Baby Ivy's Preemie Fund

$5,517 of $10,000 goal

Raised by 92 people in 3 months
My name is Hannah Edwards and I'm posting this on behalf of Jake and Lauren Edwards (my brother and sister-in-law) and their little miracle, Ivy.

On Wednesday, March 14th, Lauren was rushed from Chester to Enloe Hospital in Chico in the middle of a snowstorm. They thought it would be sort-of a routine checkup due to Lauren's sudden high blood pressure... little did they know, the next 24 hours would be the most trying time of their lives. Upon admittance into Labor and Delivery at Enloe, nurses started rushing around them every which way. They tested all kinds of things, set up several IVs, and laid her back on one of the beds. Lauren’s OB consulted them and revealed she had severe preeclampsia and that she would be life-flighted by helicopter to Sutter Sacramento immediately because it was causing her blood pressure to life-threateningly skyrocket; her organs were failing and they would have to take their baby out soon. Once Lauren got situated into her room on the Labor & Delivery floor in the Intensive Care Unit, nurses were once again scrambling to do everything necessary for someone who is pregnant with a case as severe as hers. The next morning they met with a doctor who reviewed everything on Lauren’s chart and determined it was necessary to perform an emergency Cesarian Section to get their baby out before things got any worse, even though she was only 25 weeks and 6 days into her pregnancy. She diagnosed Lauren with what is called the HELLP Syndrome, which means she had elevated liver enzymes and low platelet count. An hour later, Lauren was on the operating table with no time to contemplate what was happening. At 11:01 am on March 15th, their baby girl, Ivy Lynnlee Edwards, was born. She was rushed across the hall to get cleaned up, weighed, and much more. Her birthweight was 1 lb. 3 oz. and she was 11 inches long. They put Ivy into an incubator and took her up to the NICU (Neonatal Intensive Care Unit) where she was hooked up to IVs, a feeding tube, breathing tube, temperature probe, heart monitor, blood pressure cuff, and a few other necessities. Lauren ended up spending 4 days in the hospital recovering from the C-section, and will continue to heal for 6-8 weeks post-labor with her blood pressure still being closely monitored. They now will continue to spend their days at the NICU and nights at the Ronald McDonald House. They had to leave their lives - including their jobs - behind in the blink of an eye and have been forced to rethink their whole future. Jake and Lauren would be forever grateful for and appreciative of your prayers and support.
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We would like to very sincerely thank everyone who has followed and supported Ivy's journey so far, we are so humbled by all of you and will be forever grateful. To start where we left off on the last update, I would like to start by saying Ivy is doing well! The story continues.. Ivy was FINALLY tested free of Rotavirus and we ripped off our gowns and gloves as we danced out of the isolation room to the room next door. Everything was going well until a couple weeks later when she had a pretty serious episode that required ALS (Advanced Life Support). Just as a precaution, we were gowning up until her tests came back negative, again. We ended up moving to two more rooms until...drumroll..she was DISCHARGED FROM THE NICU! After spending 99 days in the NICU, she was released on her due date, June 22nd. That never happens for a baby with a stint in the hospital as long as she had. A few days after taking her home, we really started getting into the groove of what having a baby is supposed to be like.. laying around and giving her cuddles whenever we want, without restriction. Being born premature, and going home under 5lbs, there were still some risks we had to be on high alert for, and one of those risks manifested itself early morning on July 11th. Promptly after Ivy's early morning feeding, Lauren saw Ivy turning blue and that something was wrong. After vigorous stimulation to the back and chest, and suctioning her mouth and nose out, she still wasn't breathing. It was at this point we realized we had to perform CPR on her. After 3 rounds, we were able to resuscitate her on the last breath we gave. Paramedics showed up soon after and said she looked good, but she should be taken to the ER to get checked out. We then got transferred back to Sutter Medical Center into the PICU for an overnight stay for observation. As we suspected, her episode was caused by bad reflux and they prescribed her some antacids to help. We are now back home and so glad to be settled back in a comfortable environment with her. She is gaining weight consistently, and is really acting like a baby. This has been a longer road than any parent should have to endure, but every bit of it was worth it to have her. Thanks again to everyone who has followed her story, we appreciate you so much. Love,
