Casey has F-ing Cancer
So on top of the pain and agony of the disease & super aggressive treatment that makes you terribly ill.... You can't work , you realize your insurance and short term disability are laughable, and half your meds and supplements are out of pocket. Cancer is truly the fastest way to emotional and physical bankruptcy. Unfortantaley our story is all to common.
We have be inundated with incredible friends & family that keep asking how they can help and wanting to "help" , as anyone who is sick or a caregiver can attest too, that question is unanswerable.... I need a miracle , I need a million dollars, I need more time.... But what you can do is provide any financial gift. As many know this type of cancer is super aggressive so we need to be just as aggressive on all fronts, we can't wait.
Funds will allow us to pay co-pays, try all forms of treatments that are out of pocket, get to and from out of state hospitals, pay the bills, & keep fighting hard and giving it everything we got. No one wants to ask for help but since many have, that's really what we need. Thank you for all the positive energy we do feel it and I will continue to update.
Xo- Casey, Michelle, Tutu & Betty
Now we rest.
Casey is of course in full liver failure. His bilirubin/liver function numbers are generally not even seen in a person who is not in coma (or alive). Liver failure is causing his ascites, edema, jaundice, and very confused mental state. We are still in the hospital... getting fluids drained, putting him on diuretics, meds to lower the ammonia levels in his blood (which adds to his mental confusion). But obviously nothing can stop or slow liver failure. They have told me multiple times he has days or week remaining before he will fall into a unresponsive state, followed quickly by death. The hospital will not discharge him until hospice & home care is fully in place as they say things will progress and get very scary, very quickly.
So hope to be home in another day or 2 after another week stay inpatient, knowing it will be our last time in a hospital.
Casey’s pain is currently managed, that is about the only thing that gives me slight comfort. Otherwise please know for me there is no comfort or relief that will come. If Casey was my parent I would and could easily be at peace with this. We know and as humans expect to experience the death of grandparents, parents, older loved ones.. not to diminish those loses, but we recover and can continue a life. But to me the loss of a beloved spouse or child, those losses we never recover from.
The day Caseys heart stops I fully anticipate mine will as well, even if it continues to beat it will have stopped.
Thank you for being witness.
Forever M & C
Still very much pushing & fighting! Alternative Drs still happening, road warrior life continues.
But not to end on a negative... the support from our friends family & strangers who are really never strangers if you walk this walk, is awe inspiring it’s literally a movement!!!! I could not provide the care & resources without you all... your messages, you food drops, your generosity, your open nonjudgmental ear, your understanding of pancreatic cancer it’s pain & it’s prognosis.
Thank you for keeping us both alive in 2018 xo M & C
Thank you for sharing our journey. M & C forever.
Dear Casey and Michelle, you are both an inspiration to me and my prayers will go on; it's hard for me to understand so many things, but the one thing that is clear is how much you two have shown everyone around you what true love looks like... God bless, love, uncle Bill