Baby Lange HLHS

$14,595 of $20,000 goal

Raised by 191 people in 11 months
My name is Gary and my wife is Kaitlin. At our 20-week ultra-sound we counted the fingers and toes and we were so excited to see all of them; then the doctor was concerned with our daughter’s heart and suggested they do an amniocentesis to check for any other abnormalities.  The doctor referred us to get a Fetal Echocardiogram with the University Hospital in town. We went to the appointment and our little girl was diagnosed with Hypoplastic Left Heart Syndrome, a very rare congenital heart defect that only occurs in 1 out of every 4,344 babies born in the United States per the Center for Disease Control website. The surgical team at the University hospital recommended we relocate to Colorado to deliver our little girl and have the required surgeries to save her life.  My wife and I live in Albuquerque, and run a steakhouse there, and we must leave for an unknown time.  We have decided it would be best to close our steakhouse as we need to be there for our daughter and have all of our focus on her. Kaitlin and I will not have an income for a few months preventing us from paying our mortgage and other bills.  Thank you and God Bless. To learn more about our daughter’s condition please click the link Hypoplastic Left Heart Syndrome. If you are in Albuquerque please stop by Kasey's. We would love to see you.
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Katherine thanks you for all the support. Dad is driving for Uber and making it work. Mom is doing a great job taking care of Katherine not sure how she does everything in a day but she is absolutely the best mother. Katherine continues to amaze us every day. Katherine is still on .25 liters of oxygen 24hrs a day and we hope to get her off oxygen when we go back to the cardiologist on the 25. Katherine is in great spirits and wants to wish everyone a Happy Easter and loves everyone of you.
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Thank you for all of your support during this journey. Katherine is very lucky to have people all over the world supporting her.
We have been home for over a month now and we are starting to adjust. We have met the team in Albuquerque and we are confident in the care we are receiving.
Katherine is still on oxygen as they are concerned about her spo2 levels and we will go back to the dr at the end of the month to see If the levels have improved. If the levels have not improved we will go back to Denver for another heart catch and see If they can open things up more so she will have better o2 levels and then be off oxygen. They also are concerned as her tricuspid valve is regurgitating and if that gets worse they will have to do another open heart surgery to fix otherwise if it stays the same they will wait and fix it during her 3rd surgery in a few years. We cannot thank everyone enough for the support as it is such a rollercoaster ride and it definitely takes a village.
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Thank you for the continued support and prayers.
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Sorry we have not updated in a long time. We have been really busy. Katherine had her second surgery in January and she is doing great! We finally got released to come back to the great state of New Mexico. It has been an adjustment coming home and we are getting back in the swing of things. Gary is currently looking for a job as he is driving for Uber but he is looking for something different. Please send any ideas our way. Thank you for all the support we continue to receive as it is greatly appreciated.
http://www.katherinesjourney.com 
Also if you click on this link to see a nice video featuring Princess Katherine in the local news in Aurora. Click here and you will have to download video but it is worth it.>>> https://drive.google.com/file/d/1W79kpvc76P2QaBDUGIAdsvk2wTf4BnKK/view?usp=sharing
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Read a Previous Update
Katherine Lange
7 months ago
1
1

As most of you know we have closed Kaseys and after a dramatic and scary day Kasey and Katherine were airlifted to Denver,CO a few weeks ago. Everything since has been fine and Katherine is active and growing like she is suppose to. We have been hanging out at the Ronald McDonald house waiting her birth which should be sept 10th or with in a day or soon afterwards. Please keep us in your thoughts and prayers as its going to be pretty hectic in a couple weeks. We will try our best to keep you all up to date either here or thru our email newsletter. thanks again

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$14,595 of $20,000 goal

Raised by 191 people in 11 months
Created May 19, 2017
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RS
$100
Reny Sultan
29 days ago
1
1

I am sooooo proud of her!

$50
Anonymous
1 month ago
$30
Anonymous
1 month ago
1
1
KD
$100
Kimberlee Derhammer
1 month ago
1
1

Dominik, TJ and I are sending lots of love to your little heart warrior.

Katherine Lange
7 months ago
1
1

As most of you know we have closed Kaseys and after a dramatic and scary day Kasey and Katherine were airlifted to Denver,CO a few weeks ago. Everything since has been fine and Katherine is active and growing like she is suppose to. We have been hanging out at the Ronald McDonald house waiting her birth which should be sept 10th or with in a day or soon afterwards. Please keep us in your thoughts and prayers as its going to be pretty hectic in a couple weeks. We will try our best to keep you all up to date either here or thru our email newsletter. thanks again

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