Bo Cooper Leukemia Treatment Fund

$308,659 of $500k goal

Raised by 2,394 people in 15 months
Rob Van Hecke  Fort Mcmurray, AB
We are in need of support for one of our Brothers, a Fire Fighter who, unfortunately, has been diagnosed with Acute Lymphoblastic Leukemia (ALL) for the 3rd time since 2011. Each time, he has been successfully treated and put in to remission, however, the treatment options are dwindling. His father is also a member and is a Captain with our department. Last year, Bo received a bone marrow transplant and was well on his way to recovery. In October 2015, while on a Father-Son "dream trip" to the Yukon, Bo received the bad news from the doctors that the ALL had returned for a 3rd time. The doctors say that if even only one of the leukemia cells didn't die after his last chemo, radiation and marrow transplant, it could have grown and multiplied and only become detectable now. Apparently, the bone marrow donor cells are supposed to fight off any remaining leukemia cells, but it's possible the donor cells weren't strong enough either. As the leukemia cells grow, they can block out the healthy donor cells as in any other patient. Bo is now in Calgary, and is undergoing treatment with an experimental drug called Blinatumomab. The Tom Baker Cancer Clinic needed to get special approval to use this drug. The hope was that the drug would put Bo into full remission in about 24-50 days, and then he could possibly have another bone marrow transplant from a different donor. Now, the doctors are reccomending preparation for travel to one of 3 potential locations in the USA to undergo treatment with more promissing experimental Car T Cell drugs.  The family needs to quickly come up with atleast $500 000.00 to recieve the treatment.  They are trying liquidate any assets, but the process is slow.   The doctors are being frank and honest at this point, they really do not know what his chances are. He has had his lifetime dose of Chemotherapy, so treatment options are becoming slim.

Bo will remain in Calgary, until he is able to travel for  treatment. He exhausted his financial support to stay at the housing unit for the Tom Baker Cancer Clinic during his last treatment phase, so the cost of accommodation, transportation, etc are up to him. We are fundraising at the local level as well, but a greater influx of support would be more helpful. At this point and time, any financial support from the public would be greatly appreciated. 

Bo and his family are not people who have ever asked for support, and are deeply appreciative of the possible benefit of this campaign.  Bo is just 26 years old and newly married.  He worked as a volunteeer Fire Fighter until he was hired by the Fort McMurray Fire Department in 2009.  Please consider assisting this family in need.  We thank you in advance for your kindness.
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Update 20
Posted by Rob Van Hecke
6 months ago
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ince the fires in Fort McMurray, Bo continued with health testing, and it was found that he never reached full remission from his third battle with Acute Lymphoblastic Leukemia (ALL). He was admitted to the Tom Baker Center in Calgary where he received further treatment with another experimental drug from the USA called Inotuzumab. Unfortunately this drug has not been successful at putting Bo into remission and an alternate plan was needed. Bo is now undergoing a battery of tests at the Seattle Cancer Care Alliance in Washington State. At the conclusion of this two-week test phase, a review in late August will determine if Bo will be accepted as a candidate for the Car T Cell CD19 clinical trial in Seattle, Washington. This is a similar treatment to the Car T Cell CD 22 that Bo received in Maryland, however, it targets different leukemia markers on the cell. I will further advise of where Bo sits in his treatment options after the testing phase. I want to further add that this treatment is only an option because of the fundraising and monumental support of our amazing community, as well as all of the communities and fire departments throughout Alberta, Canada, and around the world. Without this support, Bo would be in a very different and hopeless situation right now, so with that, I would like to thank you all for your continued support, words of encouragement, and for keeping Bo and his family in your thoughts.
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Update 19
Posted by Rob Van Hecke
11 months ago
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Good news everyone!!

On Friday March 18, 2016, after almost a month of waiting, Bo Cooper received word that the FDA has approved him for a 2nd experimental treatment of the Car T Cell 22+ Treatment that he requires. Bo will under go a few days of chemotherapy and will receive the vital treatment on Friday March 25, 2016 at the National Institute of Health in Bethesda, Maryland.

