Bubby's Trust

$330,045 of $300k goal

Raised by 3,919 people in 1 month
Summer Southern Allmon  SEALY, TX

My name is Summer Allmon, and I am the Grantor and trustee of Robert "Bubby" Contreras's third-party, irrevocable, Supplemental Needs Trust (also known as a Special Needs Trust).  All proceeds raised through this site will be held in Bubby's Trust and will be used only for HIS direct benefit and needs, which are not covered by Supplemental Security Income (SSI) and Medicaid.  Examples would be modifications to make his home wheelchair accessible, a wheelchair accessible van, Anat Baniel Method (ABM) therapy, and other things that would contribute to his quality of life, but are not covered under any insurances or state/federal programs.

Now that you know how your generously donated funds will be administered, please take a moment to read this message from Bubby's mom, Shannon:

My name is Shannon, and I am the lucky momma of an amazing little boy named Robert, but we call him Bubby.  Bubby is 4 years old and a true blessing.  After nearly 16 years trying to concieve, Bubs came into our lives, and our hearts were forever changed. 

Shortly after he was born, we found out he had a seizure disorder.  At this time he was having 25-30 seizures a day.  These seizures were short, but many.  At about 6 months old, he had his first status epilepticus, a seizure exceeding 10 minutes. To date, his longest status was 5 hours long.  Each status he ends up in the PICU in an induced coma to shut his brain down to stop the seizure.  He requires a ventilator to breathe for him. I can't begin to explain the fear we have when seeing our baby boy like this...wondering if he will make it through this one.  At 2 years old, doctors made the decision to insert an implant called a Vagal Nerve Stimulator in hopes it would help control his seizures.  Along with this device he currently takes 6 anti-seizure medications.  Sadly, we still do not have seizure control; however, they have been able to get control of the status epilepticus. We have gotten some answers over the years.  Bubby has Intractible Epilepsy and Ataxic Cerebral Palsy. Bubby has encephalopathy, which basically means malfunction of the brain.  He has cortical dysplasia meaning congenital abnormality of brain development. There are many other terms, but they all mean the same...Bubby has malfunctions in his brain. Due to this, he has severe seizure disorder and has severe developmental delays.  He is unable to sit unassisted, unable to crawl, stand, walk, and is non-verbal.  Bubby needs 100% care for all his needs. 

I do, however, want to share what Bubby CAN do.  Bubs has this ability to draw people in with his adorable smile.  Bubby loves and it is felt by all who are near him. He will touch your face and look into your eyes and make you melt.  He loves to swim, and he loves to swing.  He loves riding his bike (special adapted bike, most amazing ever!).  Bubby loves music and fireworks.  He loves chocolate milk and peanut butter and jelly. 

We are trying to raise money for many reasons.  Our home is not currently handicap accessible, and as Bubby continues to grow, it is becoming increasingly unsafe.  We need a wheelchair ramp on our home.    We need help with medical equipment that isn't covered by insurance. It is also getting very difficult to safely lift him in and out of his special needs carseat so, we desperately need a vehicle that his wheelchair can roll right into. We need an adapted bed for him; a bed that allows us to get him in and out safely and has rails so, he is safe while in it.  Last, but certainly not least, we want to explore other therapies his insurance will not cover like ABM and hippotherapy. There's simply no way we could ever afford those, but after tons of research, we strongly feel they could greatly improve his quality of life.

Being able to do these things with the money raised will ensure safety for Bubs, while also allowing us to explore other medical options for him.  We don't know if he will ever be seizure-free, but, just like any other parents, we want him to have the best quality of life possible. This means everything to us!

It is very difficult asking for help.  I don't want people to see only what is wrong with Bubby, but everything that is right and beautiful, too. We don't want pity, only compassion. I hope you will help because you want to see Bubby thrive in this body he was given and not because you think life is hard for us. It is hard, but we recognize everyone is fighting battles.  Bubby needs this help because he is extraordinary and, therefore, requires extraordinary methods to help him.  He doesn't fall in the typical boxes so, what insurance covers isn't necessarily what works for him. 

Bubby has changed our lives in an unimaginable way. Unconditional love.  Love that words cannot come close to describing. Love for and by him, but also the love he has brought into our lives. 

Thank you so much!!!  Love from our family to yours!
Robert, Shannon and Bubby

 
Please help us by sharing this campaign on your social media pages. Thank you!

