Audrey's DBA Photo Booth FundRaiser

$38,900 of $50,000 goal

Raised by 733 people in 37 months
Scott Nethery
for Diamond Blackfan Anemia Foundation
 LOUISVILLE, KY
Audrey was born with a rare bone marrow disorder called Diamond Blackfan Anemia. There are currently only a few treatments available for DBA patients. Transfusion therapy in which a patient must receive a blood transfusion every 3-5 weeks to live. Steroid therapy ( roughly 40% of patients respond) in which the patient must take prednisolone in order to make blood. The problem with steroids is that there are many bad side effects. The only other option is a bone marrow transplant which is very risky. We need a cure now. This GoFundMe page was built in order to raise money to find a cure for Diamond Blackfan Anemia. All money raised from thus GoFundMe page goes directly to the DBA Foundation to be used to fund research to find the cure.

Helping to find a cure for Diamond Blackfan Anemia is a passion of ours. We want our daughter Audrey to grow up happy, healthy and to live a long long life. We want her to be able to grow up without the constant need for medical intervention to keep her alive. We want her to grow up without constantly being poked with needles to draw or give blood.

Thank you so very much for your consideration in making a donation in honor of Audrey for Diamond Blackfan Anemia research!
+ Read More
37 months ago
6
6

Audrey! Best.Celebrity.Ever.

+ Read More
Seth Perry
36 months ago
4
4

I -just- heard of her today. Man if I could give her some blood every week I would. She's made of awesome!

+ Read More
Eva Chobanuk
37 months ago
4
4

Love you Audrey ♥ You are a bright star in my sky .And so much appreciation for Julie and Scott . You are amazing parents .Audrey is blessed to have you and you're blessed to care for her and enjoy her :)

+ Read More
Ana Almeida
37 months ago
2
2

I had a person in my famly with the same desease , but she diede

+ Read More
Florence Pangowish
37 months ago
2
2

To a very beautiful lil girl you always make my day....

+ Read More
Sarah
2 months ago
1
1

Sorry to burst your bubble but cures don't pay, treatments pay, pHARMaceutical meds pay, vaccines pay (and they all keep you sick. How long have they been trying to find a cure for CANCER? TRILLIONS OF $$$ RAISED FOR WHAT EXACTLY...40+ YEARS AND STILL NO CURE. Chemo kills though (not a cure, bur makes the company trillions. ALWAYS FOLLOW THE $$$

+ Read More
Xavier Guillemette
13 months ago
1
1

you're good coward not small and if I could help you I'll do it and I'll give you all my money but I'm sorry. But you are very strong and if I could give you my life or what you need.

+ Read More
Taylor Pratt
37 months ago
1
1

Audrey! I'm sorry I couldn't be at your fundraiser! I'm all the way in Australia! Just wanted to say I absolutely love watching your videos! Your beautiful face and fantastic dance moves always put a smile on my face! Sending lots of love and happiness to you and your family! Xxx

+ Read More
Iris Hair
37 months ago
1
1

Good luck Audrey!!! You're a great girl full of life that god bless you

+ Read More
Oviedo Veronica
37 months ago
1
1

Love you little princess

+ Read More
Paula
24 days ago

Your amazing!! Love watching you did what you do!!

+ Read More
Syed Samsaam Shah
11 months ago

i love u my lil doll.Your videos make me happy.......i love u again :* i pray to ALLAH for your health.....we r always with u

+ Read More
Syed Samsaam Shah
11 months ago

How is she now???? :(

+ Read More
Hony Maker Smith
12 months ago

how old is she

+ Read More
Josh Bigelow
12 months ago

About 20 percent of people with DBA go into remission after treatment. Remission means that the signs and symptoms of anemia have disappeared for more than six months without any treatment. Remission can last for many years and can even be permanent. If symptoms come back after remission, it is called relapse.

+ Read More
Josh Bigelow
12 months ago

Stem cell transplant. Stem cells are cells in the bone marrow that can become all types of blood cells. Stem cell transplant involves finding a matched donor, usually a close family member, and transfusing their healthy stem cells into the person with DBA. Stem cell transplant may cure DBA, but rejection or infection is possible. Because these risks are serious, stem cell transplant is usually not used unless steroids or blood transfusions do not help.

+ Read More
Josh Bigelow
12 months ago

Blood transfusions. Healthy, matched donor blood may be given every four to six weeks to increase the amount of red blood cells in a person with DBA.

+ Read More
Josh Bigelow
12 months ago

Steroids. These are strong drugs that fight inflammation in the body. Although doctors don't know exactly how they work in DBA, steroids allow 80 percent of people with DBA to start making more red blood cells.

