Medical expenses for baby Jameus

$11,036 of $10,000 goal

Raised by 343 people in 52 months
My son, Jameus, was born with Hirschsprung's disease. It's a rare disease that affects the intenstines. Babies who are born with HD lack the nerves necessary to produce a bowel movement. 

Jameus started throwing up lime green bile when he was two days old. He was immediately flown over two hours away  to MUSC Childrens hospital, where he remained in the NICU for almost 3 months.

Jameus had his first surgery at two weeks old.  He suffered a terrible infection as a result of the surgery and the infection caused his bowels to perforate and all his stool leaked through his body cavity.He went into septic shock, and had to be put on life support. He was also given a colostomy bag at that point. 

At this point in his short life, Jameus has had  20 surgeries and procedures. We do daily home dilation treatments as well, where an 8 inch metal rod has to be inserted into his rectum, and also down through his stoma. These treatments are terribly painful for Jameus.

There is no end in sight for this cycle of surgery and treatment. The current surgeons are giving us no options that will result in a better quality of life for Jameus.

We have switched surgeons, and the new surgeon is a specialist for his disease. She has given us hope we did not have before, however she is based out of Denver, Colorado. We are in South Carolina. 

Traveling back and forth will be extremely expensive. As a single mom, I am supporting myself, Jameus, and paying for all the current treatment Jameus needs. This does not leave room to save for the trips to Denver. Even when I can save up some money for the trip, Jameus ends up needing another surgery or treatment.
 
My little boy deserves to start living his life without constant sickness, infection and surgeries. It will only be through the generosity of others that he can have a chance at a better quality of life.

"You have not lived today until you have done something for someone who can never repay you."
- John Bunyan

"No one is useless in this world who lightens the burdens of another."
- Charles Dickens

"No one ever became poor from giving."
- Anne Frank















Playing at the hosptial atrium.






4133657_1443621033.5442_funddescription.


He is the happiest, sweetest baby when he is feeling well.

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Hi everyone! Quick update. Jameus is doing well right now aside from some small stoma issues. He has been getting kidney testing done and we are just waiting on those results to come back. I wanted to add a Facebook page into the update where everyone can go follow his journey if you are not already and then also a link to a news article about Jameus after my Facebook post went viral! Thanks everyone so much for all your love & support! It truly means the world to both Jameus & I. ❤️❤️❤️

Follow us here!
Www.facebook.com/jameusjourney

Watch and read the news report here!
http://m.wmbfnews.com/wmbfnews/db/330822/content/UTVbTGY6
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So I just wanted to quickly update everyone. Since the last update, Jameus had surgery. They went in and revised his Ostomy, gave him a new stoma and also added a mucous fistula. So my sweet boy now has two stomas, and two bags on him. Trying to adjust to a second bag has been extremely difficult. A lot harder than I thought it would be. He's been having complications since the last surgeries with bleeding, so I've been out of work for a month now and now I have to start purchasing extra bags for the second stoma too.

But there is good news in all of this! Insurance finally approved our trip to Cincinnati! After fighting with them for almost 7 months! At this point it will probably be January before we go, so we don't miss his 2nd birthday and holidays with our family and friends.

Because the new stoma is working so well and producing so much more output than the original, we are having leaks constantly, and having to change the bags 4-5 times a day. Both bags have to be changed every time because of the way they overlap. Our insurance pays for 30 bags a month now, but with 4-5 bag chances x2 stomas, we're going way over those 30 bags. Everything else I have to purchase out of pocket. If anyone had it in their heart to donate to help with these new additional expenses, I would be so grateful!