As you know, Bo had received his first infusion on January 22 2016, but had experienced an infection prior to the treatment. He was treated aggressively with various medications, and they ultimately interfered with the T Cells. Bo is going into this treatment in incredibly better condition than last time. He is eating like a machine, exercising as much as possible, and getting a lot of rest”

Like last time, we anticipate Bo will get very sick as he fights the cytokine release, a side effect of the T Cells fighting and destroying the Leukaemia. We don’t anticipate knowing how Bo is progressing for at least 4-5 weeks, but we will update as soon as possible.
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Update 18
Posted by Rob Van Hecke
11 months ago
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1
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Hey everyone, we have $50 000 to go to reach our overall goal of $900 000. Thanks to your generosity and hard work, we are almost there. We need one final big push to get there. We haven't heard yet what the financial commitment will be from NIH, and until we do, fundraising must continue. As we await word on if Bo will receive a second round of this experimental Car T Cell treatment, please share the word and make sure everyone that you know has had a chance to hear our story. Thank you for all that you have done!
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Update 17
Posted by Rob Van Hecke
13 months ago
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FOR IMMEDIATE RELEASE
Bo Cooper receives Car T Cell Therapy today in Bethesda, Maryland

(Fort McMurray, AB, January 22, 2016) – The spokesperson for the Bo Cooper Leukemia Treatment Fund is proud to announce that Cooper received the experimental Car T Cell CD 22+ therapy today at the National Institute of Health in Bethesda, Maryland.
Cooper, a Fort McMurray firefighter, is battling his third round with Acute Lymphoblastic Leukemia (ALL), and has been the focus of an intensive grassroots fundraising campaign to develop the funds needed for the experimental treatment available only in the USA.
“The Cooper family is pleased to announce that Bo has been fully accepted into the clinical trial in Maryland,” said Rob Van Hecke, spokesperson and primary organizer of the Bo Cooper Leukemia Treatment Fund. “There has been a few setbacks with Bo’s health in the last week which has delayed the process, however, today Doctors injected his engineered T Cells back into his body.”
“There are still many potential complications, so Bo isn’t out of the woods yet,” says Van Hecke. “There is still a potential that the CD 22+ is unsuccessful, and we might have to seek out an alternate CD 19+ treatment at a different facility. Only time will tell at this point”
Updates on fundraising as well as on Cooper’s medical progress will continue to be shared at the official Facebook page dedicated to the fundraising, which can be found on Facebook under “Bo Cooper Leukemia Treatment Fund”. The official GoFundMe account can be found at www.gofundme.com/bocooper
-30-
For more information:
Rob Van Hecke
rvanhecke@telus.net
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Help spread the word!
 7.9K shares on Facebook
Read a Previous Update
Travis Cramer Whalen
15 months ago

I would like to challenge all my brothers and sisters firefighters to dominate what they can towards Bo's fight

+ Read More
Sunny Batra
14 months ago
5
5

Please call me. I am scientist. I can help him. Thanks

+ Read More
Susan Lewis Daly-McKellar
14 months ago
4
4

I know what you are going through with this horrendous disease. My grandson fought ALL most of his life. He was 13 months old and had 2 bone marrow transplants, . Here in Canada they said there was nothing they could do for him anymore. There is an amazing place in Maryland called N.IH. where they are doing so much research on this disease. They were able to get my grandson back in remission with new trial drugs. He was awaiting his 3rd transplant but got a fungal infection that even the healthiest person couldn't fight. He passed away from this at 13 but I know he would have beat this. My husband was a volunteer firefighter and I am going to pass this on to his fellow station 5 friends. I wish you all the best and don't give up. You sound like a fighter just like Avery was. I just got married and he is in my profile picture and will be with us forever... Please listen to the song. This is my fight song... and may it give you the strength to beat this..I know this can be beaten...

+ Read More
Stefan Schipper
14 months ago
4
4

As someone who is of young age and batteling cancer aswell i wish you the best!

+ Read More
Jean Roberts
14 months ago
3
3

I am not a person with wealth, but I would be willing to test to see if I could be a compatible donor for you. God Bless you and your family.

+ Read More
Chris Shannahan
14 months ago
3
3

https://chivecharities.org/ Hey guys, tell your story here.

