Baby Lange HLHS
We have been home for over a month now and we are starting to adjust. We have met the team in Albuquerque and we are confident in the care we are receiving.
Katherine is still on oxygen as they are concerned about her spo2 levels and we will go back to the dr at the end of the month to see If the levels have improved. If the levels have not improved we will go back to Denver for another heart catch and see If they can open things up more so she will have better o2 levels and then be off oxygen. They also are concerned as her tricuspid valve is regurgitating and if that gets worse they will have to do another open heart surgery to fix otherwise if it stays the same they will wait and fix it during her 3rd surgery in a few years. We cannot thank everyone enough for the support as it is such a rollercoaster ride and it definitely takes a village.
Also if you click on this link to see a nice video featuring Princess Katherine in the local news in Aurora. Click here and you will have to download video but it is worth it.>>> https://drive.google.com/file/d/1W79kpvc76P2QaBDUGIAdsvk2wTf4BnKK/view?usp=sharing
As most of you know we have closed Kaseys and after a dramatic and scary day Kasey and Katherine were airlifted to Denver,CO a few weeks ago. Everything since has been fine and Katherine is active and growing like she is suppose to. We have been hanging out at the Ronald McDonald house waiting her birth which should be sept 10th or with in a day or soon afterwards. Please keep us in your thoughts and prayers as its going to be pretty hectic in a couple weeks. We will try our best to keep you all up to date either here or thru our email newsletter. thanks again