I am Bubble Boy

$40,807 of $500,000 goal

Raised by 158 people in 54 months
To really see my story, please visit my blog at http://howibeatmycancer.com/  I have never been a guy asking for handouts but I am starting to realize that we are all connected. We all need one another to get to a better place in life and its important not to let ego or pride get in the way. So I am lowering my guard to share my story.

Here is my reality.  I went to the doctors Dec 27, 2014 and they said I was drowning from the inside out, and that they had to drain my lung. They drained 2 liters of water. That is 4 pounds of water from 1 lung. They also found a large mango-sized mass that has been growing probably for a year according to my doctor. You would think there would be more symptoms, but until it hits into vital organs, it just was growing. Then it made a crash landing. I have a rare cancer that typically runs in children. This makes sense based on my maturity, Ha.

Less than 5% of adults with Cancer have what I have. It is a form of T lymphoblastic leukemia/lymphoma. It was interesting enough that the doctors over at UCSD medical center were very excited to recruit me over to their facility to put me on a new aggressive clinical trial that only 4 others have taken before me. A few years ago this would have been terminal, but they have made a lot of progress over the years. It is the most aggressive form of Chemo and also the longest form of Chemo. Meaning it is going to kick my ass. The program is 2.5 years. 7 months of intensity, then another year less intense, than the rest if all goes well is chemo pills and less treatment. My immune system will drop to zero at times.

I am basically bubble boy. If I am around anyone slightly sick it could be doomsday for me. I have to eat very specific foods. The opposite of what you learn. I don’t have the immune system to handle raw foods. In fact they would kill me. Our natural immune systems fight off the small things and take in the nutrients. Mine won't be able to do that.

What this means as far as money goes is that I am going to have to set up a very sterile home environment for a while. 2.5 years to be exact. The home will need to be equiped with proper air flow, free of all dusts particles, have nice light and windows for sanity, etc. Everything will need to be prepped so that I am in the cleanest environment possible when my body is Neutropenic. Being Neutropenic is when your white blood cells drop to almost undetectable levels and therefore you have no immune system.  I will be living for a bit in a box (room) and I want that box to be nice. My mental state is equally as important as my physical in beating this cancer. If you had a room to live in, what would you do with it to make it home? For me it would be clean, have excersize gear, have a computer work station, and large windows to see the outside.

As well beyond the new lifestyle I simply won't be able to work like I have in the past. I want to make sure that my family is taken care of and that once I am healthy I can stand on my own two feet again. It feels funny to be a charity case and I don't expect anyone to just give me money. But I also realize that every dollar will count in this new time of life and appreciate you reading my message. 

I love life to the fullest and my promise is that I will make sure that my Cancer and experience proves to be a positive one for myself and everyone around me. Thanks you for your time and care.
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$40,807 of $500,000 goal

Raised by 158 people in 54 months
Created January 5, 2015
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Darryl H
27 months ago
Eleas Mathios
45 months ago
M.J. Adamucci
46 months ago

Aaron, you are fighting the good fight, stay strong; you will get through this and life will be even better than before. My thoughts are with you. MJ Adamucci

Anthony Adamucci
46 months ago
Raquel Nayberg
46 months ago

Stay strong on your journey! Sending best wishes and prayers for you and your family.

Sandra and John Brander
46 months ago

We are praying for you and sending lots of love your way.

Morgan Senzer
48 months ago

Aaron, we are keeping you in our thoughts and prayers. Your spirits are always high, you are a fighter! Dustin sent me this link as we were planning our upcoming photography schedule, Love, The Future Mr. & Mrs. Ryan (Morgan Senzer)

Azin Jalali
48 months ago

I haven’t had the pleasure of meeting you yet but we did speak on the phone a couple times regarding my wedding photography, before I learned about your journey through cancer. Your positive attitude, kindness and passion shined through even over the phone. You are incredibly inspiring for being so strong and so positive while going through such a challenging time in your life. I wish you health and even more happiness. Thank you for sharing your story and for reminding us to appreciate things we often overlook and take for granted.

49 months ago
Zenzi Communications
49 months ago

Your positive attitude is so inspiring and we are wishing you the very best for a speedy recovery.

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