Follow us on Facebook - page name 'A Buddy for Bubby'

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Help spread the word!
 3.1K shares on Facebook
Update 11
Posted by Summer Southern Allmon
3 days ago
"Gifts aren't to be paid back, they're to be paid forward." Cedric Crawford

We are now seeing some second order effects from this campaign and it's pretty exciting! I'm sure everyone recalls that when the interview was taped and when it aired, the Contreras' family van was in dire need of some extensive repairs, which were beyond Rob's YouTubin' abilities. Thanks to so many of you reaching out with donations, we have been able to replace Bubby's van with a brand spankin' new one, but it gets better! Shannon and Rob were able to locate another local, special needs family and donate their van to them! I was so blown away by their desire to help someone else; I had only been thinking about trading the van in on the new one or possibly selling it to get a little cash out of it, but Shannon and Rob were a step ahead and came up with this awesome idea! The recipient family has two kids and this van will hopefully get repaired and have some useful life left to transport its new family around. Just wanted to share that little bright spot with everyone still following along out there. It goes to show that when people team up, many $5 donations can and do move big mountains! There were many people that gave hundreds, and some even thousands, of dollars, but far more gave in the $5 - $50 range and it has now provided transportation for not one, but two families! I think that's pretty amazing and a great reminder for us all to look for ways to pay it forward. Even when you don't have a lot to offer, everyone has something to offer and it can change people's lives more than you may ever know or realize. Love and light to everyone!
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Update 10
Posted by Summer Southern Allmon
10 days ago
We like to keep things positive around here, but today I'd like to share a struggle Shannon and Rob are having in order to bring to light some issues folks out there may or may not know regarding the constant battle many special needs families face when dealing with insurance companies. Bubs requires diapers and you guys all saw him on TV so, you know we're not talking the regular, baby-sized diapers that you can run down to Wal-Mart and grab. Once he was past the age to where he "should" be potty-trained, insurance began covering his diapers, which was a major help financially. For over a month now, Shannon has been fighting with the insurance company to get him a larger size. The size they currently send cut into his legs and are just too small. You'd think that would be a simple phone call, right? I mean kids grow; it's what they do! Any reasonable person/company could infer that after awhile a child would need a larger size, but it's not that easy. In order for Shannon to get the insurance company to send her the appropriate size, it is basically starting the claim over again. All new paperwork, all new battle. A month ago, the insurance company told her they would send pull-up style versus traditional style samples so, Shannon could choose which worked best for them while they were working on processing the claim. They sent smaller diapers than what he has now. SMALLER. So, now, they are running out of diapers and still not making much headway with the insurance company. Paperwork from his doctor still has to be filled out and processed. It's a shame. It's inefficient and it just doesn't pass the common sense test...much like the post about the vitamins I put up. Obviously, diapers are something that the trust could pay for, but it shouldn't have to! They already pay astronomical premiums for insurance and it should cover a new size of diaper without putting the family through hell to get them! I say all of this to say, until I met Bubby, I didn't know the DAILY struggles these families face. The red tape is insane and it's like the insurance companies just mess with people to hope that they'll just give up and buy the products themselves, which I suspect happens far more than it should for these families. It makes me angry; I hope it makes you angry, and I also hope that your eyes are starting to open for what SN families face. Ok, rant over. :)

I would like to take this opportunity to share Bubby's Amazon list. This list has items that are for Bubs only and several that are for his incoming service animal that we posted about yesterday. So many people reached out through this campaign asking about things besides monetary donations so, here it is in case you ever feel compelled to support in this way:

https://www.amazon.com/gp/registry/wishlist/3AMZIJ0H9VQBW/ref=cm_wl_rlist_go_v?

Love and light to everyone! Hope you all have a wonderful day and no one has to deal with an insurance company because this photo is how they make us feel! ;)
Seriously?!?!?
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Update 9
Posted by Summer Southern Allmon
11 days ago
Hello, everyone! Over the last few weeks more donations were mailed in straight to the bank so, I input those this morning to the tune of $4,778! We continue to be amazed and ever so grateful for everyone that has donated, shared, and prayed for this campaign. The offline donations are coming very close to covering the fees we pay to GFM and WePay so, that is wonderful! We couldn't have had a successful campaign without their services; you wouldn't believe how much fraud is attempted against these accounts, and, so far, it seems they have kept all your donations safe and everything is transferring right into Bubby's trust account smoothly.

