Bubby's Trust

$331,085 of $300k goal

Raised by 3,933 people in 3 months
Summer Southern Allmon  SEALY, TX

My name is Summer Allmon, and I am the Grantor and trustee of Robert "Bubby" Contreras's third-party, irrevocable, Supplemental Needs Trust (also known as a Special Needs Trust).  All proceeds raised through this site will be held in Bubby's Trust and will be used only for HIS direct benefit and needs, which are not covered by Supplemental Security Income (SSI) and Medicaid.  Examples would be modifications to make his home wheelchair accessible, a wheelchair accessible van, Anat Baniel Method (ABM) therapy, and other things that would contribute to his quality of life, but are not covered under any insurances or state/federal programs.

Now that you know how your generously donated funds will be administered, please take a moment to read this message from Bubby's mom, Shannon:

My name is Shannon, and I am the lucky momma of an amazing little boy named Robert, but we call him Bubby.  Bubby is 4 years old and a true blessing.  After nearly 16 years trying to concieve, Bubs came into our lives, and our hearts were forever changed. 

Shortly after he was born, we found out he had a seizure disorder.  At this time he was having 25-30 seizures a day.  These seizures were short, but many.  At about 6 months old, he had his first status epilepticus, a seizure exceeding 10 minutes. To date, his longest status was 5 hours long.  Each status he ends up in the PICU in an induced coma to shut his brain down to stop the seizure.  He requires a ventilator to breathe for him. I can't begin to explain the fear we have when seeing our baby boy like this...wondering if he will make it through this one.  At 2 years old, doctors made the decision to insert an implant called a Vagal Nerve Stimulator in hopes it would help control his seizures.  Along with this device he currently takes 6 anti-seizure medications.  Sadly, we still do not have seizure control; however, they have been able to get control of the status epilepticus. We have gotten some answers over the years.  Bubby has Intractible Epilepsy and Ataxic Cerebral Palsy. Bubby has encephalopathy, which basically means malfunction of the brain.  He has cortical dysplasia meaning congenital abnormality of brain development. There are many other terms, but they all mean the same...Bubby has malfunctions in his brain. Due to this, he has severe seizure disorder and has severe developmental delays.  He is unable to sit unassisted, unable to crawl, stand, walk, and is non-verbal.  Bubby needs 100% care for all his needs. 

I do, however, want to share what Bubby CAN do.  Bubs has this ability to draw people in with his adorable smile.  Bubby loves and it is felt by all who are near him. He will touch your face and look into your eyes and make you melt.  He loves to swim, and he loves to swing.  He loves riding his bike (special adapted bike, most amazing ever!).  Bubby loves music and fireworks.  He loves chocolate milk and peanut butter and jelly. 

We are trying to raise money for many reasons.  Our home is not currently handicap accessible, and as Bubby continues to grow, it is becoming increasingly unsafe.  We need a wheelchair ramp on our home.    We need help with medical equipment that isn't covered by insurance. It is also getting very difficult to safely lift him in and out of his special needs carseat so, we desperately need a vehicle that his wheelchair can roll right into. We need an adapted bed for him; a bed that allows us to get him in and out safely and has rails so, he is safe while in it.  Last, but certainly not least, we want to explore other therapies his insurance will not cover like ABM and hippotherapy. There's simply no way we could ever afford those, but after tons of research, we strongly feel they could greatly improve his quality of life.

Being able to do these things with the money raised will ensure safety for Bubs, while also allowing us to explore other medical options for him.  We don't know if he will ever be seizure-free, but, just like any other parents, we want him to have the best quality of life possible. This means everything to us!

It is very difficult asking for help.  I don't want people to see only what is wrong with Bubby, but everything that is right and beautiful, too. We don't want pity, only compassion. I hope you will help because you want to see Bubby thrive in this body he was given and not because you think life is hard for us. It is hard, but we recognize everyone is fighting battles.  Bubby needs this help because he is extraordinary and, therefore, requires extraordinary methods to help him.  He doesn't fall in the typical boxes so, what insurance covers isn't necessarily what works for him. 

Bubby has changed our lives in an unimaginable way. Unconditional love.  Love that words cannot come close to describing. Love for and by him, but also the love he has brought into our lives. 

Thank you so much!!!  Love from our family to yours!
Robert, Shannon and Bubby

 
Please help us by sharing this campaign on your social media pages. Thank you!

