Help Ben walk without pain

£34,290 of £55,000 goal

Raised by 890 people in 47 months
NHS England & our CCG will NOT FUND Ben's CRUCIAL & LIFE CHANGING treatment for his cerebral palsy. Without treatment Ben's muscles can't develop correctly as he grows leaving him in pain on a daily basis. We are FORCED to continue to try & raise £1,800 every MONTH to FUND this vital treatment for Ben because without it he faces a LIFE OF PAIN. The ballance on this page is the amount paid out so far on Ben's treatment & is not the balance of funds available. Ben has spastic diplegia cerebral palsy. He needed & was accepted by the NHS for SDR spinal surgery to permanently relieve his spasticity, remove the extreme muscle tightness, allow him to learn to walk, become independent & give him a BETTER QUALITY of life. After two years of pre op tests & treatment in preparation for his surgery, funding to the NHS was cut & Ben's life changing surgery was cancelled. We then received a BILL for £11,440 to be paid if the surgery was to go ahead as this was the amount of money that the NHS no longer had. We had a child fully prepared for major spinal surgery, in absolute agony because had been taken of all his pain meds in preparation for his surgery & no money to pay the bill with the NHS. We immediately sent up a national appeal. Ben was very lucky & an anomanous donator paid the balance with the NHS & Ben's surgery went ahead at the QMC NHS hospital. Ben went into hospital a very poorly disabled little boy. Just hour's after his surgery Ben got up & took his very first independent steps, the surgery was a complete success. Ben had his rehabilitation treatment plan set up, planned & began the very next day on the ward at the QMC with an NHS physiotherapist. Four day's later he WALKED out of hospital. Ben had only been home a few days when the NHS informed us that due to further funding cuts they would not now fund any of Ben's cerebral palsy treatment for his rehabilitation. We are left with no choice but to sorce private treatment. Every session of treatment costs £151.10 for the hour. It is crucial for Ben to receive two sessions of treatment a week until he stops growing to alow his muscles to develop correctly. All Ben has ever wanted is a pain free life. Ben is currently recovering from a hip dislocation. We haven't been able to afford the treatment just recently and this has resulted in excessive strain on his muscles and as a result Ben's hip rotated and dislocated. Home footage: https://youtu.be/I_2ZwKrWHc0 Watch Ben's BBC footage hear: https://m.facebook.com/story.php?story_fbid=10154130180044761&id=21263239760 Ben has a Facebook page & we keep it up dated on his story & progress: facebook.com/ben9baddeley/ Daily Mirror  http://www.mirror.co.uk/news/uk-news/i-want-normal-life-mirror-11309411 Ben's home video  https://m.facebook.com/story.php?story_fbid=2060205090882105&id=1440606732841947
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Ben's fundraising Christmas Card's
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JOE'S SNOWDON CHALLENGE

Joe is TEN YEARS OLD & is climbing MOUNT SNOWDON in aid of Ben's treatment.
Joe who has a disability of his own & understands how important physiotherapy treatment is & the huge benefit it has for a better quality of life. This is why this incredibly brave & inspirational little boy is taking on this massive challenge.

please sponsor Joe hear!
climbing snowdon for Ben #TeamBen
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This is INFURIATING to say the least!!.....

The NHS give us positive news with one hand & take it away with the other causing SERIOUSE health DEBILITATING problems for our son.

Ben's MRI scan results of his knee from the 5th of October have STILL NOT been processed.
The devastating reality of the situation is that Ben's quad muscles have now wasted away.

As there is a high chance of damage to his ligaments &/or soft tissue Ben has to stay of his feet as much as possible leaving him in a hugely concerning predicament until his results come through.
Ben has now been of his feet as well as unable to continue his strengthening programme ever since he dislocated his knee cap on the 31st of July 12 week's ago.
During the 12 week's his quad muscles have wasted away. It is painful for him as he becomes weaker with every day that goes by.
All his hard work & dedication in building his muscles has deteriorated & he is left in limbo waiting for his scan result.

The pediatric surgeon at the fracture clinic cant even pre-book him an appointment to give us the results until they have been processed & are available meaning he has an even longer wait for the results.
The situation is truly devastating & extremely frustrating for Ben & it's just heartbreaking to see him suffering with the pain of wasted muscle tissue & loosing the abilities that he worked so hard to achieve.