Something that has not been broadcasted as part of Bubby's story is that he will be the recipient of a seizure assistance service dog from 4 Paws for Ability. He and his family will travel to Ohio in April to pick up the dog (we've been on a waiting list since August 2015!). This travel has been a great source of stress for Shannon, in particular; Bubby has never flown before and she was extremely concerned with how the changes in pressure would affect him, but due to the lack of a dependable vehicle, driving from TX to OH was just not possible. Not anymore!! They will now get to forego the high-stress environment of the airports; traveling away from home for over 2 weeks with a medically fragile child plus all of his liquid meds & equipment for the first time, coupled with a return trip with a new service dog in tow was daunting so, thanks to you all, that is no longer looming in their near future! Bubby's Facebook page, 'A Buddy for Bubby,' is called that because that is where we started trying to raise the funds for him to receive his service dog, his new buddy. We were successful in doing so and now would like to invite you all to like his page and follow us on the journey of picking up his pup!

www.facebook.com/abuddyforbubby/
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Update 8
Posted by Summer Southern Allmon
17 days ago
Y'ALL, BUBBY GOT A VAN!!! After a ton of coordination over the last two weeks between two states, lawyers, accountants, multiple layers of car salesmen, the family, the trustee, multiple UPS shipments of documents and one $56,266.01 check, Bubby got to pick up his new wheels today! We are finalizing plans with the company that will install his special lift chair and hope to have that completed & installed in about another month. That will be an additional expense of around $10K & will complete all of our "big ticket" purchases for a long time, we hope. From here, we will focus on growing his money & getting him into some different therapies that his insurance will not cover. We pray this money sustains him for a long time & just ask that y'all also pray for us to encounter honest businesses that have goodness in their heart above making profit from this situation.
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Help spread the word!
 3.1K shares on Facebook
Read a Previous Update
Raylene Bement-Salazar
1 month ago

I love the American people! When called to action look what happens! I hope this money helps relieve the burden so they can just enjoy their angel.

+ Read More
Eric Mehler
1 month ago

You should try medical marijuana. https://www.scientificamerican.com/article/can-cannabis-treat-epileptic-seizures/

+ Read More
Lorraine Chase
1 month ago

Saw this story on the news today. Amazing parents of a special needs child. God made a great choice in selecting them for Bubby. Their love and sacrifice for him speaks volumes! When you can count your blessings each day even under difficult circumstances you are truly blessed! Merry Christmas!!

+ Read More
Michael Dean
1 month ago

I was only the 6th? person (-$500) to donate in the middle of the Fox News segment, I checked back about 45 minutes later to see the balance ($147,000) and I'm THRILLED my fellow Americans have huge hearts and given to this wonderful family! Cheers and Merry Christmas to all off you!

+ Read More
Tyler Bartram
1 month ago

Fox news viewers have good hearts

+ Read More
Donna Lifland
1 month ago

I wonder if this family is aware of "Charlotte's Web". This is a strain of marijuana (high in CBD and low in THC) thought to treat debilitating seizure disorders. Joel Stanley and his 4 brothers manufacture this strain of medical marijuana derived drug in Colorado Springs, Colorado. Please read the article on the CBS 'website of 2/18/2014 "Charlotte's Web"............ Just saw your story on FOX news. You are remarkable parents!!

+ Read More
Suzanne BeBe Bledsoe
1 month ago

Saw this on FOX this morning. God Bless you both and that precious little boy, Bubby! God knows Bubby's needs and will provide through the caring and generosity of others. Love to you all and MERRY CHRISTMAS!

+ Read More
Donna Weber
1 month ago

Fox News take a bow! Your station did a wonderful story for this young boy and his family! My hat's off to you! I hope the total keeps getting higher and higher.

+ Read More
Vince Fiato
1 month ago

I was so touched while watching your segment on Fox News. May all of our contributions show you that love and human compassion is alive and well. You are a beautiful family, touched by God.

+ Read More
Melly Mel
1 month ago
8
8

My husband and I saw the segment of your story on FOX News. It truly brought tears to our eyes. Bubby is one lucky child to have wonderful parents who are amazing and loving. We prayed for you and my God Bless all of you. Praying that Bubby gets his illness controlled and hope he will love his new chair and new Van for his daily transport. Many Blessings.

+ Read More
Alyssa Danielson Holland
1 month ago
8
8

I totally agree with the CBD comments. Please look up my friend "Amber Wann" here on fb. Her son Benjamin just reached the 1 year mark of being seizure free after using Charlottes Webb. It is CBD but DOES NOT get you high. Please like her fb page and talk to her. She is is a HUGH advocate for this. I will forward this on to her as well. My thoughts and prayers are with your boy and your family.