Follow us on Facebook - page name 'A Buddy for Bubby'

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Update 14
Posted by Summer Southern Allmon
1 month ago
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Watch out, world! Bubby has gotten his mobility seat installed in his brand new van so, nothing can stop him now! He is going places! This is such a HUGE relief for Rob & Shannon since they now can do a quick and easy transfer from his wheelchair or stroller straight into the van seat on ground level, which is much safer for Bubby and easier on their backs. Shout out to Adaptive Driving Access, Inc. for doing the install; since the Pacifica van is new, Bubby's van was the first of its kind they got to do. The cool thing about this is that the company was able to use the original van seat. Thank you all for making this possible! You can watch how it works and see him take a ride here: https://www.facebook.com/abuddyforbubby/videos/1827797707471194/

In other news, thanks to all you guys, Bubby starts his ABM therapy this weekend! We are all so very excited for this opportunity and hope that it is the first step to getting our boy on his feet & bearing some weight! That is our biggest goal and we would appreciate prayers specifically for that because it is going to be a huge challenge for all involved, but we know that it is completely within the realm of possible. #operationbubbystands Hope you all have wonderful weekends! Love and light to everyone!

Bubby-approved Mobility Seat!
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Update 13
Posted by Summer Southern Allmon
1 month ago
   Share
1
1
Bubby fans, today marks 3 years since I Run for Michael matched Bubby & me on Facebook. A lot has happened in those 3 short years. I've run hundreds of miles & lifted thousands of pounds while thinking about him and praying for him & his family, as that is the premise of IR4. I've thought hard about the fortuitous pairing that I am beyond positive was made directly by the Lord, and what I'm supposed to do to help this family. I have tried my best to execute His plans, and He just keeps opening doors by opening the hearts of others to Bubby's story, & it's been an experience that has fundamentally changed who I am, I believe. I cannot un-know what I do about the struggles SN families go through, and I cannot ever, ever, ever look at those families with pity again. Something Shannon & Rob have thoroughly versed me on is that, while there are certainly heartbreaks that come with having a medically fragile child, these families don't want pity. They want compassion, support, love, and acceptance. Because the love outweighs the heartbreaks, hands down, every time.

Tomorrow, Bubby & I were supposed to cross the finish line of our favorite race, the Katy Half Marathon, for the 3rd time, but that is not to be due to the race being moved for the Super Bowl; I already had plane tickets so, I am posting this update from Bubby's living room! When I got here, Shannon showed me this video she found on YouTube ( https://youtu.be/pPqFK97ecGE)...how sweet & cool is that?! Wish I knew who took it! :)

To top it all off, we got our class date to pick up our pup today! Hope you all have as good of a day as we have (if that's even possible)!
First of many photos from the trip!
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Update 12
Posted by Summer Southern Allmon
1 month ago
   Share
Hope deferred makes the heart sick, but when dreams come true, there is life and joy. Proverbs 13: 12

January 26, 2017. Today is special. Today marks the 5th anniversary of Bubby's official adoption day; the day that Shannon's and Rob's almost-20-year-old dream finally came all the way true! Five years ago today, two proud, new parents were busy making it officially official; he was THEIRS! They had loved him for almost a year by that time so, I bet it felt a little surreal to walk out of that courtroom knowing that their dream couldn't be undone no matter what! January 26, 2012 is also the day they found out Bubs has epilepsy. It was the beginning of a wild, chaotic, roller coaster ride through a plethora of seizures, doctors, hospital stays, co-pays, ambulance rides, tears, fear, disappointments, pokes, uncountable doses of uncountable medicines, specialists, batteries of tests, and "the system." And, yet, Bubby is still here. He is still here after being fully assaulted by those things since he was a few days old. He is a fighter, no doubt, but he also hit the parent lottery because Rob & Shannon have been in his corner fighting with and for him since day one. They have become medical experts that fluently speak doctor, which is equally impressive and intimidating, when talking to them about Bubby's multiple diagnoses. They tirelessly call insurance companies, medical equipment companies, pharmacies, doctors' offices, and therapists, and when those people don't return their calls or don't provide the correct form for the 20th time, Shannon calls back. It's maddening. Many others would have long succumbed to the craziness and gone insane themselves. And, yet, Shannon & Rob are still here. They are still fighting for their son for things such as basic necessities (diapers) to expensive medical equipment (bed). And for his rights to access any medicines that can help him. They fight for his quality of life and his happiness. His safety and comfort. This family of fighters was formed by God long before January 26, 2012, but they have been tested to the limits since that day and have come out with a stronger love than they knew possible. I hope you will all join me in wishing the Contreras family a very happy Official Gotcha Day today!
OFFICIAL!!
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Update 11
Posted by Summer Southern Allmon
2 months ago
   Share
1
1
"Gifts aren't to be paid back, they're to be paid forward." Cedric Crawford

