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Brandon Needs 2nd Liver Transplant

$33,885 of $50,000 goal

Raised by 302 people in 5 months
Created April 25, 2018
Brandon Facon has lived a life full of doctors appointments, hospital stays, countless blood draws and thousands of pills and through it all he has been my hero. He has always said, “I don’t know why I was given this challenge in life, but I will make the most of it.” That is why, after being diagnosed with Auto-Immune Hepatitis, Primary Sclerosing Cholangitis and Crohns at the age of eight, he became an advocate for the Crohn's and Colitis Foundation of America.  He wanted to help people and their families living with Crohns and Colitis. He became the “Face of Crohns” for the Rolf Benirschke Legacy Golf Tournament and was a speaker at their annual fundraiser for over ten years.  After eight years, Brandon’s liver deteriorated to a point where he needed a liver transplant. He was jaundice, tired and slept all the time. He had to finish high school on home hospital.   We sold our house, moved into an apartment and after graduation, he and my mom moved to Indiana because the wait time there was only weeks compared to years in California. That is when we learned that Indiana is an “opt out” state, which means that you are automatically a donor unless you “opt out.”

After waiting only seven and a half weeks, Brandon received the “perfect” liver!   We now celebrate 8-10-12 as his 2nd birthday!  Brandon and my mom returned home in November, just in time for Thanksgiving. We had so much to be thankful for! 

While he was home recuperating from the transplant, he added Donate Life to his personal causes and began speaking to high school students about the importance of being a donor. He wants to change California to an “opt out” state, so that it will shorten the wait time for patients on the transplant waiting list.
 
After taking the year off to recuperate from the transplant, he started college at Cal Poly San Luis Obispo studying Engineering.  Managing his health while attending school proved to be difficult. For the last three years, he has suffered with daily nausea, jaundice and extreme fatigue. His disease of Primary Sclerosing Cholangitis is back and has resulted in chronic Intrahepatic Ductopenic Rejection and Cirrhosis of the liver. Brandon needs to have a 2nd Liver Transplant.  His case will be presented April 27th  in order to get on the Transplant list.  Because it still takes about 3+ years in California, the plan is to let Brandon finish college in June and then Brandon and my mom will move to Indiana and wait for his 2nd “perfect” liver. 
 
Brandon needs our help!  He is humble and would never ask for himself, but as his sister and as a long-time admirer of his courage, his spirit and his downright perseverance, I'm saying it.   There's no way of sugar-coating this: Brandon needs this transplant!   It's obviously a very serious surgery, and one that I know he is not looking forward to enduring, but he perseveres by staying focused on the hope of feeling better and regaining his strength and energy.  Thankfully our health insurance will cover the transplant, but there are aspects of care and recovery (including the high deductible, copays, medication, living expenses in Indiana, and much more), which are not covered by insurance. 
 
For the first year after a transplant, a patient remains at high risk for rejection, and there are many costs associated with monitoring and guarding against this, as well as with recuperation. After-care is crucial, and it's expensive. That's where we can help.

Brandon’s transplant team has advised that he should have a large contingency fund in place, which can be put towards these costs. The sums are enormous, so I'm setting up this fundraising campaign. Please give what you can and spread the word. 

Brandon Facon is an amazing brother and person. He is facing a very tough time ahead and we can help make it a little easier and less stressful. 

Thank you for reading Brandon’s story and for considering a donation. Here's a brief note from Brandon: 


I am proud that I have been able to make a positive contribution with my life so far and hope I have been worthy of it.  Living with chronic health issues is a challenge, but living at all can be a challenge. I have been lucky to have a mission and to know it from a very young age. People work their whole lives to leave their mark on this world with the desire to make a difference, to be remembered, to be someone’s hero. They go to school to gain knowledge so that they will achieve success, some develop their talents in athletics, music, or theater to be in the spotlight, while others choose to get married and raise families. The paths may be different, yet the desire is the same. People want to make a difference, to be remembered, to be someone’s hero.
 
My first liver donor, Erica, didn’t know at the time, but she would become my hero just six years after she made that selfless decision and I am forever grateful. I pray now for my next liver donor and am thankful for their decision to be a donor.

I want to thank you in advance for your donations, for you are making a difference in my life.  I know my health will be restored!  I have so much to accomplish and need to get busy living my life to the fullest and cherishing each and every day!  And yes, like Erica, I have that pink dot on my license too, do you?


Donate Life Float at the Rose Parade back in 2013!
Brandon's Neon Film Display. Cal Poly San Luis Obispo, Spring 2017.
Black and white photo of Brandon's scar in 2016.
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Hello faithful friends!

We have good news to report!

After one false alarm, God provided the gift of a new liver Thursday, September 6, 2018!

Brandon’s girlfriend, Kathryn, flew in and was able to be here for the surgery which was a true blessing. Her presence lifted Brandon’s spirit and put a smile on his face. They are just so sweet with each other! That is why it was difficult to have her leave on Sunday to start her internship for her Masters program in Social Work.

Mike and Danielle arrived on Monday night and I was able to pick them up from the airport. It’s the first time all four of us have been together since June!