+ Read More
John Welker
1 month ago
7
7

So glad to see what a news organization can do positively to help make a difference> So glad that these wonderful people can be helped by their peers as well as our government medical systems. Wonderful story and so uplifting!! Love You Bubby!!!

+ Read More
Gina Orendorff Grabowski
1 month ago
6
6

God Bless and I hope for the best for Bubby. Living today has given us medical miracles that we did not have even 5 years ago. Bubby will be remembered by everyone who has seen this story on Happening Now. Maybe with this publicity a well known neurologist can help with performing a miracle for you and Bubby.

+ Read More
Dawn Lancaster
1 month ago
6
6

Here is the professional reference for your physician... https://www.ncbi.nlm.nih.gov/pubmed/26800377

+ Read More
Joselyne Escalante Gi
1 month ago
5
5

This is Amazing yesterday morning I made my donation and the balance was usd300 now it's almost $250k !! this the power of Lord Jesus the King of King ! God bless everyone !!

+ Read More
Mary Erickson Vigliotti
1 month ago
5
5

We saw your story on FOX early this am and contributed . God Bless you both and your adorable son. Isn't it glorious to watch the kindness of others ?! Thank you FOX for sharing the story ..........

+ Read More
Donald Kidd
1 month ago
5
5

Just look what that "horrible Fox news Channel" has done......lol.......where us deplorables get our news.

+ Read More
Howard Stapleton
1 month ago
5
5

So many of the people in the US have great, generous hearts of compassion and empathy. This is *not* virtue signaling... in contrast it is genuine care and concern demonstrated by action to help and assist another person as a matter of ethic and moral conscience. Bless all you who put 'shoe leather' behind your thoughts, concerns, and wishes for others - whether it's prayers, financial help, or some other form of assistance. *Bypass the bureaucracy - Bless others directly*

+ Read More
Pat Schroeder
1 month ago
4
4

My grandson is an amazing little boy. In spite of his problems, or maybe because of them,, he lives the most loving wonderful life. Thank you to all that have taken part in this effort to ensure his future. May God bless each of you.

+ Read More
Sheila Zea Greaver
1 month ago
4
4

I watched your segment on FOX News this morning and my husband and I were all too happy to help gift your gofundme account for Bubby. I work for a Christian based non-profit in Spring, TX called "Panther Creek Inspiration Ranch". As an equine therapeutic riding center, we work with children and young adults with unique challenges. We offer scholarships to families that face adversity and will never turn away a family due to their inability to pay. Please consider visiting our website and/or Facebook page to see if it would be convenient for your family.

+ Read More

$330,045 of $300k goal

Raised by 3,919 people in 1 month
Created December 20, 2016
Summer Southern Allmon  
DG
$5
dfgdfg gfgxcf
4 hours ago
$25
Anonymous
3 days ago
$5
Anonymous
3 days ago
LL
$25
Linda Lawson
5 days ago
$100
Anonymous
6 days ago
AF
$50
anthony fabiano
6 days ago
$100
Anonymous
8 days ago
$50
Anonymous
9 days ago
MD
$4,778
Mailed in Donations
11 days ago (Offline Donation)
1
1
AA
$250
Anonymous Anonymous
11 days ago (Offline Donation)
2
2
Raylene Bement-Salazar
1 month ago

I love the American people! When called to action look what happens! I hope this money helps relieve the burden so they can just enjoy their angel.

+ Read More
Eric Mehler
1 month ago

You should try medical marijuana. https://www.scientificamerican.com/article/can-cannabis-treat-epileptic-seizures/

+ Read More
Lorraine Chase
1 month ago

Saw this story on the news today. Amazing parents of a special needs child. God made a great choice in selecting them for Bubby. Their love and sacrifice for him speaks volumes! When you can count your blessings each day even under difficult circumstances you are truly blessed! Merry Christmas!!

+ Read More
Michael Dean
1 month ago

I was only the 6th? person (-$500) to donate in the middle of the Fox News segment, I checked back about 45 minutes later to see the balance ($147,000) and I'm THRILLED my fellow Americans have huge hearts and given to this wonderful family! Cheers and Merry Christmas to all off you!

