Help Ben walk without pain
NHS STILL REFUSE TO FUND BEN'S VITAL TREATMENT FOR CEREBRAL PALSY.
Without this treatment Ben's muscles can't develop correctly as he grows leaving him in pain on a daily basis.
WE ARE FORCED TO CONTINUE TO TRY & RAISE 2K A MONTH TO FUND THE COST OF BEN'S REHAB.
The ballance on this page is the amount paid out so far on Ben's treatment & is not the balance of funds available.
Ben currently has 3 sessions of treatment funded & paid for, this is one week of treatment funded.
Ben has Spastic Diplegia Cerebral Palsy.
He needed spinal surgery to relieve his spasticity, remove the extreme muscle tightness, stop the constant spasms, ease the horrendous & constant pain, give him a better quality of life & alow him a chance to walk.
The NHS accepted him for the SDR spinal surgery & he was put through two years of Pre-op tests & treatment all covered by the NHS.
One week prior to his surgery the funds were cut to CP patients & Ben's life changing surgery was cancelled & we received a bill for £11,440 to be paid for the surgery to go ahead.
He had been fully prepared for this surgery including being taken off all his pain meds leaving him in the worst state that we had ever seen him in.
We immediately sent up an appeal & he was very lucky & an anomanous donator paid the balance with the NHS.
Ben's surgery went ahead at the QMC. The NHS surgeon & his team did an amazing job & Ben's rehab was planned out prior to us leaving the hospital.
However the NHS later informed us that Ben was now registered as a private patient & nether NHS England or the CCG would give funding for Ben's continuing treatment for the vital rehab.
It costs £150 per treatment session & Ben requires this 3 times a week to progress forward & to also manage the weak muscle tissue around his pelvis of which is still developing & gaining tone to become strong.
As the muscles around Ben's pelvis are currently still weak & still getting stronger, his hips do fall out of alignment & cause him pain. This needs to be treated as soon as possible to realine the hips & reduce any risk of further damage.
The cost of treatment adds up to just under 2k every month & we are struggling to find the money.
All that Ben has ever wanted is to walk without pain & although he has been doing amazingly well he will not process without the this vital treatment.
We continue to fight the system & continue to appeal to the CCG & NHS England for help with funding Ben's treatment.
Ben took his appeal for treatment to Downing St & you can watch the BBC footage hear:
Ben has a Facebook page & we keep it up dated on his story & progress:
Victoria Derbyshire show:
All we ask is for people to share Ben's story & give him a fighting chance of raising the funds he despiratly needs to pay for the vital treatment to live a pain free life.
We really appreciate everyone's time in reading this.
#TeamBen #SaveOurNHS #BensVoice
#TeamBen #SaveOurNHS #BensVoice
hi ben and your family sorry I am not to good with the use of the internet this is not an hoxt message I have been looking through my email and I see you have received a message from a very close friend of mine Charles Salvador if you reply to this message which I hope you do then maybe we can meet up my son lives in s.o.t will wait to hear from you or your parents you take care hopefuly will meet you soon xxx
Hi Ben, I cannot help with resolving your illness. I do, however, help people lessen their pain. I would be willing to try this for you for free, it often gets results that are permanent and certainly having less pain would make your life better. This is a genuine offer, please go to http://stevenblakemba.com/testimonials to see what my clients say. You can find my contact details on there. Wishing you well and congratulations on your bravery.
Good luck Ben you shouldn't have to go through this process, stay strong young man.
Hi,guys,please help us raise money to help with Bens cause. His mum desperately needs the £2000 a month to cover the cost of his treatment.normally we offer all our customers a 10% discount code with every they make.all we are asking you to do,is notmuse the code when purchasing from the site and the 10% will then go towards Bens treatment.if you do want to use the code then you are more than welcome to. http://topgear-eliquids.co.uk
Met Ben and his family on Saturday when I was doing a stall at their Family Fun Day. Such a pleasure to see him and how well he is doing thanks to all the fundraising and donations. Keep up the support - he deserves it! :)