We are now seeing some second order effects from this campaign and it's pretty exciting! I'm sure everyone recalls that when the interview was taped and when it aired, the Contreras' family van was in dire need of some extensive repairs, which were beyond Rob's YouTubin' abilities. Thanks to so many of you reaching out with donations, we have been able to replace Bubby's van with a brand spankin' new one, but it gets better! Shannon and Rob were able to locate another local, special needs family and donate their van to them! I was so blown away by their desire to help someone else; I had only been thinking about trading the van in on the new one or possibly selling it to get a little cash out of it, but Shannon and Rob were a step ahead and came up with this awesome idea! The recipient family has two kids and this van will hopefully get repaired and have some useful life left to transport its new family around. Just wanted to share that little bright spot with everyone still following along out there. It goes to show that when people team up, many $5 donations can and do move big mountains! There were many people that gave hundreds, and some even thousands, of dollars, but far more gave in the $5 - $50 range and it has now provided transportation for not one, but two families! I think that's pretty amazing and a great reminder for us all to look for ways to pay it forward. Even when you don't have a lot to offer, everyone has something to offer and it can change people's lives more than you may ever know or realize. Love and light to everyone!
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Read a Previous Update
Raylene Bement-Salazar
3 months ago

I love the American people! When called to action look what happens! I hope this money helps relieve the burden so they can just enjoy their angel.

+ Read More
Eric Mehler
3 months ago

You should try medical marijuana. https://www.scientificamerican.com/article/can-cannabis-treat-epileptic-seizures/

+ Read More
Lorraine Chase
3 months ago

Saw this story on the news today. Amazing parents of a special needs child. God made a great choice in selecting them for Bubby. Their love and sacrifice for him speaks volumes! When you can count your blessings each day even under difficult circumstances you are truly blessed! Merry Christmas!!

+ Read More
Michael Dean
3 months ago

I was only the 6th? person (-$500) to donate in the middle of the Fox News segment, I checked back about 45 minutes later to see the balance ($147,000) and I'm THRILLED my fellow Americans have huge hearts and given to this wonderful family! Cheers and Merry Christmas to all off you!

+ Read More
Tyler Bartram
3 months ago

Fox news viewers have good hearts

+ Read More
Donna Lifland
3 months ago

I wonder if this family is aware of "Charlotte's Web". This is a strain of marijuana (high in CBD and low in THC) thought to treat debilitating seizure disorders. Joel Stanley and his 4 brothers manufacture this strain of medical marijuana derived drug in Colorado Springs, Colorado. Please read the article on the CBS 'website of 2/18/2014 "Charlotte's Web"............ Just saw your story on FOX news. You are remarkable parents!!

+ Read More
Suzanne BeBe Bledsoe
3 months ago

Saw this on FOX this morning. God Bless you both and that precious little boy, Bubby! God knows Bubby's needs and will provide through the caring and generosity of others. Love to you all and MERRY CHRISTMAS!

+ Read More
Donna Weber
3 months ago

Fox News take a bow! Your station did a wonderful story for this young boy and his family! My hat's off to you! I hope the total keeps getting higher and higher.

+ Read More
Vince Fiato
3 months ago

I was so touched while watching your segment on Fox News. May all of our contributions show you that love and human compassion is alive and well. You are a beautiful family, touched by God.

+ Read More
Melly Mel
3 months ago
8
8

My husband and I saw the segment of your story on FOX News. It truly brought tears to our eyes. Bubby is one lucky child to have wonderful parents who are amazing and loving. We prayed for you and my God Bless all of you. Praying that Bubby gets his illness controlled and hope he will love his new chair and new Van for his daily transport. Many Blessings.

+ Read More
John Welker
3 months ago
8
8

So glad to see what a news organization can do positively to help make a difference> So glad that these wonderful people can be helped by their peers as well as our government medical systems. Wonderful story and so uplifting!! Love You Bubby!!!