Thanks for all your love and ongoing support ❤️
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Read a Previous Update
Stephanie McCardell
36 months ago
5
5

I do not have the financial ability to donate to your family right now, but I will never forget reading your story. I pray that your son has a happy and wonderful life, and I hope that he never feels badly about his body and I wish you him and your family the very best. ♥

+ Read More
Alicia Higdon Matthews
36 months ago
3
3

My heart goes out to you & your precious little boy. Forty six years ago on November 30th my son, Tony, was born. He began having problems when he was only 3 days old. He was taken to Children's Hospital in Louisville, Ky the next day. He had test after tests after tests. They could find nothing. We took him home when he was 13 days old, but had to take him back 4 days later. Unfortunately, my little boy died on December 21, 1970. We did not know what caused his death until we received the autopsy report, 2 months later. It was Hirshsprungs Disease. I am so happy for you that you have your little boy. I hope he continues to get better every day. I will keep you both in my thoughts & prayers .... God Bless You

+ Read More
Linda Gondorchin
30 months ago
1
1

Your son is an angel. Glad to hear he has a bright future ahead of him. Pray for the ignorant lady at walmart, she has no class. May the Lord be with you and your family always.

+ Read More
Lora Melancon
33 months ago
1
1

Hi. I dont have money I can send right now but I do have prayers to give. My daughter wasbirn with hirshprunges 18 years ago she was a lucky one though and had a colostomy bag until 8 months old. At 6 months she had her pullthrough and luckily has not had any problems since! People need to keep their rude comments to theirselves especially if they have no idea what you as a parent goes through every day to take care if these precious babies who didnt ask for the life they got. They are babies just like all other babies love and nuture them not tear them apart!!

+ Read More
Jennifer Amy Cousino
36 months ago

I see a courageous little boy with a huge smile! Lif ting you both in prayer...

+ Read More
Ericana A Bommon
36 months ago

Keep be a mom I give you all the support if was me I would off said something different but the world is must up now I give you and your son my prayers

+ Read More
Jesus Esquivel
36 months ago

I wish deeply with all my heart that i could donate but i am not financially stable i am a stay at home mom (little bros facebook) i sincerly wish with all my heart your baby boy gets better i will keep him in my prayers such a strong strong baby boy.

+ Read More
Betty Pollitt
36 months ago

Your precious child is beautiful in every way. When I read your story I couldn't help but cry as I have 2 special needs children myself. He's so lucky to have a mom like you!

+ Read More
Madisyn Holton
36 months ago

hey he is the most handsomest baby do not let anyone drag you down about him that is his way and his story that he is so cute sweet and an amazing baby do not let anyone drag you down about him that is youre bisness and only yours

+ Read More
Glenda Latour
36 months ago

I wish I could help financially but am disabled and on budget but I can help with prayers.lots of them for your beautiful son.I also want to say that evil woman at walmart needs prayers too for her evil thoughts..I will pray for her to get wisdom..God Bless you both

+ Read More
Jason N Jessica Chambers
36 months ago

I dont know how people could be so cruel!!! This is a sweet baby who has an illness that could happen to anybodys child!!! And for the women at walmart who did that to you and your baby she is the one with a serious problem she should be ashamed that is just evil in my eyes!!! Sorry i dont have the funds but i do have prayers for you and your beautiful baby boy and i will also be praying for the heartless and evil people out in this world that they can change the way they are and be more thoughtful!!!

+ Read More
Bridgett Mckim
37 months ago

God bless this sweet baby boy I wish I could donate but all I can do is just prey for this sweet baby!!! Sending lots of love and will keep checking your page!!!❤

+ Read More
Jules Julie
37 months ago

God bless this handsome little guy. It's sad to know people like that lady still exist. We are all different and that's what makes us unique & beautiful.

+ Read More
MzNikki VanSchoyck
38 months ago

I wish I had funds to donate because I sure would.. I hope u meet your goal plus some..

+ Read More
MzNikki VanSchoyck
38 months ago

I'm so sorry to hear about your son and his condition I hope everything works out for u guys.. I'm so glad u told your story ppl can be so cruel and ignorant.. He's such a handsome little guy

+ Read More
Heidi Lautieri
38 months ago

Just read your story. My best friend since I was about 15 has a bag as well. She has had hers since she was about 16. She has never let it hold her back. Feel free to contact me to speak with her. As she has helped others deal with the bag. She may have some tricks to make life easier as he grows with it. She helped my Uncle when he needed one because he had cancer. And she is more than happy to share. God bless. He is so beautiful. And that woman at Walmart is ubsurd!

