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Camilla Forever Foundation

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Camilla was a loving mum, wife, daughter, sister and friend who had bravely lived with Neurofibromatosis type 2 for many years.

Camilla didn't receive her diagnosis until early 2008 and she underwent an operation to have a brain tumour removed in May the same year. She recovered incredibly well and was considered something of a miracle and certainly as a very special lady by her neuro surgeon

In August 2009 she gave birth to her only son, Freddie and was an amazing Mum throughout her short life. She was a thoughtful and attentive Auntie too and despite her reduced mobility, was always organising days out for the kids and never let her illness get in the way of attending sports days, nativities and all the things those of more fortunate in terms of physical capability take for granted

She had several other benign tumours in her brain and on her spine which were monitored via MRI scans. The tumours effected her ability to speak, walk, see and hear with ever increasing severity. Never once did she moan about her illness.

Towards the end of 2017 and now dependent on hearing and mobility aids, she was told two of the tumours in her brain had grown and she would go blind if she did not have them removed. By now though, Camilla's weight had plumetted due to the fact her spinal tumours had made eating very difficult. This meant they were unable to operate.

She went into hosptial on her 37th birthday on the 5th January 2018 suffering with a terrible chest infection but was released despite being unable to walk. She then underwent rehabilitation at a different hospital but was again released 2 weeks later unable to walk.

Camilla was rushed into hospital with a severe chest infection on 2nd March 2018. We were told she would be unlikely to survive. However, survive she did for another 8 days and we were able to tell her how proud we were of her and how much we loved her. She was a remarkable, brave, kind and humorous soul who we were all privileged to have in our lives.

Camilla died of sepsis and pneumonia as a result of complications with her illness at the age of just 37 on 10th March 2018. 

She leaves a massive hole in all of our lives and is missed as much now as she always was and will be.

We aim to honour her spirit of bravery, humour and generosity by raising money for the neuro foundation into helping research NF2 and Guy's hospital who helped Camilla battle her illness with such dignity and bravery

Your support means that Camilla will live on even more fully in our hearts and minds and serve as a testament to a truly brave and wonderful young lady.

Please give whatever you can, no amount is too small and thanks for reading. 

Camilla Forever xx

Organizer

Lee Redfearn
Organizer

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