Help Ben walk without pain

£34,770 of £55,000 goal

Raised by 906 people in 52 months
NHS England & our CCG will NOT FUND Ben's CRUCIAL & LIFE CHANGING treatment for his cerebral palsy. Without treatment Ben's muscles can't develop correctly as he grows leaving him in pain on a daily basis. We are FORCED to continue to try & raise £1,800 every MONTH to FUND this vital treatment for Ben because without it he faces a LIFE OF PAIN. The ballance on this page is the amount paid out so far on Ben's treatment & is not the balance of funds available. Ben has spastic diplegia cerebral palsy. He needed & was accepted by the NHS for SDR spinal surgery to permanently relieve his spasticity, remove the extreme muscle tightness, allow him to learn to walk, become independent & give him a BETTER QUALITY of life. After two years of pre op tests & treatment in preparation for his surgery, funding to the NHS was cut & Ben's life changing surgery was cancelled. We then received a BILL for £11,440 to be paid if the surgery was to go ahead as this was the amount of money that the NHS no longer had. We had a child fully prepared for major spinal surgery, in absolute agony because had been taken of all his pain meds in preparation for his surgery & no money to pay the bill with the NHS. We immediately sent up a national appeal. Ben was very lucky & an anomanous donator paid the balance with the NHS & Ben's surgery went ahead at the QMC NHS hospital. Ben went into hospital a very poorly disabled little boy. Just hour's after his surgery Ben got up & took his very first independent steps, the surgery was a complete success. Ben had his rehabilitation treatment plan set up, planned & began the very next day on the ward at the QMC with an NHS physiotherapist. Four day's later he WALKED out of hospital. Ben had only been home a few days when the NHS informed us that due to further funding cuts they would not now fund any of Ben's cerebral palsy treatment for his rehabilitation. We are left with no choice but to sorce private treatment. Every session of treatment costs £151.10 for the hour. It is crucial for Ben to receive two sessions of treatment a week until he stops growing to alow his muscles to develop correctly. All Ben has ever wanted is a pain free life. Ben is currently recovering from a hip dislocation. We haven't been able to afford the treatment just recently and this has resulted in excessive strain on his muscles and as a result Ben's hip rotated and dislocated. Home footage: https://youtu.be/I_2ZwKrWHc0 Watch Ben's BBC footage hear: https://m.facebook.com/story.php?story_fbid=10154130180044761&id=21263239760 Ben has a Facebook page & we keep it up dated on his story & progress: facebook.com/ben9baddeley/ Daily Mirror  http://www.mirror.co.uk/news/uk-news/i-want-normal-life-mirror-11309411 Ben's home video  https://m.facebook.com/story.php?story_fbid=2060205090882105&id=1440606732841947
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This is Ben's REALITY he battles agonising PAIN day & night!!.

It was midnight, he could barely stay awake but he said there was no way he would get any sleep at all if he didn't stretch.

Its Christmas & he's in agony! He needs the laxity in this ligament reduced & treated but we just cant afford the procedure yet.
At around midnight on Sunday an absolutely exhausted Ben was up & really struggling with his calf muscles.

Being of his feet with his knee & hips meant that the years of muscle tone he had built up has wasted away.
Whilst he waits until we can afford to get the damage to his anterior cruciate ligament treated as it was damaged due to his knee cap dislocating, he is plodding on as best he can.
However with little muscle tone in his legs even the shortest of walks can hurt like crazy for him because his calf muscles are exceeding there current capability as there not strong enough to take the pressure.
Last night his muscles were not happy & although he was shattered & struggling to stay awake he was desperate to stretch out & try to relieve some of the tightness & pain.

It was a long night for this little man!

Find out more about Ben hear
https://www.facebook.com/ben9baddeley/
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The result of suffering knee cap dislocation. The regression & weakness is clear to see

A combination of his hip injury/shallowing of the hip, dislocated knee cap/overstated ligament & muscle wastage from 12 weeks of his feet with the injuries have resulted in massive deterioration. His legs & feet are now twisting inwards because he doesn't have the strength to control his stepping.

Ben has had a terrible few months all because of lack of treatment. We haven't been able to fund the treatment he needs just recently due to a dip in fundraising. His body buckled under the strain while resulted in serious injuries one of which is permanent damage.

Due to him being of his feet for so long with the injuries & us having to pay private to get the injuries treated as the NHS couldn't help, his quad muscles have wasted & become very weak & he is struggling to walk.

Ben suffered a full pelvic tilt forcing his hips to dislocate. As a result of this he now has a shallowing of the right hip. Effectively the ball of the hip is now loose in the socket.

He then dislocated his knee cap resulting in the ligament that holds the knee cap becoming over stretched. This now requires a surgical procedure to tighten the ligament so that he regains the full use of his leg. This procedure IS NOT funded on the NHS.

