Help Ben walk without pain

£34,975 of £55,000 goal

Raised by 921 people in 54 months
NHS England & our CCG will NOT FUND Ben's CRUCIAL & LIFE CHANGING treatment for his cerebral palsy. Without treatment Ben's muscles can't develop correctly as he grows leaving him in pain on a daily basis. We are FORCED to continue to try & raise £1,800 every MONTH to FUND this vital treatment for Ben because without it he faces a LIFE OF PAIN. The ballance on this page is the amount paid out so far on Ben's treatment & is not the balance of funds available. Ben has spastic diplegia cerebral palsy. He needed & was accepted by the NHS for SDR spinal surgery to permanently relieve his spasticity, remove the extreme muscle tightness, allow him to learn to walk, become independent & give him a BETTER QUALITY of life. After two years of pre op tests & treatment in preparation for his surgery, funding to the NHS was cut & Ben's life changing surgery was cancelled. We then received a BILL for £11,440 to be paid if the surgery was to go ahead as this was the amount of money that the NHS no longer had. We had a child fully prepared for major spinal surgery, in absolute agony because had been taken of all his pain meds in preparation for his surgery & no money to pay the bill with the NHS. We immediately sent up a national appeal. Ben was very lucky & an anomanous donator paid the balance with the NHS & Ben's surgery went ahead at the QMC NHS hospital. Ben went into hospital a very poorly disabled little boy. Just hour's after his surgery Ben got up & took his very first independent steps, the surgery was a complete success. Ben had his rehabilitation treatment plan set up, planned & began the very next day on the ward at the QMC with an NHS physiotherapist. Four day's later he WALKED out of hospital. Ben had only been home a few days when the NHS informed us that due to further funding cuts they would not now fund any of Ben's cerebral palsy treatment for his rehabilitation. We are left with no choice but to sorce private treatment. Every session of treatment costs £151.10 for the hour. It is crucial for Ben to receive two sessions of treatment a week until he stops growing to alow his muscles to develop correctly. All Ben has ever wanted is a pain free life. Ben is currently recovering from a hip dislocation. We haven't been able to afford the treatment just recently and this has resulted in excessive strain on his muscles and as a result Ben's hip rotated and dislocated. Home footage: https://youtu.be/I_2ZwKrWHc0 Watch Ben's BBC footage hear: https://m.facebook.com/story.php?story_fbid=10154130180044761&id=21263239760 Ben has a Facebook page & we keep it up dated on his story & progress: facebook.com/ben9baddeley/ Daily Mirror  http://www.mirror.co.uk/news/uk-news/i-want-normal-life-mirror-11309411 Ben's home video  https://m.facebook.com/story.php?story_fbid=2060205090882105&id=1440606732841947
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On Sunday Ben took part in our local half marathon to raise funds for his own cerebral palsy treatment.
This video shows Ben crossing the finish line on his own two feet!!
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Today is Ben's 15th birthday!!

Every year when it comes round to Ben's birthday I'm reminded of how close we were to loosing him during his birth.

But he was born fighting & has continued to fight all his life. We would like to share with you the very beginning of Ben's journey..

Amy was supposed to have a c-section. Due to Amy's small frame & myself being over 6 ft tall there was concerns that there might be complications if Amy was to deliver naturally & so a planned c-section was the safest & most practical route to take.

Amy went into early labour at 34 weeks. She was given an injection of steroids to help the babys lungs incase he was born that night. Everything seemed to settle down, the contractions stopped & Amy was sent home to rest.

But the contractions started again & for the next 3 weeks Amy was back an fourth to the hospital, in a lot of pain & a feeling that baby had dropped.

In hospital Amy explained that moving & walking had become extremely difficult & uncomfortable & that it felt as though the baby had dropped as she was feeling alot of pressure. She also explained that babys movements had definitely changed & were not as they had been.

At 37 weeks Amy went back into hospital with the same issues but this time the midwifes decided she was in labour. Despite the maternity records & all the planning done by the consultant it was decided by the staff working that evening that a C-Section was not necessary & Amy was to give birth naturally.

