Baby Lange HLHS

$13,075 of $20,000 goal

Raised by 183 people in 9 months

My name is Gary and my wife is Kaitlin. At our 20-week ultra-sound we counted the fingers and toes and we were so excited to see all of them; then the doctor was concerned with our daughter’s heart and suggested they do an amniocentesis to check for any other abnormalities.  The doctor referred us to get a Fetal Echocardiogram with the University Hospital in town. We went to the appointment and our little girl was diagnosed with Hypoplastic Left Heart Syndrome, a very rare congenital heart defect that only occurs in 1 out of every 4,344 babies born in the United States per the Center for Disease Control website. The surgical team at the University hospital recommended we relocate to Colorado to deliver our little girl and have the required surgeries to save her life.  My wife and I live in Albuquerque, and run a steakhouse there, and we must leave for an unknown time.  We have decided it would be best to close our steakhouse as we need to be there for our daughter and have all of our focus on her. Kaitlin and I will not have an income for a few months preventing us from paying our mortgage and other bills.  Thank you and God Bless. To learn more about our daughter’s condition please click the link Hypoplastic Left Heart Syndrome. If you are in Albuquerque please stop by Kasey's. We would love to see you.

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This has been one heck of a journey so far. Katherine will be having the second open heart procedure called "The Glen" on the 17th of JAN. We will update when we can. We do want to thank everyone for the generosity that has been given to us. We never planned on coming this close to our goal. We have realized it takes a village to do what we as are parents are doing. Thank you so much for the continued support that is allowing us to stay together as family.
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Katherine says Thank you GERMANY
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On November 29, 2017, Katherine had an Echo-cardiogram and blood test that lead the medical team to perform a Heart Catheterization procedure to get a very clear picture of her heart. The procedure took about 4 hours under anesthesia. The doctors found that the shunt that was placed during the Norwood surgery (surgery number one) was narrowing so they inserted a stent to keep it open; this will buy her time to make it to the Glenn (surgery number two). Since the procedure, Katherine is eating much better and is off oxygen. Katherine is the bravest little girl around, taking everything like a champ and preparing for her next surgery.
It is still tough on us, as parents, to see our baby get poked for blood work and medication. Thank you for taking the time to read our family’s journey into the world of CHDs. Please enjoy a few photos of Katherine.
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Katherine's oxygen level was dropping over the past couple of days so we are back in the hospital for observation and testing. She has had an Echo-cardiogram and blood test, the next step is a Heart Catheterization procedure to get a very clear picture of her heart. The procedure takes about 4-5 hours under anesthesia. Katherine is the bravest little girl around, taking everything like a champ! We will soon find out when she will have her next open heart surgery, until then we are just hanging out in the hospital, making new friends with the nurses and providers.
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Read a Previous Update
Katherine Lange
5 months ago
1
1

As most of you know we have closed Kaseys and after a dramatic and scary day Kasey and Katherine were airlifted to Denver,CO a few weeks ago. Everything since has been fine and Katherine is active and growing like she is suppose to. We have been hanging out at the Ronald McDonald house waiting her birth which should be sept 10th or with in a day or soon afterwards. Please keep us in your thoughts and prayers as its going to be pretty hectic in a couple weeks. We will try our best to keep you all up to date either here or thru our email newsletter. thanks again

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$13,075 of $20,000 goal

Raised by 183 people in 9 months
Created May 19, 2017
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JB
$20
Jennifer Bellamy
1 month ago

Saying prayers for you and your family ❤️

$30
Anonymous
1 month ago
$150
Anonymous
1 month ago
$90
Anonymous
1 month ago
Katherine Lange
5 months ago
1
1

As most of you know we have closed Kaseys and after a dramatic and scary day Kasey and Katherine were airlifted to Denver,CO a few weeks ago. Everything since has been fine and Katherine is active and growing like she is suppose to. We have been hanging out at the Ronald McDonald house waiting her birth which should be sept 10th or with in a day or soon afterwards. Please keep us in your thoughts and prayers as its going to be pretty hectic in a couple weeks. We will try our best to keep you all up to date either here or thru our email newsletter. thanks again

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