+ Read More
Alyssa Danielson Holland
3 months ago
8
8

I totally agree with the CBD comments. Please look up my friend "Amber Wann" here on fb. Her son Benjamin just reached the 1 year mark of being seizure free after using Charlottes Webb. It is CBD but DOES NOT get you high. Please like her fb page and talk to her. She is is a HUGH advocate for this. I will forward this on to her as well. My thoughts and prayers are with your boy and your family.

+ Read More
Gina Orendorff Grabowski
3 months ago
6
6

God Bless and I hope for the best for Bubby. Living today has given us medical miracles that we did not have even 5 years ago. Bubby will be remembered by everyone who has seen this story on Happening Now. Maybe with this publicity a well known neurologist can help with performing a miracle for you and Bubby.

+ Read More
Dawn Lancaster
3 months ago
6
6

Here is the professional reference for your physician... https://www.ncbi.nlm.nih.gov/pubmed/26800377

+ Read More
Joselyne Escalante Gi
3 months ago
5
5

This is Amazing yesterday morning I made my donation and the balance was usd300 now it's almost $250k !! this the power of Lord Jesus the King of King ! God bless everyone !!

+ Read More
Mary Erickson Vigliotti
3 months ago
5
5

We saw your story on FOX early this am and contributed . God Bless you both and your adorable son. Isn't it glorious to watch the kindness of others ?! Thank you FOX for sharing the story ..........

+ Read More
Sheila Zea Greaver
3 months ago
5
5

I watched your segment on FOX News this morning and my husband and I were all too happy to help gift your gofundme account for Bubby. I work for a Christian based non-profit in Spring, TX called "Panther Creek Inspiration Ranch". As an equine therapeutic riding center, we work with children and young adults with unique challenges. We offer scholarships to families that face adversity and will never turn away a family due to their inability to pay. Please consider visiting our website and/or Facebook page to see if it would be convenient for your family.

+ Read More
Donald Kidd
3 months ago
5
5

Just look what that "horrible Fox news Channel" has done......lol.......where us deplorables get our news.

+ Read More
Howard Stapleton
3 months ago
5
5

So many of the people in the US have great, generous hearts of compassion and empathy. This is *not* virtue signaling... in contrast it is genuine care and concern demonstrated by action to help and assist another person as a matter of ethic and moral conscience. Bless all you who put 'shoe leather' behind your thoughts, concerns, and wishes for others - whether it's prayers, financial help, or some other form of assistance. *Bypass the bureaucracy - Bless others directly*

+ Read More
Pat Schroeder
3 months ago
4
4

My grandson is an amazing little boy. In spite of his problems, or maybe because of them,, he lives the most loving wonderful life. Thank you to all that have taken part in this effort to ensure his future. May God bless each of you.

+ Read More

$331,085 of $300k goal

Raised by 3,933 people in 3 months
Created December 20, 2016
Summer Southern Allmon  
ME
$100
Marj E.
17 days ago
$250
Anonymous
21 days ago
$100
Lori Hall
22 days ago
RP
$20
Richard Petry
26 days ago
CM
$50
Cheryl McMurtry
1 month ago
1
1

You are an inspiration to us all to be patient,kind,and selfless. God bless

TT
$50
Tom Taylor
1 month ago
1
1
BC
$50
Brenda Coseo
1 month ago
1
1
MB
$20
Marcia Beyl
1 month ago
$100
Anonymous
1 month ago
1
1
$50
Anonymous
1 month ago
1
1
Raylene Bement-Salazar
3 months ago

I love the American people! When called to action look what happens! I hope this money helps relieve the burden so they can just enjoy their angel.

+ Read More
Eric Mehler
3 months ago

You should try medical marijuana. https://www.scientificamerican.com/article/can-cannabis-treat-epileptic-seizures/

+ Read More
Lorraine Chase
3 months ago

Saw this story on the news today. Amazing parents of a special needs child. God made a great choice in selecting them for Bubby. Their love and sacrifice for him speaks volumes! When you can count your blessings each day even under difficult circumstances you are truly blessed! Merry Christmas!!

+ Read More
Michael Dean
3 months ago

I was only the 6th? person (-$500) to donate in the middle of the Fox News segment, I checked back about 45 minutes later to see the balance ($147,000) and I'm THRILLED my fellow Americans have huge hearts and given to this wonderful family! Cheers and Merry Christmas to all off you!

