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Caelans journey to the stars

£3,395 of £5,000 goal

Raised by 92 people in 5 months
Hello everyone, welcome to Caelans journey to the stars, you can find us on face book if you haven't already...

ive just set this up as a lot of people want to help bring caelan home and give him the best possible life a child could wish for! 

Caelan is a three year old little boy who has spent 23 months in hospital. He has a progressive muscle weakness called infantile pompe disease. This means that Caelan can not sit up, walk or talk, he is fed through a peg in his stomach, he has very poor muscle tone in his arms and none at all in his legs!  This is a terminal illness and there is no cure. Caelan currently receives treatment for it, once a fortnight! This helps slow the disease down but doesn't stop it! Caelan is currently in intensive care recovering from a common cold, this cold attacked his lungs which resulted in Caelan needing a tracheostomy or he would have passed away. This is Caelans fourth procedure in just 12 months. Now that Caelan has a tracheotomy getting him home should be easier than before, he won't need as many intensive care trips. Which means we should be home in no time!! I am so greatful for all that follow our amazing journey, support off strangers gets me through some pretty tough days! Me and caelan spend most of our time alone at the hospital and rely on medical professionals to make our days abit brighter!! Caelan absolutely loves lights, music and electronics, so we have set up this page to give him the most magical bedroom he could ever wish for! This little boy smiles through every single ache, pains, rough days, Good days, any days! You can guarantee he will cheer you up when your feeling low. This is why I need to give him what he deserves! Thankyou everyone ⭐️

Follow our fb page for more updates, photos and videos! 

"Caelans journey to the stars"
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Hi everyone, it's been a few days since I updated with you all and shared this page, I've been super busy learning everything I needed to know about the tracheostomy and how to use the ventilator! Caelan has had a tough two days as he'd been poorly and needed extra oxygen to help maintain his own oxygen levels. It's been confirmed that he is now aneamic and is needing 5 iron infusions over the next five weeks. He had his first one today! I will update regular as possible! If you could share this post and or donate we would be truly greatful. Caelans poorly but he's still smiling so let's give him something he should smile for instead of smiling because he has no choice in the matter!!!
During iron infusion
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Caelans doing so so well! Today we've done a trache change, he's had a hour and half on his dry circuit, he's had his cuff emptied, his voice is coming back! I feel amazing We also went out for a walk again! And saw the fish downstairs Thankyou all for your donations, shares and support! It means the world to us x
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No longer on the intensive care unit, this one was bitter sweet.. we should not be returning to the unit for a long time now, the nurses were so upset to see Caelan go, he's the star of the show. Caelan doesn't mind being awake during his "coma" stages, and he put a smile on every one of the nurses faces! But we are out! We are on the ward and things are heading in the home direction! Thankyou so much for your continued shares and donations! You are changing a little boys life and restoring faith in his mothers broken heart!
"On the move from icu"
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Hey everyone, so the page has almost been up 48hours, £300 pound is such a big amount in this space of time, imagine what we can do in 12 weeks? Caelan should be home by then! We just want to thank everybody who's donated and who's shared it on, keep sharing, keep donating and let's get this little boy the bedroom he deserves!!!
Painting
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£3,395 of £5,000 goal

Raised by 92 people in 5 months
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19 days ago
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25 days ago
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