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Autumn's Battle

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As many of you may know my beautiful niece Autumn Arlene was born with what everyone agreed was an adorable bottom lip, yet Dr's told my sister & brother-in-law to monitor it throughout the first year of her life. Shortly after her first birthday we all noticed she had not "grown into it." Countless Dr's visits later Autumn was scheduled for her first MRI. And that same evening our hearts were shattered when we received the call saying she needed a biopsy the very next day. Our world came crashing down in November 2016 when Autumn was officially diagnosed with a Fibromatosis Soft Tissue Sarcoma. The placement of Autumn's tumor at this point is very involved and her team of Dr's are unable to opperate without shrinking it first.

and so began our battle...

She immediately started an oral Chemotherapy. This form of treatment was done at home every night for 3 months. We had some very bad days in between, but she trooped through. She kept smilling through all the boo-boo's and weekly trips to Cohens Children's Hospital for bloodwork to make sure her blood counts remained good and that her kidney and liver functions were keeping up with her little body. She did amazing.

Her first scan was set for March 2, 2017 and we prayed with everything inside of us that this form of treatment was working and the tumor was shrinking, or at the very least remained the same. We picked up every lucky penny, never stepped on a crack, used up every birthday cake wish, our thanksgiving turkey wishbone, shooting stars, you name it whatever we could do, we did!

However once again, our family's hearts were shattered when we received the news that not only did the treatment not work but the tumor had grown significantly. Autumn will now have a mediport surgically placed in her to receive weekly, more aggressive IV Chemotherapy treatment. She will receive treatment once a week for the first 6months and then continue on at once every other week for the second 6month period.

Since November our family's world has been turned upside down. Autumn has brought so much joy into everyone's life she's ever entered. Now that she will be going through a much more aggressive form of treatment my sister & brother-in-law will be forced to constantly take off from work for their most important role in life "Autumn's Mommy & Daddy" The medical bills have been and will continue to roll in. As a family we will still be making and selling AutumnStrong bracelets & shirts to assist with Autumn's battle. And as my favorite role in life "Aunt Sammy" I am reaching out to anyone and everyone. Donations are so greatly appreciated to help my family through what is without a doubt the hardest time of our lives as we stand behind our littlest member for the fight of a lifetime. Any little bit helps, even just an extra little prayer a day, means more to us than anyone could ever imagine.

Every time we feel we've faced the worst day ever, we're proven wrong. But together as a Family we remain hopeful. This will not defeat us, this will not define us. We are strong, unseasonably strong, #AutumnStrong
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Donations 

  • James Restaino
    • $100 
    • 6 yrs
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Organizer and beneficiary

Samantha Scazzuso
Organizer
Lindenhurst, NY
Jessica Michaelos
Beneficiary

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