After a few difficult hours in labour & nothing progressing forward the midwife decided to break the waters & put a sensor on Ben's head to monitor his heart beat.
After another few hours things weren't going well. Amy was in labour but nothing was moving forward & so the midwife decided to call for a anethestist to give Amy an epidural, this took an anethestist 5 attempts to do because as Amy's contractions were coming as the doctor was attempting to put the needle in.
Only a few minutes after the epidural was in the situation got worse, Ben's heart beat had dropped & he had to be delivered there & then.

After a failed vontuse attempt a consultant was called in, Amy was injected with a local anaesthetic & a forceps delivery was attempted. It's the next few minutes of Ben's birth that horrified & petrified me. Amy's frame was just to small for the forceps, but by this point Ben's heart beat was falling dangerously low & Amy's condition was also worsening.
Amy had to be cut open to allow both forceps to be used & what really sticks out In my mind is the amount of blood Amy was loosing.

At this point the consultant realised that Ben was & had been stuck in Amy's hips. Amy was getting really weak & wasn't with it at all.
I had to watch as the consultant tried to pull Ben out with the forceps while the midwifes held Amy on the bed.

When Ben was finally born he was blue, hardly breathing & was taken away to be given oxygen & be treated by an emergency team. Once he was stable he was brought back to his mum inside a heated unit. Amy had to have alot of stitches & was put on a drip.

For 6 months after Ben was born Amy had no feeling below the waist, everything from the waist down was numb & although the doctors reassured her that this was nothing to worry about & can happen after an epidural, the feeling in her legs has never completely returned.

Ben had an MRI scan just before his 1st birthday & he was diagnosed with Spastic Diplegia Cerebral Palsy just after his 1st birthday. He has scarring to the brain as a result of lack of oxygen.

Ben had already gone through so much just to be born, we made a promise to Ben when he was a tiny baby that we would always fight for him. We had no idea at the time just how much he would go through as a child, Ben's birth was a fight & ever since we have been fighting for him. We are trying our best to keep that promise to our little boy.

Gary - Ben's Dad
#TeamBen
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This is Ben's REALITY he battles agonising PAIN day & night!!.

It was midnight, he could barely stay awake but he said there was no way he would get any sleep at all if he didn't stretch.

Its Christmas & he's in agony! He needs the laxity in this ligament reduced & treated but we just cant afford the procedure yet.
At around midnight on Sunday an absolutely exhausted Ben was up & really struggling with his calf muscles.

Being of his feet with his knee & hips meant that the years of muscle tone he had built up has wasted away.
Whilst he waits until we can afford to get the damage to his anterior cruciate ligament treated as it was damaged due to his knee cap dislocating, he is plodding on as best he can.
However with little muscle tone in his legs even the shortest of walks can hurt like crazy for him because his calf muscles are exceeding there current capability as there not strong enough to take the pressure.
Last night his muscles were not happy & although he was shattered & struggling to stay awake he was desperate to stretch out & try to relieve some of the tightness & pain.

It was a long night for this little man!

Find out more about Ben hear
https://www.facebook.com/ben9baddeley/
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The result of suffering knee cap dislocation. The regression & weakness is clear to see

A combination of his hip injury/shallowing of the hip, dislocated knee cap/overstated ligament & muscle wastage from 12 weeks of his feet with the injuries have resulted in massive deterioration. His legs & feet are now twisting inwards because he doesn't have the strength to control his stepping.

Ben has had a terrible few months all because of lack of treatment. We haven't been able to fund the treatment he needs just recently due to a dip in fundraising. His body buckled under the strain while resulted in serious injuries one of which is permanent damage.

Due to him being of his feet for so long with the injuries & us having to pay private to get the injuries treated as the NHS couldn't help, his quad muscles have wasted & become very weak & he is struggling to walk.

Ben suffered a full pelvic tilt forcing his hips to dislocate. As a result of this he now has a shallowing of the right hip. Effectively the ball of the hip is now loose in the socket.

He then dislocated his knee cap resulting in the ligament that holds the knee cap becoming over stretched. This now requires a surgical procedure to tighten the ligament so that he regains the full use of his leg. This procedure IS NOT funded on the NHS.

In this video you can clearly see the weakness & deterioration in his right leg. His leg & foot is now twisting inwards making it extremely difficult for him to walk.

