Brayden Belden Recovery Fund

$219,877 of $275,000 goal

Raised by 2,755 people in 13 months
Created February 23, 2018
Meet Brayden Belden.

On February 20, 2018 this athletic, vibrant 11-year-old from Laguna Beach, CA suffered a catastrophic head injury while snowboarding with his family at Mt. Bachelor in Oregon.

Brayden was air lifted from the mountain to Bend, with his parents driving in blizzard conditions to meet him at the hospital. When they arrived, they received the news no parent ever wants to hear: the injury was much more serious than initially believed, and their son might only have hours to live.

For the next hour, Brayden’s life hung in the balance as doctors worked to stabilize him so that he might survive a second life flight to Randall Children’s Hospital in Portland, where the right experts and equipment could give him a fighting chance. Brayden defied the odds and was flown to Randall, where he remains in a medically induced coma in the ICU.

Brayden Belden should survive, but it will be a long road back if he makes it.

One of the many obstacles his family faces is the sheer cost of Brayden’s care. The Beldens are looking at over $100k in out-of-pocket expenses for the life flights alone. In addition, Brayden will eventually need to be airlifted to a hospital closer to his home in California, which could double that number. Then there are deductibles, out-of-network-fees, and the cost of food and lodging.

When you add it all up, the end cost to the family will likely exceed the price of the average home in the United States.

The Belden family should be concerned about one thing: getting Brayden well. We’ve created this Go Fund Me page in hopes that they can focus on his care, and not the crushing medical costs they are facing. 

The Belden Family thanks you so much for your support and love. Prayer and positive energy are so powerful and much appreciated! Brayden can take all the love you can share. Knowing he has so much love has helped us, too. We are blessed to be in a community that cares so much.