+ Read More
Joanne Lush Anderson
14 months ago
2
2

I know of someone in that trial right now . He just started . I hope it works for him and I pray that you raise enough money and it works for Bo. The person I know does have a blog to follow . It is pretty raw.

+ Read More
Linda M Cross
14 months ago
2
2

Not sure how far you are from Chilliwak but you need to be on Kangen water. Roger Gaudett beat stage 4 throat cancer and my nehew beat Adenocarcinoma and now my neice is battling stage 4 lung cancer and both have had outstanding results with kngen water. Nephews hasoutlived his death sentance by 18months now and our nieces tumot hss sunk half its size. You cold get it for free from Roger if you can get to Chilliwack. Phone # +1 604-819-1252. He has so much to gain if drinking only kangen water. Please call him or find Roger Gaudett on face book and ask him questions he loves helping people.

+ Read More
Steve Whynot
14 months ago
2
2

Can someone in contact with Rob please forward him the following links? Worth looking into... But just my two cents. http://youtu.be/elGywOBYpeo http://youtu.be/y6l84pQ1Pxk http://youtu.be/xVeyHsC4P20

+ Read More
Gerhard Brandt
14 months ago
2
2

Just wanted to thank my family for setting aside money meant for Christmas for Bo's treatment fund. Thank you

+ Read More
Deborah Howard
14 months ago
2
2

Wish bo and his family all the best in his treatmets and hope he can beat the cancer definitely know the feeling of having a family member having cancer and going through treatment

+ Read More
Kelly Kelley
14 months ago
2
2

Praying for you Bo! My husband also had ALL. I pray your outcome is better than his. God hear our prayers!

+ Read More
Sunny Batra
14 months ago
2
2

I am researching on alternative medicine from last 7 years.

+ Read More
Karen Younker
14 months ago
1
1

I am so happy and proud of all the support given.I do not know any of the family, or Bo himself, but am thinking of you alot and have been touched by this story. I am praying that Bo gets well soon with all of my heart.God bless!

+ Read More
Sharon Eileen
14 months ago

The Cross Cancer Institute in Edmonton has been using a protocol from Boston that has remarkable success.

+ Read More
Kathy Sprout
3 months ago

My sincere condolences.......

+ Read More
Erika Berger
3 months ago

My thoughts and prayers go out to you all during this very difficult time. His strength and tenacity was inspiring and the support of the community and those around the world was absolutely beautiful. He will live on in the hearts of many ♥ May you all find comfort in the masses that were beside you on your journey. ♥

+ Read More
Lisa Ansell
3 months ago

So so sorry to hear that Bo lost his battle :(. My thoughts and prayers are with the family and friends.

+ Read More
Eric Schram
11 months ago

great news

+ Read More
Peter Karlsson
14 months ago

please share it on facebook she need help please https://www.youcaring.com/i-was-diagnosed-with-cancer-480963#.VmzDpWqovwt.facebook

+ Read More

$308,659 of $500k goal

Raised by 2,394 people in 15 months
Created November 25, 2015
DF
$40
Doudiet Family
3 months ago

Bo has thouched our hearts and lives, our thoughts are with you all! XOXO

AB
$40
Ashley Brenton
3 months ago
PH
$200
Phill Howell
5 months ago
$140
Anonymous
5 months ago
PH
$100
Paula & Phil Harvie
6 months ago (Monthly Donation)
PF
$100
Paccagnan Family
6 months ago

Best wishes Bo and family. We're pulling for you.

DG
$100
Darryl Graham
6 months ago

I pray for you and your family to have strength for this difficult fight. I personally know it all to we'll. The firefighter family offers incredible support. Keep hope alive. SFD Ladder 11. Graham

BF
$50
Brandon Freeland
6 months ago
HB
$10
Hitesh Baveja
6 months ago
PH
$100
Paula & Phil Harvie
7 months ago (Monthly Donation)
1
1
Travis Cramer Whalen
15 months ago

I would like to challenge all my brothers and sisters firefighters to dominate what they can towards Bo's fight