#TeamBen
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Read a Previous Update
Hilary Wilson
26 months ago
1
1

Try and see Elaine Owen at London Orthotics

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Steven Blake
36 months ago
1
1

Hi Ben, I cannot help with resolving your illness. I do, however, help people lessen their pain. I would be willing to try this for you for free, it often gets results that are permanent and certainly having less pain would make your life better. This is a genuine offer, please go to http://stevenblakemba.com/testimonials to see what my clients say. You can find my contact details on there. Wishing you well and congratulations on your bravery.

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Linda Stockton
36 months ago

hi ben and your family sorry I am not to good with the use of the internet this is not an hoxt message I have been looking through my email and I see you have received a message from a very close friend of mine Charles Salvador if you reply to this message which I hope you do then maybe we can meet up my son lives in s.o.t will wait to hear from you or your parents you take care hopefuly will meet you soon xxx

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Alan Hawkins
38 months ago

Good luck Ben you shouldn't have to go through this process, stay strong young man.

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Pauline Heywood
46 months ago

Hi,guys,please help us raise money to help with Bens cause. His mum desperately needs the £2000 a month to cover the cost of his treatment.normally we offer all our customers a 10% discount code with every they make.all we are asking you to do,is notmuse the code when purchasing from the site and the 10% will then go towards Bens treatment.if you do want to use the code then you are more than welcome to. http://topgear-eliquids.co.uk

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Lynn Morris
47 months ago

Met Ben and his family on Saturday when I was doing a stall at their Family Fun Day. Such a pleasure to see him and how well he is doing thanks to all the fundraising and donations. Keep up the support - he deserves it! :)

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£34,975 of £55,000 goal

Raised by 921 people in 54 months
Created February 1, 2015
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£15
Ben Pearce
24 days ago

Hello again. I'll try to continue contributing ever pay day. Ben

£20
Sheila Lewis
26 days ago
BP
£15
Ben Pearce
1 month ago

Ben is the best name ever!!

AW
£20
Aimee Webb
1 month ago

You are an inspiration Ben I showed my son who also has cp he was amazed well done on the marathon hope you got a medal your awesome dude

£5
Laura Jane Ramsden
1 month ago
CW
£10
Cameron Waddle
1 month ago
PD
£10
Philip Dawid
1 month ago
£25
Anonymous
1 month ago
KB
£5
Kirstie Banner
1 month ago
JA
£10
Jane Anderson
1 month ago

Good luck with the marathon Ben, your an inspiration to others.keep up the good work

Hilary Wilson
26 months ago
1
1

Try and see Elaine Owen at London Orthotics

+ Read More
Steven Blake
36 months ago
1
1

Hi Ben, I cannot help with resolving your illness. I do, however, help people lessen their pain. I would be willing to try this for you for free, it often gets results that are permanent and certainly having less pain would make your life better. This is a genuine offer, please go to http://stevenblakemba.com/testimonials to see what my clients say. You can find my contact details on there. Wishing you well and congratulations on your bravery.

+ Read More
Linda Stockton
36 months ago

hi ben and your family sorry I am not to good with the use of the internet this is not an hoxt message I have been looking through my email and I see you have received a message from a very close friend of mine Charles Salvador if you reply to this message which I hope you do then maybe we can meet up my son lives in s.o.t will wait to hear from you or your parents you take care hopefuly will meet you soon xxx

+ Read More
Alan Hawkins
38 months ago

Good luck Ben you shouldn't have to go through this process, stay strong young man.

+ Read More
Pauline Heywood
46 months ago

Hi,guys,please help us raise money to help with Bens cause. His mum desperately needs the £2000 a month to cover the cost of his treatment.normally we offer all our customers a 10% discount code with every they make.all we are asking you to do,is notmuse the code when purchasing from the site and the 10% will then go towards Bens treatment.if you do want to use the code then you are more than welcome to. http://topgear-eliquids.co.uk

+ Read More
Lynn Morris
47 months ago

Met Ben and his family on Saturday when I was doing a stall at their Family Fun Day. Such a pleasure to see him and how well he is doing thanks to all the fundraising and donations. Keep up the support - he deserves it! :)

+ Read More
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