Ivy, Lauren and Jake.
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Hello Ivy’s mamma here! First off we wanted to thank everyone for their continuous love and support. We cannot thank each and everyone of you enough. These last 8 weeks have been extremely tough yet rewarding. Ivy has hit a few bumps in the road but now is recovering so well! Although the bumps are major events in her life, so are the milestones, each one of them is celebrated.
Here is a timeline of Ivy’s NICU journey so far...
03•15•2018- Born at 11:01am by emergency cesarean section due to mom suffering from HELLP syndrome.
03•16•2018- Mom’s and dad’s first touch!
03•18•2018- PICC line placed to give lipids and TPN (Total parenteral nutrition: Intravenous feeding that provides patients with all the fluid and the essential nutrients they need when they are unable to feed themselves by mouth.)
03•19•2018- Mom discharged from the hospital with blood pressure being closely monitored and stabilized with medication.
03•26•2018- Mom held Ivy for first time.
03•27•2018- Dad held Ivy for first time.
04•01•2018- Babies first Easter.
04•11•2018-Put on a high flow nasal cannula! Yay
04•14•2018- Ivy was diagnosed with a staph infection in her blood. Put back on bubble cpap for more respiratory support. Boo
04•19•2018- finally cleared from staph!
04•20•2018- Got extremely sick with medical NEC (“Necrotizing enterocolitis (NEC) is a medical condition where a portion of the bowel dies. It typically occurs in newborns that are either premature or otherwise unwell.”) She was put on 4 different antibiotics, a replogle, stopped her feedings of moms breast milk, had abdomen X-rays every 6 hours(or less) and she was intubated because she was having a hard time breathing on her own. We almost lost our baby girl...
04•22•2018- Diagnosed with rotavirus and was put into an isolation room. Anyone who enters the room has to put on a gown and gloves.
04•26•2018- Hit 2 pounds! BIG milestone for baby girl
04•30•2018-Ivy was extubated ,swaddled for the first time and put back on the bubble cpap. Mom and dad got to hold her for the first time after 10 days!
05•01•2018- Doctors started her feedings of moms breast milk again
05•03•2018- Had to stop feedings because Ivy was showing signs of medical NEC again. She was put back on antibiotics, a replogle and scheduled X-rays.
05•05•2018- After resting her tummy she started to look good again. Doctors suspect Ivy has a cows milk protein allergy ( a dairy allergy or sensitivity), and that we would try her on a dairy free formula called Elecare.
/Because I have eaten dairy, it has passed through the breast milk we were feeding her.
05•07•2018- Started her feedings of Elecare formula (a specialized dairy free formula that can only be purchased online and is extremely expensive)
05•09•2018- OFF BUBBLE CPAP!
05•10•2018- Today Ivy was put on a normal nasal cannula just in case she needs a boost of oxygen once in while. (To be expected with how tiny she still is.) Ivy is still tolerating her feedings of the formula well. /Because of Ivy’s history with a sensitive gut, not wanting to put her at any risk, and my milk supply lessening every day no matter what I try, I have decided to quit pumping and give her the food I know she responds well to and will grow with.

Tomorrow Ivy will officially be 8 weeks old, 34 weeks corrected (what she would have been in my tummy). She is such a happy little human. She is starting to smile, is more alert and curious into what’s going on around her and looks like a perfect mixture of Jake and I. We are so excited to continue to watch her grow and be able to share our experience the world.
Again thank you all for taking the time to read this, for the love, prayers, thoughts, and support.
Love, Jake,Lauren and real life miracle, Ivy

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Raised by 92 people in 3 months
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