Baby Lange HLHS

$15,545 of $20,000 goal

Raised by 201 people in 19 months
My name is Gary and my wife is Kaitlin. At our 20-week ultra-sound we counted the fingers and toes and we were so excited to see all of them; then the doctor was concerned with our daughter’s heart and suggested they do an amniocentesis to check for any other abnormalities.  The doctor referred us to get a Fetal Echocardiogram with the University Hospital in town. We went to the appointment and our little girl was diagnosed with Hypoplastic Left Heart Syndrome, a very rare congenital heart defect that only occurs in 1 out of every 4,344 babies born in the United States per the Center for Disease Control website. The surgical team at the University hospital recommended we relocate to Colorado to deliver our little girl and have the required surgeries to save her life.  My wife and I live in Albuquerque, and run a steakhouse there, and we must leave for an unknown time.  We have decided it would be best to close our steakhouse as we need to be there for our daughter and have all of our focus on her. Kaitlin and I will not have an income for a few months preventing us from paying our mortgage and other bills.  Thank you and God Bless. To learn more about our daughter’s condition please click the link Hypoplastic Left Heart Syndrome. If you are in Albuquerque please stop by Kasey's. We would love to see you.
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Happy Mother’s Day!

Gary, Katherine and I will be driving back up to Denver on Tuesday for Katherine’s Heart Cath. This will tell us why she cannot keep her blood oxygen level above 75 without the help of oxygen. Other than that, Katherine is doing well, she had a great Easter with her cousins hunting Easter Eggs! She is now rolling over constantly and is on her way to crawling. We have been in hiding during the flu season.

Gary is still driving for Uber trying to save up for us to open a version of Kasey’s. Casey is staying home with Katherine for the time being and is volunteering with a newly established nonprofit organization called Lexiam Heart Foundation. The mission of Lexiam is to help families in New Mexico who are affected by Congenital Heart Defects, such as Katherine’s condition, HLHS. We are also looking into starting a NM chapter of the Pediatric Congenital Heart Association (PCHA).
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Katherine thanks you for all the support. Dad is driving for Uber and making it work. Mom is doing a great job taking care of Katherine not sure how she does everything in a day but she is absolutely the best mother. Katherine continues to amaze us every day. Katherine is still on .25 liters of oxygen 24hrs a day and we hope to get her off oxygen when we go back to the cardiologist on the 25. Katherine is in great spirits and wants to wish everyone a Happy Easter and loves everyone of you.
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Thank you for all of your support during this journey. Katherine is very lucky to have people all over the world supporting her.
We have been home for over a month now and we are starting to adjust. We have met the team in Albuquerque and we are confident in the care we are receiving.
Katherine is still on oxygen as they are concerned about her spo2 levels and we will go back to the dr at the end of the month to see If the levels have improved. If the levels have not improved we will go back to Denver for another heart catch and see If they can open things up more so she will have better o2 levels and then be off oxygen. They also are concerned as her tricuspid valve is regurgitating and if that gets worse they will have to do another open heart surgery to fix otherwise if it stays the same they will wait and fix it during her 3rd surgery in a few years. We cannot thank everyone enough for the support as it is such a rollercoaster ride and it definitely takes a village.
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Thank you for the continued support and prayers.
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Read a Previous Update
Katherine Lange
15 months ago
1
1

As most of you know we have closed Kaseys and after a dramatic and scary day Kasey and Katherine were airlifted to Denver,CO a few weeks ago. Everything since has been fine and Katherine is active and growing like she is suppose to. We have been hanging out at the Ronald McDonald house waiting her birth which should be sept 10th or with in a day or soon afterwards. Please keep us in your thoughts and prayers as its going to be pretty hectic in a couple weeks. We will try our best to keep you all up to date either here or thru our email newsletter. thanks again

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$15,545 of $20,000 goal

Raised by 201 people in 19 months
Created May 19, 2017
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RR
$200
Ruben and Britta Ravago
6 months ago
1
1

So happy Katherine is doing well. What a champ!

$100
Anonymous
7 months ago
$50
Anonymous
7 months ago
$200
Anonymous
7 months ago
1
1
$50
Vicki Fox
7 months ago
1
1

I’m praying for your family chef Gary! Hugs from your POA family.

VR
$100
Victoria Armando Rascon
7 months ago
1
1

We support you all and can’t wait for Abraham to meet her! We pray for Baby Katherine and your family everyday

Katherine Lange
15 months ago
1
1

As most of you know we have closed Kaseys and after a dramatic and scary day Kasey and Katherine were airlifted to Denver,CO a few weeks ago. Everything since has been fine and Katherine is active and growing like she is suppose to. We have been hanging out at the Ronald McDonald house waiting her birth which should be sept 10th or with in a day or soon afterwards. Please keep us in your thoughts and prayers as its going to be pretty hectic in a couple weeks. We will try our best to keep you all up to date either here or thru our email newsletter. thanks again

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