In this video you can clearly see the weakness & deterioration in his right leg. His leg & foot is now twisting inwards making it extremely difficult for him to walk.

#TeamBen
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Ben's fundraising Christmas Card's
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JOE'S SNOWDON CHALLENGE

Joe is TEN YEARS OLD & is climbing MOUNT SNOWDON in aid of Ben's treatment.
Joe who has a disability of his own & understands how important physiotherapy treatment is & the huge benefit it has for a better quality of life. This is why this incredibly brave & inspirational little boy is taking on this massive challenge.

please sponsor Joe hear!
climbing snowdon for Ben #TeamBen
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Read a Previous Update
Hilary Wilson
24 months ago
1
1

Try and see Elaine Owen at London Orthotics

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Steven Blake
34 months ago
1
1

Hi Ben, I cannot help with resolving your illness. I do, however, help people lessen their pain. I would be willing to try this for you for free, it often gets results that are permanent and certainly having less pain would make your life better. This is a genuine offer, please go to http://stevenblakemba.com/testimonials to see what my clients say. You can find my contact details on there. Wishing you well and congratulations on your bravery.

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Linda Stockton
33 months ago

hi ben and your family sorry I am not to good with the use of the internet this is not an hoxt message I have been looking through my email and I see you have received a message from a very close friend of mine Charles Salvador if you reply to this message which I hope you do then maybe we can meet up my son lives in s.o.t will wait to hear from you or your parents you take care hopefuly will meet you soon xxx

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Alan Hawkins
36 months ago

Good luck Ben you shouldn't have to go through this process, stay strong young man.

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Pauline Heywood
44 months ago

Hi,guys,please help us raise money to help with Bens cause. His mum desperately needs the £2000 a month to cover the cost of his treatment.normally we offer all our customers a 10% discount code with every they make.all we are asking you to do,is notmuse the code when purchasing from the site and the 10% will then go towards Bens treatment.if you do want to use the code then you are more than welcome to. http://topgear-eliquids.co.uk

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Lynn Morris
45 months ago

Met Ben and his family on Saturday when I was doing a stall at their Family Fun Day. Such a pleasure to see him and how well he is doing thanks to all the fundraising and donations. Keep up the support - he deserves it! :)

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£34,770 of £55,000 goal

Raised by 906 people in 52 months
Created February 1, 2015
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BP
£5
B Patel
14 days ago
£20
Sheila Lewis
25 days ago
TP
£15
Trevor Pearce
1 month ago
£20
Sheila Lewis
1 month ago
MC
£20
Mark Cobbold
1 month ago
RS
£20
Roy Stubbs
2 months ago

Hi Ben, I read your story on the Sentinel Football Charity Competitions fb page, I hope you and your parents reach your total. Best Wishes.

£30
Richard Thornburgh
3 months ago
£10
Anonymous
3 months ago
JE
£50
James Elliott
3 months ago
MM
£20
Max Moscrop
3 months ago

I support Ben because he so deserves it.

Hilary Wilson
24 months ago
1
1

Try and see Elaine Owen at London Orthotics

+ Read More
Steven Blake
34 months ago
1
1

Hi Ben, I cannot help with resolving your illness. I do, however, help people lessen their pain. I would be willing to try this for you for free, it often gets results that are permanent and certainly having less pain would make your life better. This is a genuine offer, please go to http://stevenblakemba.com/testimonials to see what my clients say. You can find my contact details on there. Wishing you well and congratulations on your bravery.

+ Read More
Linda Stockton
33 months ago

hi ben and your family sorry I am not to good with the use of the internet this is not an hoxt message I have been looking through my email and I see you have received a message from a very close friend of mine Charles Salvador if you reply to this message which I hope you do then maybe we can meet up my son lives in s.o.t will wait to hear from you or your parents you take care hopefuly will meet you soon xxx

+ Read More
Alan Hawkins
36 months ago

Good luck Ben you shouldn't have to go through this process, stay strong young man.

+ Read More
Pauline Heywood
44 months ago

Hi,guys,please help us raise money to help with Bens cause. His mum desperately needs the £2000 a month to cover the cost of his treatment.normally we offer all our customers a 10% discount code with every they make.all we are asking you to do,is notmuse the code when purchasing from the site and the 10% will then go towards Bens treatment.if you do want to use the code then you are more than welcome to. http://topgear-eliquids.co.uk

+ Read More
Lynn Morris
45 months ago

Met Ben and his family on Saturday when I was doing a stall at their Family Fun Day. Such a pleasure to see him and how well he is doing thanks to all the fundraising and donations. Keep up the support - he deserves it! :)

+ Read More
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