Help Baby Noles Save His Sight

$15,360 of $15,000 goal

Raised by 294 people in 33 months
Jon Desmond
on behalf of Matthew Desmond
 WINDHAM, ME
Nolan Desmond was born in February 2016 to the loving parents Matt Desmond & Brittany Bateman. Ever since he was born he has melted everyone's heart he has met. He is an extremely happy, bubbly baby who can't help but make everyone else smile when they see his huge dimples and the warmth/brightness that radiates from his eyes . Nolan really lights up every room he is in.

Not too long after birth Matt and Brittany noticed that Nolans eyes would irregularly flutter or roll. They took Nolan to several doctors to try and figure out what could be causing this to happen with his eyes. Up until last week doctors attributed the eye anomalies to Nolans reaction to the extreme acid reflux he was having, but during a routine check up last week the nurse noticed something off and sent the family of three to an eye specialist.

No one knew what to expect from the eye specialist, but the nurse had mentioned cataracts. After some test were preformed, Matt and Brittany got news no parents, or anyone for that matter, wants to hear: "We think Nolan has tumors in both of his eyes". The technical diagnosis is Bilateral Retinoblastoma. This is a type of cancer that forms tumors on the retena of the eye, and in this case it is both eyes.

Due to the diagnosis Nolan was sent to a specialist in Boston, who confirmed the findings. Nolan has a 7-8mm tumor on each retena. As of right now his eye sight is good in his right eye, but has deteriorated vision in his left eye. During exploration 4 other small tumors were found in his eyes, but those where able to be frozen off.

Now Nolan is facing 6 months of chemo treatments to help save his vision. During this time Matt and Brittany will have to regularly travel to Boston and take time off from work. The next 6 months are going to be a trying time for this young family, I know nothing is going to make this easier for them, but maybe we all can make it so that they at least don't have to worry about where money will come from for travel, hotels, food, missing work, and medical costs.

Please help in anyway that you can, the Bateman and Desmond families appreciate any and all donations, love, thoughts, and prayers! 

Update will regularly be posted!
13646857_1470923716.2758_funddescription
13646857_1470923736.3709_funddescription
+ Read More
From matt and Brittany

UPDATE:
Whereas we can't "officially" announce noles cancer free until he has reached two years with no new growth or changes, he is making amazing progress. We are more than happy to announce that he is all done with treatments, and will only need checkups here on out! We really couldn't have asked for better news. Our little man is on the road to recovery!

Thank you everyone for continuing to pray, and send positive wishes! It really has helped our family stay strong throughout all of this. #nolanstrong #retinoblastomawarrior #kickcancersbutt #WEDIDIT
+ Read More
Noles is officially done with radiation! He rang the bell on Monday! Ringing the bell means he is finished with his treatment plan. We are all so excited. It's been a long, no so easy 8 months for all of us, but we did it! He is such a strong little man, and truly an inspiration to everyone. It's amazing to us how even through something so tough and painful, he still kept that contagious smile on everyday! Nolan has an appointment in a week with his ophthalmologist. There they will check the progress and hopefully finally announce him cancer free! Thank you to everyone that is still following noles story, and continuing to pray for the little man! Fingers crossed that we get the news we've all been waiting to hear in a week!
#nolanstrong #retinoblastomawarrior #kickcancersbutt #prayersfornolan
+ Read More
Update:
Nolan starts his last cycle of chemo therapy tomorrow! His tumors have shrunk significantly, and responded to the chemo exactly how the doctors had hoped. Although he will be done with his chemo, we were told yesterday that Noles will now need 25 cycles of radiation which will take place in a 5 week span, daily. During this time the three of us will be living in Boston. This is definitely going to be a tough couple months on all of us, but at the end of the radiation cycles the doctors believe that Nolan will be CANCER FREE!

Keep on fighting little man, you are so amazingly strong and truly an inspiration to all around you. We love you Nolan, mama and daddy are so proud of you, and your never ending strength and smiles!

#nolanstrong #retinoblastomawarrior #kickcancersbutt #prayersfornolan
+ Read More
From Brittany and Matt
UPDATE:
Nolan had his 3rd exam under anesthesia today. He is responding well to the treatment. Both of his tumors have went from 7 and 8mm down to 3mm just after two cycles. No new tumors have formed, and both of the optic nerves are now visible with no invasion! Things are really looking up. I can't begin to express how happy we are about this good news, and how proud we are of our little man for being such a strong warrior. To those of you who are still following Nolan's story and continuing to send healing thoughts, and prayers, thank you so much. Lots of love from the 3 of us! ❤️❤️

#nolanstrong #retinoblastomawarrior #prayersfornolan #kickcancersbutt
+ Read More
Read a Previous Update
Mitch Tarr
33 months ago
1
1

Great photos! Thank you for sharing! Thoughts and prayers are with you all. Mitch PEK '79

+ Read More

$15,360 of $15,000 goal

Raised by 294 people in 33 months
Created August 11, 2016
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
$20
Glenice Stover
25 months ago
DT
$75
Dana Thurston
25 months ago

Nolan, Matt, Brittney - You guys are in my thoughts daily. Keep fighting. Keep smiling. Love Dana & Janet

JS
$60
John Scott
26 months ago
AC
$20
Ali Cox
26 months ago
JW
$50
Jenny and Ed Wojenski
27 months ago

Making a donation in honor of Nolan's first birthday. Happy Birthday Nolan! <3<3

CV
$50
Cindy Veilleux
27 months ago

Hugs and Prayers to you all. So glad to hear he is responding so well

EF
$25
Erin Flatley
27 months ago
NG
$50
Nancy Gagnon
27 months ago

$10
Anonymous
27 months ago
$50
Kimberly Eastup
27 months ago
Mitch Tarr
33 months ago
1
1

Great photos! Thank you for sharing! Thoughts and prayers are with you all. Mitch PEK '79

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.