Blueberry Creek Recovery Fund
My name is Nikki, my husband is Rory. Our necessity outweighs our embarrassment, and we're asking for help. I've been unable to work for the past three years due to chronic illness.
First it was a pinched sciatic nerve, which was due to a bulging disc.
Then the disc ruptured after a year of conservative treatment and I had to have a spinal fusion.
It has taken me a year and lots of physical therapy to be able to move like normal, but I've now been diagnosed with fibromyalgia and am in constant all over pain.
I started seeing a neurologist the begimning of August because I have chronic debilitating migraines now as well.
I'm waiting for a determination from social security on whether or not they deem me disabled.
We find ourselves short of air, and funds, and will be very grateful for any help you can provide.
I'm not sure if I updated since my diagnosis, but sometime in late May I was finally able to convince my doctor to do bloodwork on me. I'm not sure if she only tested for Rocky Mountain Spotted Fever, or if that's the only one that came back positive - when I asked for the paperwork for it, the nurse just printed the same information I got in the email saying I tested at 1:256 IgG. A positive current infection. And, bugs being what they are, it's doubtful that RMSF is the only co-infection that I have. I'd love to be able to pay for the whole range of tick panels through Lab Corps but I think those run around $300 - $600.
I felt a little better, but only minutely so. after the doxycycline, and seem to have nose dived now. I'm able to be awake for about 5 hours at a time before I crash. If I'm active and doing things, that time is even shorter. My constant pain keeps me in a fog. Which is probably a good thing, because it's also given me a much shorter fuse. I'm always readjusting what I'm doing to lessen the pain and frustration. I have a memory like a sieve.
As much as I love spending every day with Rory and Duchess, I wish I could be out earning money to make our life better. I can't do it, though.
I've not been able to see my specialists since June. There was a ray of sunshine in the middle of August when I got a phone call reminding me of an appointment with my neurologist for my botox. But they called back the next day and said that Medicare had still not approved it. It's been pretty unpleasant going without most of my medications but there's just no way we can afford them. They're not as helpful as I feel like being able to have water, electric and food is.
I had a friend gift me a partial bottle of 500mg CBD oil last month and it definitely helped with the nausea and being able to sleep, so it was nice while that lasted. It didn't seem to help with the pain, though, so I'm hoping to try a higher dose once my disabilty comes through and we can afford to buy some.
If anyone is able to donate toward getting me the care and medicine I desperately need, we would greatly appreciate it.
But, I digress. The appointments!
Sleep study consult this week.
Echocardiogram this week.
Botox with the neurologist next week.
Six of my care providers are 2 hours away. I only have two that are local. Thankfully, the car we borrow to get to my appointments gets pretty decent gas mileage so it costs ~$20 in gas there and back.
I got a sleep study referral from my primary doctor to try to figure out this chronic fatigue thing. It, of course, requires a consult first. The consult is Wednesday. Then later in the month, yet to be determined, the study itself. For that, we'll either need to look at a hotel for Rory overnight, or another 4 hour round trip to pick me up at some ungodly hour in the morning. I imagine the appointment to have the doctor tell me the results of the study is going to be next month.
The echo / ultrasound for this heart of mine, to hopefully make sure there's nothing physically wrong with it, is Friday. My heart has been fluttering and skipping beats for years. Never thought much of it. Until recently, I couldn't tell you one time to the next when it skipped beats. Now, it happens almost every day, and often takes my breath away.
I also have a 30 day heart monitor that I get to wear, until the 7th of next month, when I send it back to Houston.
At some point after sending the heart monitor back, I'll have an appointment with the cardiologist to go over the results. But the way it's set up, if there's anything that the monitor catches and flags, it goes to my Dr's office in real time, so it's not like he'll have to take days to go over all the data. If he sees something before my 30 days are up, he can schedule an appointment sooner. It's pretty neat.
My first botox appointment with my neurologist is next week. It will hopefully help reduce my daily migraines. My body has built a tolerance to the three migraine medications I've been on for almost a year now and no longer do much but take the edge off. I wake up with a migraine, I go to sleep with a migraine. It's really kind of a nightmare. They don't make sunglasses dark enough to suit me when I have to go into a store or public building.
If you're still with me, thank you for taking the time to read through to this point! It feels like the struggles and doctors appointments never end. I still have three or four to call and make appointments with for next month, to discuss results of tests and xrays, etc.. But those aren't the ones I'm concerned with right this moment.
The ones I'm concerned with are the ones that are set up, or are imminent, while I have no money to get to them, no car to be able to get a job to make money, and have yet to receive any notification about the possibility of a light at the end of the tunnel with social security approving me for disability. All I know is that, at some point, hopefully this year, I'll have a hearing in front of a tv screen to talk to a judge about my case.
I'm going to end this here. Thank you, again, for reading. Thank you so much from the bottom of my heart to everyone who has helped us these past 16, 18 months that I've had this set up. You have been life savers more than you'll ever know.
If all of you reading this can donate even $5, it would greatly help me continue on my path to getting better.
Last week I rescheduled all of my appointments that I'd put off since November when the car had to be parked because it wasn't safe to drive. I need to be able to keep them this time so that my doctors don't discontinue my care. I have friends and family that are able to take me to my local appointments, but the Little Rock and Hot Springs trips are too much for them, considering they all have smal kids and/or jobs during the week.
Please find it in your heart, if you have anything to spare, we could use the help. We already priced the front end kit that we need and it's going to be $400.
Thank you to EVERYONE who has helped! We're getting there! Hugs and beardy kisses!
I know how you feel...I've been in the same spot...I can not offer any funds at this time, all i can offer is prayers for you two and some advice. If you own your home the one that needs major repairs if you apply for Weatherization through CADC or USDA they weatherize your home by replacing windows floors depending on the contractor they use they even do electrical and roof repair/replacement. It's no charge to you as well. My husband used to work for a contractor that did the CADC repairs. I hope this helps.