+ Read More
Tyler Bartram
3 months ago

Fox news viewers have good hearts

+ Read More
Donna Lifland
3 months ago

I wonder if this family is aware of "Charlotte's Web". This is a strain of marijuana (high in CBD and low in THC) thought to treat debilitating seizure disorders. Joel Stanley and his 4 brothers manufacture this strain of medical marijuana derived drug in Colorado Springs, Colorado. Please read the article on the CBS 'website of 2/18/2014 "Charlotte's Web"............ Just saw your story on FOX news. You are remarkable parents!!

+ Read More
Suzanne BeBe Bledsoe
3 months ago

Saw this on FOX this morning. God Bless you both and that precious little boy, Bubby! God knows Bubby's needs and will provide through the caring and generosity of others. Love to you all and MERRY CHRISTMAS!

+ Read More
Donna Weber
3 months ago

Fox News take a bow! Your station did a wonderful story for this young boy and his family! My hat's off to you! I hope the total keeps getting higher and higher.

+ Read More
Vince Fiato
3 months ago

I was so touched while watching your segment on Fox News. May all of our contributions show you that love and human compassion is alive and well. You are a beautiful family, touched by God.

+ Read More
Melly Mel
3 months ago
8
8

My husband and I saw the segment of your story on FOX News. It truly brought tears to our eyes. Bubby is one lucky child to have wonderful parents who are amazing and loving. We prayed for you and my God Bless all of you. Praying that Bubby gets his illness controlled and hope he will love his new chair and new Van for his daily transport. Many Blessings.

+ Read More
John Welker
3 months ago
8
8

So glad to see what a news organization can do positively to help make a difference> So glad that these wonderful people can be helped by their peers as well as our government medical systems. Wonderful story and so uplifting!! Love You Bubby!!!

+ Read More
Alyssa Danielson Holland
3 months ago
8
8

I totally agree with the CBD comments. Please look up my friend "Amber Wann" here on fb. Her son Benjamin just reached the 1 year mark of being seizure free after using Charlottes Webb. It is CBD but DOES NOT get you high. Please like her fb page and talk to her. She is is a HUGH advocate for this. I will forward this on to her as well. My thoughts and prayers are with your boy and your family.

+ Read More
Gina Orendorff Grabowski
3 months ago
6
6

God Bless and I hope for the best for Bubby. Living today has given us medical miracles that we did not have even 5 years ago. Bubby will be remembered by everyone who has seen this story on Happening Now. Maybe with this publicity a well known neurologist can help with performing a miracle for you and Bubby.

+ Read More
Dawn Lancaster
3 months ago
6
6

Here is the professional reference for your physician... https://www.ncbi.nlm.nih.gov/pubmed/26800377

+ Read More
Joselyne Escalante Gi
3 months ago
5
5

This is Amazing yesterday morning I made my donation and the balance was usd300 now it's almost $250k !! this the power of Lord Jesus the King of King ! God bless everyone !!

+ Read More
Mary Erickson Vigliotti
3 months ago
5
5

We saw your story on FOX early this am and contributed . God Bless you both and your adorable son. Isn't it glorious to watch the kindness of others ?! Thank you FOX for sharing the story ..........

+ Read More
Sheila Zea Greaver
3 months ago
5
5

I watched your segment on FOX News this morning and my husband and I were all too happy to help gift your gofundme account for Bubby. I work for a Christian based non-profit in Spring, TX called "Panther Creek Inspiration Ranch". As an equine therapeutic riding center, we work with children and young adults with unique challenges. We offer scholarships to families that face adversity and will never turn away a family due to their inability to pay. Please consider visiting our website and/or Facebook page to see if it would be convenient for your family.

+ Read More
Donald Kidd
3 months ago
5
5

Just look what that "horrible Fox news Channel" has done......lol.......where us deplorables get our news.

+ Read More
Howard Stapleton
3 months ago
5
5

So many of the people in the US have great, generous hearts of compassion and empathy. This is *not* virtue signaling... in contrast it is genuine care and concern demonstrated by action to help and assist another person as a matter of ethic and moral conscience. Bless all you who put 'shoe leather' behind your thoughts, concerns, and wishes for others - whether it's prayers, financial help, or some other form of assistance. *Bypass the bureaucracy - Bless others directly*

+ Read More
Pat Schroeder
3 months ago
4
4

My grandson is an amazing little boy. In spite of his problems, or maybe because of them,, he lives the most loving wonderful life. Thank you to all that have taken part in this effort to ensure his future. May God bless each of you.

+ Read More
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