+ Read More
Tyler Bartram
1 month ago

Fox news viewers have good hearts

+ Read More
Donna Lifland
1 month ago

I wonder if this family is aware of "Charlotte's Web". This is a strain of marijuana (high in CBD and low in THC) thought to treat debilitating seizure disorders. Joel Stanley and his 4 brothers manufacture this strain of medical marijuana derived drug in Colorado Springs, Colorado. Please read the article on the CBS 'website of 2/18/2014 "Charlotte's Web"............ Just saw your story on FOX news. You are remarkable parents!!

+ Read More
Suzanne BeBe Bledsoe
1 month ago

Saw this on FOX this morning. God Bless you both and that precious little boy, Bubby! God knows Bubby's needs and will provide through the caring and generosity of others. Love to you all and MERRY CHRISTMAS!

+ Read More
Donna Weber
1 month ago

Fox News take a bow! Your station did a wonderful story for this young boy and his family! My hat's off to you! I hope the total keeps getting higher and higher.

+ Read More
Vince Fiato
1 month ago

I was so touched while watching your segment on Fox News. May all of our contributions show you that love and human compassion is alive and well. You are a beautiful family, touched by God.

+ Read More
Melly Mel
1 month ago
8
8

My husband and I saw the segment of your story on FOX News. It truly brought tears to our eyes. Bubby is one lucky child to have wonderful parents who are amazing and loving. We prayed for you and my God Bless all of you. Praying that Bubby gets his illness controlled and hope he will love his new chair and new Van for his daily transport. Many Blessings.

+ Read More
Alyssa Danielson Holland
1 month ago
8
8

I totally agree with the CBD comments. Please look up my friend "Amber Wann" here on fb. Her son Benjamin just reached the 1 year mark of being seizure free after using Charlottes Webb. It is CBD but DOES NOT get you high. Please like her fb page and talk to her. She is is a HUGH advocate for this. I will forward this on to her as well. My thoughts and prayers are with your boy and your family.

+ Read More
John Welker
1 month ago
7
7

So glad to see what a news organization can do positively to help make a difference> So glad that these wonderful people can be helped by their peers as well as our government medical systems. Wonderful story and so uplifting!! Love You Bubby!!!

+ Read More
Gina Orendorff Grabowski
1 month ago
6
6

God Bless and I hope for the best for Bubby. Living today has given us medical miracles that we did not have even 5 years ago. Bubby will be remembered by everyone who has seen this story on Happening Now. Maybe with this publicity a well known neurologist can help with performing a miracle for you and Bubby.

+ Read More
Dawn Lancaster
1 month ago
6
6

Here is the professional reference for your physician... https://www.ncbi.nlm.nih.gov/pubmed/26800377

+ Read More
Joselyne Escalante Gi
1 month ago
5
5

This is Amazing yesterday morning I made my donation and the balance was usd300 now it's almost $250k !! this the power of Lord Jesus the King of King ! God bless everyone !!

+ Read More
Mary Erickson Vigliotti
1 month ago
5
5

We saw your story on FOX early this am and contributed . God Bless you both and your adorable son. Isn't it glorious to watch the kindness of others ?! Thank you FOX for sharing the story ..........

+ Read More
Donald Kidd
1 month ago
5
5

Just look what that "horrible Fox news Channel" has done......lol.......where us deplorables get our news.

+ Read More
Howard Stapleton
1 month ago
5
5

So many of the people in the US have great, generous hearts of compassion and empathy. This is *not* virtue signaling... in contrast it is genuine care and concern demonstrated by action to help and assist another person as a matter of ethic and moral conscience. Bless all you who put 'shoe leather' behind your thoughts, concerns, and wishes for others - whether it's prayers, financial help, or some other form of assistance. *Bypass the bureaucracy - Bless others directly*

+ Read More
Pat Schroeder
1 month ago
4
4

My grandson is an amazing little boy. In spite of his problems, or maybe because of them,, he lives the most loving wonderful life. Thank you to all that have taken part in this effort to ensure his future. May God bless each of you.

+ Read More
Sheila Zea Greaver
1 month ago
4
4

I watched your segment on FOX News this morning and my husband and I were all too happy to help gift your gofundme account for Bubby. I work for a Christian based non-profit in Spring, TX called "Panther Creek Inspiration Ranch". As an equine therapeutic riding center, we work with children and young adults with unique challenges. We offer scholarships to families that face adversity and will never turn away a family due to their inability to pay. Please consider visiting our website and/or Facebook page to see if it would be convenient for your family.

+ Read More
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