'm happy to help navigate support that you may need!

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David Grabowski
6 months ago
2
2

Keep up the good fight, Casey! Sending you all our love from the West Coast, cousin.

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Helen Marie Graves
14 months ago
2
2

Be sure to contact your local American Cancer Society. They have lots of programs to help support cancer survivors financially and emotionally!

+ Read More
Alexandra Gorczynski
9 months ago
1
1

Miss you both and sending love and positive thoughts! ♥ ♥ ♥

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Holly Hopkins
13 months ago
1
1

Sending all of the good vibes and juju your way! xoxoxo

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Vaughn Corbett
14 months ago
1
1

Love you man! Keep that chin up!

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Casey Grabowski
21 days ago

Thank you all once again. My outcome may not be certain, but your love and generosity is, and nothing can change that!!

+ Read More

$70,010 of $72,500 goal

Raised by 783 people in 14 months
Created May 9, 2017
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$10
Anonymous
1 day ago
$250
Anonymous
8 days ago
$40
Anonymous
9 days ago
JK
$100
John and Joanne Kochis
12 days ago

Our prayers and loving thoughts with you both always (Christi's Mom and Dad)

Casey Grabowski
12 months ago
6
6

Thanks everyone for your continued support!

+ Read More
Jaimie Watts
14 months ago
3
3

I work for the American Cancer Society - I'm happy to help navigate support that you may need!

+ Read More
David Grabowski
6 months ago
2
2

Keep up the good fight, Casey! Sending you all our love from the West Coast, cousin.

+ Read More
Helen Marie Graves
14 months ago
2
2

Be sure to contact your local American Cancer Society. They have lots of programs to help support cancer survivors financially and emotionally!

+ Read More
Alexandra Gorczynski
9 months ago
1
1

Miss you both and sending love and positive thoughts! ♥ ♥ ♥

+ Read More
Holly Hopkins
13 months ago
1
1

Sending all of the good vibes and juju your way! xoxoxo

+ Read More
Vaughn Corbett
14 months ago
1
1

Love you man! Keep that chin up!

+ Read More
Casey Grabowski
21 days ago

Thank you all once again. My outcome may not be certain, but your love and generosity is, and nothing can change that!!

+ Read More
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