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April Ross
39 months ago

He is a handsome boy. I hope a miricle will come your way and you get your wishes to come true. Your an amazing mother with a loving heart. Keep on ticking momma. There are people out there that could never do what you do. Hugs sent your way.

+ Read More
Sheila Nichols
39 months ago

This little guy really touched my heart I went thru lots of surgeries myself just like he is going thru. I spent my childhood in the hospital also. Sending prayers to him and his mommy!

+ Read More
Teresa Szymanski-Stewart
39 months ago

My son has hershprungs disease as well...he will be 19 this week...i am blessed

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Kourtney R Markey
39 months ago

Hi little One... i have a son that also has hirshsprungs disease.. he had to have a cholostomy at 8 weeks old and it was reversed at 8 months.. he is now a happy 4 year old... i K now how you feel with people staring and asking questions..i struggle everyday with schools and daycare always thinking he is sick... we will be praying for your little One..

+ Read More

$11,036 of $10,000 goal

Raised by 343 people in 52 months
Created April 11, 2015
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$25
Anonymous
22 months ago
$20
Angela Kelley
23 months ago

he's adorable.

$25
Anonymous
23 months ago
$25
Cheryl Watkins
23 months ago

Jameus You're adorable and I have you in my prayers that one day soon you will not have to endure another surgery

DK
$100
Dominique Kim
24 months ago
RB
$30
Richard Bull
25 months ago
3
3

Hi Dallas, your post from last year has only just made it onto my newsfeed. It struck a chord with me as I had The same disease as a child and I know all the problems that my mum and dad faced. As I got older I wanted to know everything so I always asked questions and they always told me stories. Sure, some were sad and scary but some were also funny like when I picked my dad's pint of Beer up when I was 3-4, took a sip and blew my colostomy off... You will have bad days but your son will learn to cope. He'll grow up knowing no other way, it will be his normal so he'll develop his own strategy for managing it. Sure other kids will point and ask questions and It might get him down from time to time but as he gets older it will also be a source of strength for him. Dealing with adversity from a young age makes you resilient and determined and provides you with great coping mechanisms for adult life. As least that's what I like to think. Knowing what my parent went through, the sleepless nights, the stress of operations and weeks on end in hospital made me even more respectful and appreciative of everything they went through for me and their love and support was second to none. Your son will know and feel that for sure. All the best Rich X

CT
$30
Cecilia Townsend
25 months ago
$15
Anonymous
25 months ago
$20
Anonymous
25 months ago
JC
$100
John Cease
25 months ago
1
1
Stephanie McCardell
36 months ago
5
5

I do not have the financial ability to donate to your family right now, but I will never forget reading your story. I pray that your son has a happy and wonderful life, and I hope that he never feels badly about his body and I wish you him and your family the very best. ♥

+ Read More
Alicia Higdon Matthews
36 months ago
3
3

My heart goes out to you & your precious little boy. Forty six years ago on November 30th my son, Tony, was born. He began having problems when he was only 3 days old. He was taken to Children's Hospital in Louisville, Ky the next day. He had test after tests after tests. They could find nothing. We took him home when he was 13 days old, but had to take him back 4 days later. Unfortunately, my little boy died on December 21, 1970. We did not know what caused his death until we received the autopsy report, 2 months later. It was Hirshsprungs Disease. I am so happy for you that you have your little boy. I hope he continues to get better every day. I will keep you both in my thoughts & prayers .... God Bless You

+ Read More
Linda Gondorchin
30 months ago
1
1

Your son is an angel. Glad to hear he has a bright future ahead of him. Pray for the ignorant lady at walmart, she has no class. May the Lord be with you and your family always.

+ Read More
Lora Melancon
33 months ago
1
1

Hi. I dont have money I can send right now but I do have prayers to give. My daughter wasbirn with hirshprunges 18 years ago she was a lucky one though and had a colostomy bag until 8 months old. At 6 months she had her pullthrough and luckily has not had any problems since! People need to keep their rude comments to theirselves especially if they have no idea what you as a parent goes through every day to take care if these precious babies who didnt ask for the life they got. They are babies just like all other babies love and nuture them not tear them apart!!