We'll use this page to stay in contact and will keep you updated on his progress

Thank you.
The Belden Family & Friends
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Now that we are past the 1 year mark Brayden’s seizure risk has been reduced dramatically. He now has the ability to use O2 training as part of his workout protocol. Before I explain what this does I want to say thank you for all of the support. Brayden’s GoFundMe has allowed us to stay on the road with him 9 months last year, do multiple hyperbaric sessions , stem cells and a complete regimen of OT/ PT / Cognitive and acupuncture. Live02 delivers 24x the amount of oxygen he would normally breathe. This allows needed oxygen to pass the blood brain barrier carrying needed red blood cells on a vascular level to areas of his brain that were damaged. I’ve read the studies and although this is FDA grey area ( like hyperbaric for TBI) the delivery mechanisms are similar with Oxygen saturation being the key element for recovery. As you can see Brayden’s work ethic has not slowed and he gets stronger he works out longer and harder. Have a great Sunday and thank you ❤️ #braydenstrong #keepfighting #keepsmiling
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Hi everybody we wanted to say hi and check
In on a milestone day for Brayden Belden. Today is the one year anniversary of his snowboarding accident at Mt Bachelor. Having a year go by allows you to reflect but also see how far he has come. For myself the days leading today have been tough. You think about where the year has gone and the challenges my wife Denise and our daughters Kaley and Riley have had to face. All of our friends and family have been there for us since day 1 and there is NO WAY we could of provided the level of support and care he has received. Over the year he has done Hyperbaric, Live O2, Stem cells, acupuncture, diet changes, OT, PT, speech and cognitive development. He now goes to Thurston middle school a couple hours a day and the rest is spent in various forms of therapy. Denise has ran point with his crazy schedule and is the strongest women I know. Looking back on 2018 we spent close to 9 months on the road between Portland and Baltimore. We continue to put him in front of the best and he still is improving on all measurements scales. It’s hard not to tear up writing about the experience on the day that everything changed but I think that’s how you also heal and move past the trauma that we all experienced. We can’t thank everyone enough for the love and support. We have a lot more work to do but at end of day we still have our boy, he is happy ( despite a couple down days ) His commitment to healing and getting better is unwavering. Thank you so much. One year in the books and Brayden will keep giving 110%. Feels good to get past this day because its really time to look forward and keep working to do everything we can to help Brayden achieve his goals. Thank you for all your love - Belden family ❤️
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Hi everybody first and foremost we want to say happy holidays and thank you so much for your support, prayer and love over the course of 2018. Denise and I reflected and thought about 2018 and the one thing that instantly came to mind was spending 7 months of the year on the road. That’s a long time to be away from home and have your family split up. It’s a lot of eating out and a lot of living out of a suitcase. The results we saw with Brayden from both being at Randall Children’s Hospital and John’s Hopkins was miraculous. In Brayden’s first 4 months post coma he learned how to re-walk, talk, chew, spit and swallow. We all take these for granted but it’s the difference between having a trachea tube in your throat, a G-feeding tube in your stomach and being in a wheelchair. Obviously these all would have added a complexity to our care for him and we are very thankful to have avoided some of these things. Brayden’s commitment to his recovery and hundreds of hours of therapy really helped him push hard to achieve his first set of goals. After coming home from Summer and taking a break we took Brayden to John’ Hopkins for 3 months to continue his progress on his PT, OT and cognitive aspects of his recovery. There we saw amazing improvement in his physical recovery and saw him get stronger and get some of that old wit back we all love. This story is far from over and next year I’m quite sure we will be back on the road finding the best doctors in the world that specialize in the current stage of recovery he is in. Sometimes the heard part is finding them because in this day and age everyone is a specialist of some sort but the cream always rises to the top. Our game plan has no change - get him in front of the best and let him push 110% which is in him and will not go away. Seeing my son go hard day in and day out has been amazing to watch and he is level
Headed about it. He knows he has a job to do and try’s his hardest every day he goes to work. I guess in life that’s all you can do - wake up give it 110% , get some chow, go to bed and do it all over again. That’s how champs are made and he has his eye on the prize. Denise and my whole family want to wish you all a great holiday and maybe just for a second think a little and remember your health is your wealth and that is always something to be thankful for. #braydenstrong ❤️
Brayden at Baltimore Aquarium
Still smiling even in a headlock
Brayden getting his Boogie on!
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Hi everybody wanted to give you all an update from Baltimore. Johns Hopkins Kennedy Krieger is a great fit for Brayden. We are so blessed to be able to have the resources to send our boy to such a comprehensive program. My goal has always been to keep our updates objectively fact based so this one is one of the more difficult updates to post. When we originally went to John’s Hopkins our goal was for him to do constraint based inducement therapy. Essentially what they do is cast your good arm and make you use your other arm that is having issues. This forces the brain to rewire and the documented results are outstanding. Unfortunately during the eval a very skilled occupational therapist called us in speculating that he in fact does not have Dystonia and there was orthopedic trauma to his shoulder/ arm from his accident. One of the tells was the fact the Botox injections provided no increased range of motion which was peculiar. Following his MRI we were shown that his humerus bone violently came up and fractured the Acromion of his Scapula. This is a rare injury. Essentially think about a football player strong arming someone on a running play- when he landed he essentially strong armed his shoulder with his humerous bone since it was probably fully extended to break his fall and the bone shot straight up into his shoulder. No X-rays were done below the neck and this basically slipped through the cracks during his rehab. Unfortunately his fracture healed in a bad position and now his right shoulder is immobile and cannot use it. By allowing this amount of time to go by without knowing this, the shoulder has scarred over. The medical term for this is adhesive capsulitis. The non medical term is frozen shoulder. We have gotten multiple opinions and it appears now the best solution is for him to get surgery to break the scar tissue away and hopefully restore range and function. Along with getting answers Brayden loves the comprehensive program. He is getting a lot of psychology and group therapy which has really helped his general well being. He has made some new friends that also have brain injuries are experiencing the same type of memory issues and fatigue. We are realizing rehab from a brain injury is a marathon and the finish line is nowhere in sight. Brayden continues to impress medical staff wherever he is. When the doctor told him surgery was probably the best option he told him, “ ok I don’t care how big the needles are and I promise when I wake up to give everything I have and 110% on my rehab so it heals the best.” The doctor and I looked at each other and had to hold it in. Even after 15 castings and non stop rehab for 7 months he remains a warrior and gives everything he has in rehab, goes home, eats some chow, gets some sleep and is right back up ready to go. As for what I have learned and maybe even a bit of advice to all parents- medical help is more of an art than a science. With that being said, always get a second, third or even fourth opinion. Always ask questions because the best advocate for your health is a patient/ parent advocate. A lot of medical direction for treatment is opinion and therefore subjective so keep that in mind and get multiple opinions. Due to his treatment plan being altered to include shoulder surgery it appears we will be staying in Baltimore longer than expected. Winter is coming over here - mornings are in the mid 30’s before it warms up which reminds me of Our Portland stay. Brayden says he likes it colder because he was born in SF and dealt with it in Portland. I want to thank everyone for all of the love and support during this journey. I apologize for not being more prudent regarding the updates but i find being in limbo with his treatment plan and not having answers is tough to share because nobody likes being uncertain with their lives and for sure not their kids. I am so thankful we came to John’s Hopkins and figured this out. Thank you.
Last weekend we took the train up to NYC
Train bound
See the angle of Scapula - hard hit
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$219,877 of $275,000 goal

Raised by 2,755 people in 13 months
Created February 23, 2018
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