We were only in a meeting with the CCG bosses on the 26th of September & they reassured us that they would find out where in the system the results are & have the report processed as a matter of urgency as debilitating health concern.
However the wait continues!

If there is damage to Ben's knee then it needs treating asap but any treatment is already delayed by 12 week's since the injury occurred 31st of July.
Every day that his results are not available is further delaying any possible treatment needed meaning the outcome of his predicament is looking bleaker by the day.
We have looked at getting a private MRI scan as the results would be available 48 hours after the scan. But the cost is anywhere between £200 & £500.

We are obviously praying that the results give him the all clear to allow him to get back to his strength training & intensive physio to gain back his lost strength however if there is damage the longer he waits the worse the out come will be.
This is really starting to get Ben down, the whole situation is driving us crazy & wereally don't know what to do for the best.
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At the very beginning of the school summer holidays Ben slipped on the stairs & dislocated his knee cap. As if that wasn't bad enough he then had to cope with a build build up of fluid under his knee cap.
It couldn't have come at a worse enough time as his funds for treatment are almost dried up.
He is really struggling with the pain
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Read a Previous Update
Hilary Wilson
19 months ago
1
1

Try and see Elaine Owen at London Orthotics

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Steven Blake
29 months ago
1
1

Hi Ben, I cannot help with resolving your illness. I do, however, help people lessen their pain. I would be willing to try this for you for free, it often gets results that are permanent and certainly having less pain would make your life better. This is a genuine offer, please go to http://stevenblakemba.com/testimonials to see what my clients say. You can find my contact details on there. Wishing you well and congratulations on your bravery.

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Linda Stockton
28 months ago

hi ben and your family sorry I am not to good with the use of the internet this is not an hoxt message I have been looking through my email and I see you have received a message from a very close friend of mine Charles Salvador if you reply to this message which I hope you do then maybe we can meet up my son lives in s.o.t will wait to hear from you or your parents you take care hopefuly will meet you soon xxx

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Alan Hawkins
31 months ago

Good luck Ben you shouldn't have to go through this process, stay strong young man.

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Pauline Heywood
39 months ago

Hi,guys,please help us raise money to help with Bens cause. His mum desperately needs the £2000 a month to cover the cost of his treatment.normally we offer all our customers a 10% discount code with every they make.all we are asking you to do,is notmuse the code when purchasing from the site and the 10% will then go towards Bens treatment.if you do want to use the code then you are more than welcome to. http://topgear-eliquids.co.uk

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Lynn Morris
40 months ago

Met Ben and his family on Saturday when I was doing a stall at their Family Fun Day. Such a pleasure to see him and how well he is doing thanks to all the fundraising and donations. Keep up the support - he deserves it! :)

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£34,290 of £55,000 goal

Raised by 890 people in 47 months
Created February 1, 2015
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Hilary Wilson
19 months ago
1
1

Try and see Elaine Owen at London Orthotics

+ Read More
Steven Blake
29 months ago
1
1

Hi Ben, I cannot help with resolving your illness. I do, however, help people lessen their pain. I would be willing to try this for you for free, it often gets results that are permanent and certainly having less pain would make your life better. This is a genuine offer, please go to http://stevenblakemba.com/testimonials to see what my clients say. You can find my contact details on there. Wishing you well and congratulations on your bravery.

+ Read More
Linda Stockton
28 months ago

hi ben and your family sorry I am not to good with the use of the internet this is not an hoxt message I have been looking through my email and I see you have received a message from a very close friend of mine Charles Salvador if you reply to this message which I hope you do then maybe we can meet up my son lives in s.o.t will wait to hear from you or your parents you take care hopefuly will meet you soon xxx

+ Read More
Alan Hawkins
31 months ago

Good luck Ben you shouldn't have to go through this process, stay strong young man.

+ Read More
Pauline Heywood
39 months ago

Hi,guys,please help us raise money to help with Bens cause. His mum desperately needs the £2000 a month to cover the cost of his treatment.normally we offer all our customers a 10% discount code with every they make.all we are asking you to do,is notmuse the code when purchasing from the site and the 10% will then go towards Bens treatment.if you do want to use the code then you are more than welcome to. http://topgear-eliquids.co.uk

+ Read More
Lynn Morris
40 months ago

Met Ben and his family on Saturday when I was doing a stall at their Family Fun Day. Such a pleasure to see him and how well he is doing thanks to all the fundraising and donations. Keep up the support - he deserves it! :)

+ Read More
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