+ Read More
Jennifer Amy Cousino
36 months ago

I see a courageous little boy with a huge smile! Lif ting you both in prayer...

+ Read More
Ericana A Bommon
36 months ago

Keep be a mom I give you all the support if was me I would off said something different but the world is must up now I give you and your son my prayers

+ Read More
Jesus Esquivel
36 months ago

I wish deeply with all my heart that i could donate but i am not financially stable i am a stay at home mom (little bros facebook) i sincerly wish with all my heart your baby boy gets better i will keep him in my prayers such a strong strong baby boy.

+ Read More
Betty Pollitt
36 months ago

Your precious child is beautiful in every way. When I read your story I couldn't help but cry as I have 2 special needs children myself. He's so lucky to have a mom like you!

+ Read More
Madisyn Holton
36 months ago

hey he is the most handsomest baby do not let anyone drag you down about him that is his way and his story that he is so cute sweet and an amazing baby do not let anyone drag you down about him that is youre bisness and only yours

+ Read More
Glenda Latour
36 months ago

I wish I could help financially but am disabled and on budget but I can help with prayers.lots of them for your beautiful son.I also want to say that evil woman at walmart needs prayers too for her evil thoughts..I will pray for her to get wisdom..God Bless you both

+ Read More
Jason N Jessica Chambers
36 months ago

I dont know how people could be so cruel!!! This is a sweet baby who has an illness that could happen to anybodys child!!! And for the women at walmart who did that to you and your baby she is the one with a serious problem she should be ashamed that is just evil in my eyes!!! Sorry i dont have the funds but i do have prayers for you and your beautiful baby boy and i will also be praying for the heartless and evil people out in this world that they can change the way they are and be more thoughtful!!!

+ Read More
Bridgett Mckim
37 months ago

God bless this sweet baby boy I wish I could donate but all I can do is just prey for this sweet baby!!! Sending lots of love and will keep checking your page!!!❤

+ Read More
Jules Julie
37 months ago

God bless this handsome little guy. It's sad to know people like that lady still exist. We are all different and that's what makes us unique & beautiful.

+ Read More
MzNikki VanSchoyck
38 months ago

I wish I had funds to donate because I sure would.. I hope u meet your goal plus some..

+ Read More
MzNikki VanSchoyck
38 months ago

I'm so sorry to hear about your son and his condition I hope everything works out for u guys.. I'm so glad u told your story ppl can be so cruel and ignorant.. He's such a handsome little guy

+ Read More
Heidi Lautieri
38 months ago

Just read your story. My best friend since I was about 15 has a bag as well. She has had hers since she was about 16. She has never let it hold her back. Feel free to contact me to speak with her. As she has helped others deal with the bag. She may have some tricks to make life easier as he grows with it. She helped my Uncle when he needed one because he had cancer. And she is more than happy to share. God bless. He is so beautiful. And that woman at Walmart is ubsurd!

+ Read More
April Ross
39 months ago

He is a handsome boy. I hope a miricle will come your way and you get your wishes to come true. Your an amazing mother with a loving heart. Keep on ticking momma. There are people out there that could never do what you do. Hugs sent your way.

+ Read More
Sheila Nichols
39 months ago

This little guy really touched my heart I went thru lots of surgeries myself just like he is going thru. I spent my childhood in the hospital also. Sending prayers to him and his mommy!

+ Read More
Teresa Szymanski-Stewart
39 months ago

My son has hershprungs disease as well...he will be 19 this week...i am blessed

+ Read More
Kourtney R Markey
39 months ago

Hi little One... i have a son that also has hirshsprungs disease.. he had to have a cholostomy at 8 weeks old and it was reversed at 8 months.. he is now a happy 4 year old... i K now how you feel with people staring and asking questions..i struggle everyday with schools and daycare always thinking he is sick... we will be praying for your little One..

+ Read More
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