Help Support ALS & MD Associations
In Pursuit of a Miracle — Synopsis
For the full story, view the video at the top or bottom of this page.
Imagine being paralyzed, unable to speak or feed yourself. Imagine not being able to dial a phone, scratch your nose, or change the channel on the TV. It’s called the “locked-in syndrome.”
Now imagine caring for this person 24/7/60 from morning to night.
This was our life, written prior to and edited since Bryna's passing.
My name is Mel Solon. I'll be 77 this July on Bastille Day. My wife, Bryna, was 71. We met at a singles dance at the Beverly Hilton Hotel, got engaged three days later, and married three weeks later in Las Vegas, 50 years ago as of March 2016.
On January 31 of 2014, our lives were changed forever when Bryna was diagnosed with ALS, amyotrophic lateral sclerosis, better known as Lou Gehrig’s disease. ALS is a neuromuscular disease with no present cure or effective treatment.
She used a feeding tube to eat, and communicated with the use of a computer, either with a gyroscopic mouse or the blinking of her eyes.
Fortunately, her mind, spirit, and sense of humor seemed relatively unaffected, as those who had visited can attest.
Scroll down to hear a 9-minute audio by Bryna before she lost her voice. It's about her attitude toward receiving a terminal medical prognosis.
Our hope was for Bryna to survive long enough for a cure to be found. While our miracle didn't manifest, she is definitely in a better place. I'm confident, also, that a cure will be found so that others, patients and caregivers, will not have to suffer from this terrible disease.
With help from hospice, I did everything I could to fulfill her wish to spend however much time she had left in our home with me as her caregiver.
While stressful and frustrating at times, the spiritual nourishment I received for caring for Bryna made it easy to do my job both willingly and lovingly.
To help fund research to find a cure or effective treatment for ALS and MD (Muscular Dystrophy), donate here at GoFundMe.
You also can help, non-monetarily, by simply sharing our story through social media, and, if able, by putting us in contact with whomever you may know who can provide print or air time.
If interested in informative and enlightening details, view In Pursuit of a Miracle, at the top the page. We hope you find it not at all sad or depressing, but instead, very positive and uplifting.
PS. Bryna's introduction to The Mighty Mind Expander (before she lost her voice).
PPS. The Mighty Mind Expander video below is our gift to you for visiting our site and/or donating to our cause.
The Mighty Mind Expander is a unique, mind-expanding, thinking experience. This 90-minute audio seminar, in 5-segments, promises to help you develop your psychological resilience, reduce stress, achieve premeditated happiness, and become more of the person you idealize yourself to be.
Her word, honest.
7-31-16 Sunday 1-5.
Please join me and others who knew and loved her for a celebration of Bryna's life. Together, we will feel the magic of her enduring spirit and adorable smile.
Don’t worry about what to bring. Just something you like. The mix between pasta, salad, meat, chicken, fish, soup, vegetable, casseroles, sodas, chips, dips, and desserts always works out.
NO RESERVATION NECESSARY
When — 7-31-16
Time — from 1 to 5
Where — In our clubhouse here in Calabasas Village, 23777 Mulholland Hwy., turn into the west entrance, bear right up to the clubhouse, park in front or on either side.
At 12:02 a.m. on April 30, 2016, Bryna, my beloved wife of 50 years, best friend, lover, and business partner, after a brave and gallant battle with ALS, has peacefully changed form.
Her strength, courage, and spirit now exist in the hearts, minds, and memories of everyone she’s ever touched. She is not gone, she has passed physically, but not spiritually. She is here, within me, woven into the fabric of my being. Everywhere I go, she’s there by my side.
I’m doing pretty well. Writing and sharing is my therapy. Sadness is manageable. Redefining my meaning and purpose will take some time, but with the love expressed in your condolences, everything is a little easier to handle.
Thank you, also, to all of our donors; your support helped Bryna and I make the best of the time she had left.
PS. Notwithstanding Bryna's passing, I will continue to actively host this website http://GoFundMe.Com/BrynaALSBattle
for three reasons:
1. To help keep Bryna and her smile-generating spirit accessible to everyone.
2. To bring increased awareness to this devastating disease, ALS (Lou Gehrig's disease).
3. To help raise money to fund ALS research, 100% of your donation will be shared between the ALS & MD Associations.
Two of 20 quotes on Grief from our book
“Quotations to Help You.” View a video presentation of our book at http://TheThinkingPlace.Com.
1. "In cases where someone really important in the life pattern of an individual has died, the bereaved will normally experience these reactions in greater or lesser degree: bodily symptoms of pain and distress, continual preoccupation with the image of the deceased, deep feelings of guilt, disinterestedness in life, and loss of patterns of conduct. If they are understood as temporary manifestations, if the bereaved person is wise enough to do his grief work courageously by accepting rather than avoiding intense feelings of sadness, by expressing his emotions rather than suppressing them, by readjusting to the environment bereft of the loved one, and by beginning to form new relationships. if these things are done, a true grief strategy has been discovered and the dangers of future neuroses averted." — Joshua Loth Liebman
2. "Happiness is beneficial for the body but it is grief that develops the powers of the mind." — Marcel Proust