+ Read More
Sunny Batra
14 months ago
5
5

Please call me. I am scientist. I can help him. Thanks

+ Read More
Susan Lewis Daly-McKellar
14 months ago
4
4

I know what you are going through with this horrendous disease. My grandson fought ALL most of his life. He was 13 months old and had 2 bone marrow transplants, . Here in Canada they said there was nothing they could do for him anymore. There is an amazing place in Maryland called N.IH. where they are doing so much research on this disease. They were able to get my grandson back in remission with new trial drugs. He was awaiting his 3rd transplant but got a fungal infection that even the healthiest person couldn't fight. He passed away from this at 13 but I know he would have beat this. My husband was a volunteer firefighter and I am going to pass this on to his fellow station 5 friends. I wish you all the best and don't give up. You sound like a fighter just like Avery was. I just got married and he is in my profile picture and will be with us forever... Please listen to the song. This is my fight song... and may it give you the strength to beat this..I know this can be beaten...

+ Read More
Stefan Schipper
14 months ago
4
4

As someone who is of young age and batteling cancer aswell i wish you the best!

+ Read More
Jean Roberts
14 months ago
3
3

I am not a person with wealth, but I would be willing to test to see if I could be a compatible donor for you. God Bless you and your family.

+ Read More
Chris Shannahan
14 months ago
3
3

https://chivecharities.org/ Hey guys, tell your story here.

+ Read More
Joanne Lush Anderson
14 months ago
2
2

I know of someone in that trial right now . He just started . I hope it works for him and I pray that you raise enough money and it works for Bo. The person I know does have a blog to follow . It is pretty raw.

+ Read More
Linda M Cross
14 months ago
2
2

Not sure how far you are from Chilliwak but you need to be on Kangen water. Roger Gaudett beat stage 4 throat cancer and my nehew beat Adenocarcinoma and now my neice is battling stage 4 lung cancer and both have had outstanding results with kngen water. Nephews hasoutlived his death sentance by 18months now and our nieces tumot hss sunk half its size. You cold get it for free from Roger if you can get to Chilliwack. Phone # +1 604-819-1252. He has so much to gain if drinking only kangen water. Please call him or find Roger Gaudett on face book and ask him questions he loves helping people.

+ Read More
Steve Whynot
14 months ago
2
2

Can someone in contact with Rob please forward him the following links? Worth looking into... But just my two cents. http://youtu.be/elGywOBYpeo http://youtu.be/y6l84pQ1Pxk http://youtu.be/xVeyHsC4P20

+ Read More
Gerhard Brandt
14 months ago
2
2

Just wanted to thank my family for setting aside money meant for Christmas for Bo's treatment fund. Thank you

+ Read More
Deborah Howard
14 months ago
2
2

Wish bo and his family all the best in his treatmets and hope he can beat the cancer definitely know the feeling of having a family member having cancer and going through treatment

+ Read More
Kelly Kelley
14 months ago
2
2

Praying for you Bo! My husband also had ALL. I pray your outcome is better than his. God hear our prayers!

+ Read More
Sunny Batra
14 months ago
2
2

I am researching on alternative medicine from last 7 years.

+ Read More
Karen Younker
14 months ago
1
1

I am so happy and proud of all the support given.I do not know any of the family, or Bo himself, but am thinking of you alot and have been touched by this story. I am praying that Bo gets well soon with all of my heart.God bless!

+ Read More
Sharon Eileen
14 months ago

The Cross Cancer Institute in Edmonton has been using a protocol from Boston that has remarkable success.

+ Read More
Kathy Sprout
3 months ago

My sincere condolences.......

+ Read More
Erika Berger
3 months ago

My thoughts and prayers go out to you all during this very difficult time. His strength and tenacity was inspiring and the support of the community and those around the world was absolutely beautiful. He will live on in the hearts of many ♥ May you all find comfort in the masses that were beside you on your journey. ♥

+ Read More
Lisa Ansell
3 months ago

So so sorry to hear that Bo lost his battle :(. My thoughts and prayers are with the family and friends.

+ Read More
Eric Schram
11 months ago

great news

+ Read More
Peter Karlsson
14 months ago

please share it on facebook she need help please https://www.youcaring.com/i-was-diagnosed-with-cancer-480963#.VmzDpWqovwt.facebook

+ Read More
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