+ Read More
Blair Ballard
13 months ago

I am trying my hardest find a cure go Audrey love song lifes beautiful

+ Read More
Nancy Teague
14 months ago

She is precious!

+ Read More

$38,900 of $50,000 goal

Raised by 733 people in 37 months
Created February 10, 2016
Funds raised will benefit:
Diamond Blackfan Anemia Foundation
Certified Charity
+ Learn More
West Seneca, NY
EIN: 161459422
How it Works
  1. You make a donation using a PayPal account or a credit/debit card to PayPal Giving Fund (a 501(c)(3) charitable organization).
  2. After the deduction of payment processing fees, PayPal Giving Fund delivers the funds it receives to the chosen charity on a monthly basis.*
* If, after reasonable efforts, PayPal Giving Fund cannot deliver donations to this charity, the funds may be donated to another charity per PayPal Giving Fund’s policies.
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$25
Teresa Radcliff
2 months ago

For the love of a child! Faith + Courage = Power! IGTKIDS.com

$10
Anonymous
2 months ago
37 months ago
6
6

Audrey! Best.Celebrity.Ever.

+ Read More
Seth Perry
36 months ago
4
4

I -just- heard of her today. Man if I could give her some blood every week I would. She's made of awesome!

+ Read More
Eva Chobanuk
37 months ago
4
4

Love you Audrey ♥ You are a bright star in my sky .And so much appreciation for Julie and Scott . You are amazing parents .Audrey is blessed to have you and you're blessed to care for her and enjoy her :)

+ Read More
Ana Almeida
37 months ago
2
2

I had a person in my famly with the same desease , but she diede

+ Read More
Florence Pangowish
37 months ago
2
2

To a very beautiful lil girl you always make my day....

+ Read More
Sarah
2 months ago
1
1

Sorry to burst your bubble but cures don't pay, treatments pay, pHARMaceutical meds pay, vaccines pay (and they all keep you sick. How long have they been trying to find a cure for CANCER? TRILLIONS OF $$$ RAISED FOR WHAT EXACTLY...40+ YEARS AND STILL NO CURE. Chemo kills though (not a cure, bur makes the company trillions. ALWAYS FOLLOW THE $$$

+ Read More
Xavier Guillemette
13 months ago
1
1

you're good coward not small and if I could help you I'll do it and I'll give you all my money but I'm sorry. But you are very strong and if I could give you my life or what you need.

+ Read More
Taylor Pratt
37 months ago
1
1

Audrey! I'm sorry I couldn't be at your fundraiser! I'm all the way in Australia! Just wanted to say I absolutely love watching your videos! Your beautiful face and fantastic dance moves always put a smile on my face! Sending lots of love and happiness to you and your family! Xxx

+ Read More
Iris Hair
37 months ago
1
1

Good luck Audrey!!! You're a great girl full of life that god bless you

+ Read More
Oviedo Veronica
37 months ago
1
1

Love you little princess

+ Read More
Paula
24 days ago

Your amazing!! Love watching you did what you do!!

+ Read More
Syed Samsaam Shah
11 months ago

i love u my lil doll.Your videos make me happy.......i love u again :* i pray to ALLAH for your health.....we r always with u

+ Read More
Syed Samsaam Shah
11 months ago

How is she now???? :(

+ Read More
Hony Maker Smith
12 months ago

how old is she

+ Read More
Josh Bigelow
12 months ago

About 20 percent of people with DBA go into remission after treatment. Remission means that the signs and symptoms of anemia have disappeared for more than six months without any treatment. Remission can last for many years and can even be permanent. If symptoms come back after remission, it is called relapse.

+ Read More
Josh Bigelow
12 months ago

Stem cell transplant. Stem cells are cells in the bone marrow that can become all types of blood cells. Stem cell transplant involves finding a matched donor, usually a close family member, and transfusing their healthy stem cells into the person with DBA. Stem cell transplant may cure DBA, but rejection or infection is possible. Because these risks are serious, stem cell transplant is usually not used unless steroids or blood transfusions do not help.

+ Read More
Josh Bigelow
12 months ago

Blood transfusions. Healthy, matched donor blood may be given every four to six weeks to increase the amount of red blood cells in a person with DBA.

+ Read More
Josh Bigelow
12 months ago

Steroids. These are strong drugs that fight inflammation in the body. Although doctors don't know exactly how they work in DBA, steroids allow 80 percent of people with DBA to start making more red blood cells.

+ Read More
Blair Ballard
13 months ago

I am trying my hardest find a cure go Audrey love song lifes beautiful

+ Read More
Nancy Teague
14 months ago

She is precious!

+ Read More
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