Caelans journey to the stars
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Hello everyone, welcome to Caelans journey to the stars, you can find us on face book if you haven't already...
ive just set this up as a lot of people want to help bring caelan home and give him the best possible life a child could wish for!
Caelan is a three year old little boy who has spent 23 months in hospital. He has a progressive muscle weakness called infantile pompe disease. This means that Caelan can not sit up, walk or talk, he is fed through a peg in his stomach, he has very poor muscle tone in his arms and none at all in his legs! This is a terminal illness and there is no cure. Caelan currently receives treatment for it, once a fortnight! This helps slow the disease down but doesn't stop it! Caelan is currently in intensive care recovering from a common cold, this cold attacked his lungs which resulted in Caelan needing a tracheostomy or he would have passed away. This is Caelans fourth procedure in just 12 months. Now that Caelan has a tracheotomy getting him home should be easier than before, he won't need as many intensive care trips. Which means we should be home in no time!! I am so greatful for all that follow our amazing journey, support off strangers gets me through some pretty tough days! Me and caelan spend most of our time alone at the hospital and rely on medical professionals to make our days abit brighter!! Caelan absolutely loves lights, music and electronics, so we have set up this page to give him the most magical bedroom he could ever wish for! This little boy smiles through every single ache, pains, rough days, Good days, any days! You can guarantee he will cheer you up when your feeling low. This is why I need to give him what he deserves! Thankyou everyone ⭐️
Follow our fb page for more updates, photos and videos!
"Caelans journey to the stars"
ive just set this up as a lot of people want to help bring caelan home and give him the best possible life a child could wish for!
Caelan is a three year old little boy who has spent 23 months in hospital. He has a progressive muscle weakness called infantile pompe disease. This means that Caelan can not sit up, walk or talk, he is fed through a peg in his stomach, he has very poor muscle tone in his arms and none at all in his legs! This is a terminal illness and there is no cure. Caelan currently receives treatment for it, once a fortnight! This helps slow the disease down but doesn't stop it! Caelan is currently in intensive care recovering from a common cold, this cold attacked his lungs which resulted in Caelan needing a tracheostomy or he would have passed away. This is Caelans fourth procedure in just 12 months. Now that Caelan has a tracheotomy getting him home should be easier than before, he won't need as many intensive care trips. Which means we should be home in no time!! I am so greatful for all that follow our amazing journey, support off strangers gets me through some pretty tough days! Me and caelan spend most of our time alone at the hospital and rely on medical professionals to make our days abit brighter!! Caelan absolutely loves lights, music and electronics, so we have set up this page to give him the most magical bedroom he could ever wish for! This little boy smiles through every single ache, pains, rough days, Good days, any days! You can guarantee he will cheer you up when your feeling low. This is why I need to give him what he deserves! Thankyou everyone ⭐️
Follow our fb page for more updates, photos and videos!
"Caelans journey to the stars"
Organizer
Toni Victoria
Organizer
England