Surgery/Recovery Details:

We got the call that they had a liver for Brandon on Wednesday, September 5th at 2:30pm. We packed our things and arrived at the hospital at 5:30pm. They did a complete transplant work up which included blood work, EKG, chest X-ray, and anesthesia consult. He was taken to surgery Wednesday, September 5th at 11pm. Kathryn and I said our goodbyes to Brandon and then went to the waiting room. We were given periodic updates during the six hour surgery. Brandon’s surgeon, Dr. Mangus, came out at 5:30am to let us know that everything went well and that we could see Brandon in ICU at 6:30am.
It was a huge relief to see him and know that he had his new liver.

Brandon progressed quickly!

Although he was loopy with all the anesthesia and pain meds, his breathing tube was removed within five hours!
He was out of bed and in a chair on Friday morning and was then moved out of ICU to the Transplant floor.
On Saturday, PT came and got him up and walking the halls. Being young helps with the whole healing process! He definitely impressed all the nurses and doctors!
Yet, with any major surgery there can be “bumps” in the road to recovery.
He developed a fever of 103 early Monday morning. It turned out that he had an infection at his wound site. They opened a small section and drained the infection and cultured it. They started antibiotics and gave him some Tylenol to bring down his fever.

This whole process can probably best be described as an emotional roller coaster. Yet, we are confident that he will recover fully. Please know that we truly appreciate your continued love, support and prayers.

In gratitude,
Anne Facon
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Hello Everyone!!

Life has been a whirlwind getting ready to move to Indiana to get Brandon's Liver Transplant. Brandon and I are settled now and we wanted to give you an update.

We left Oceanside with our car packed on Wednesday, June 20 at 5:00am. We traveled through Las Vegas, Nevada and made it to my niece Kirsten and Nick's home in Utah. She is a wonderful host and had dinner waiting for us! Danielle joined us for the car ride, as my sister Patty was hosting a baby shower for Kirsten on Thursday. She is due in August and we are excited to welcome Baby Boy Chaus to the family!

Brandon and I left at 5:00am Friday morning June 22nd and Danielle flew home for work. We took Hwy 80 through Wyoming and stayed in Kearney, Nebraska on Friday night. Saturday we left at 5:00am and drove through Iowa and Illinois arriving in Chicago around 6:00pm. We enjoyed the scenery along the way and experienced a major downpour in Nebraska with thunder and lightning, which was very exciting. It was a lot of driving, but we still made it fun by stopping at Goodwill and Thrift stores in each state. Brandon took many pictures and slept a lot!

Saturday night we got settled at our hotel and then went out to experience Chicago. We walked along the park overlooking Lake Michigan, saw The Bean and had the best Pizza we ever had at Lou Malnati's. Sunday morning we slept in! I was able to walk to St. Peter's for Mass and then we checked out of the hotel and were on our way to the University of Notre Dame, Indiana. We prayed and lit candles at The Mary's Grotto on campus. It is a truly peaceful place. We lit candles before his first Transplant so we wanted to do the same this time.

We traveled south from North Bend, IN to Kokomo, IN that is about an hour and 15 minutes from Indianapolis. We arrived at Nick and Amy Pate's home early evening and were welcomed with open arms. We are blessed to stay with them and their sweet family and enjoy their company and support.

Monday was a day of rest and then Tuesday, June 26th through Thursday, June 28th we were at the hospital for all of Brandon's final testing to get listed in Indiana. He had a Pulmonary function test, CT Scan, Bubble Test, Labs, EKG and Stress Test to get his Cardiac clearance, we met with the Social Worker, Psychologist, and the surgeons and transplant nurses. It was a busy few days but we are on a mission to get him listed.

Great News!! Brandon's case was presented Tuesday July 3rd and he was Officially Listed for Transplant on Thursday, July 5th!!! Yay! God is Good!

Everything has just fallen into place and we know that it is because we have the support of our friends and family who are offering up prayers daily so that Brandon's health will be restored!!

The next step in this journey is to Wait Patiently for his 2nd Perfect Liver!

We love you and thank you for your continued and faithful support.

Blessings xo
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Brandon Needs 2nd Liver Transplant has reached 50% of its goal. Thanks to The Hills, The Reade Family, Rolf and Mary Benirschke and all our supporters. Every one of your contributions matter and we are so thankful. You know the saying..."It takes a Village." Look how much we have accomplished in only a single day. Love and Hugs to you all!!
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We cannot begin to express our gratitude for your generosity and outpouring of love you have shared with Brandon and our family. We are Truly Overwhelmed!

Today is the day that Brandon's case goes before the Transplant committee at UCSD in order to get listed for transplant. It is quite a process and has taken months of testing to get to this point. Brandon has had to have MRI's, a PTC procedure, CT scans, Liver Biopsy, Colonoscopy, Endoscopy, Labs, and met with the Social Worker. We know that he needs a transplant , but these tests are required to confirm that need and to see if he is healthy enough to withstand surgery.

Please pray that his case is approved by the committee and confirmed by the insurance so that he can be added to the transplant list.

Blessings to all of you for your continued support!! xoxo
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$33,885 of $50,000 goal

Raised by 302 people in 5 months
Created April 25, 2018
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