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Atticus DIPG & Brain tumour charity

£16,333 of £25,000 goal

Raised by 360 people in 7 months
Created August 15, 2018
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This is 4 year old Atticus Feduchin-Pate 

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Atticus is the son of dear personal friends of mine. On July 1st 2018 to our complete devastation Atticus was diagnosed with an incredibly rare and incurable brain tumor called DIPG (Diffuse intrinsic pontine gliomas). There is no cure or recoverable treatment for this disease and doctors have advised he has around 9 months to live.  Atticus was a completely normal little boy, until one-day he started showing signs of slowing down and became clumsy. It was completely out of the blue, and can affect anyone.

Please see this link for more information on his condition  - https://www.thebraintumourcharity.org/understanding-brain-tumours/types-brain-tumour-children/dipg-diffuse-intrinsic-pontine-glioma/ 

About Atticus

Atticus is an absolute treasure and delight to be with, he lights up the room with his smile, and I’m personally honoured to be friends with him, a passionate, happy, care free little boy who is always well mannered and polite. Atticus has had to endure procedures no child should have to go through, he’s shown incredible resilience and bravery and still manages to have a smile on his face. 

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Treatment

Atticus is currently undergoing radiotherapy at UCLH to alleviate the pressure placed upon his brain by the tumor. This pressure affects his neurological functions such as walking, talking, speech and eating.

The doctors are hoping with the 6 week course of radiotherapy Atticus will regain 80-90% of his functions, and return to a degree of normality for a limited time. At some point in the future Atticus will require full time palliative care as the condition worsens, before this happens we would love to help him experience anything he wishes.

UCLH (University College Hospital London) have been outstanding with Atticus! A very big thank you to them. 

Why this campaign?

As we have been made very aware, there is no cure for Atticus’s condition, there are only 20-30 children a year in the U.K who suffer from this disease and sadly ALL of them will lose the battle.

The ambition of this campaign is to achieve two objectives, firstly to provide some financial stability for Atticus, Blaize, Emily & Hemploe (Dad, Mum, & Sister) over the coming months. Any funds raised will be used to provide the best possible lifestyle and experiences for the remaining time Atticus has. This will include anything and everything Atticus wishes to do, whether that's to ride on a steam train (he loves trains) or goto Legoland, watch some monster trucks etc. The quality of this time sadly cost's money, we all wish it didn't.  We all want this time to be special, full of fun times, happiness and to be remembered. 

Secondly, is to raise much needed funds for the The Brain Tumor Charity not only awareness but crucial funds required to advance the study of this horrible disease. They do amazing work, please go and take a look at the work they do to aid children like Atticus and many others affected.

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Any proceeds raised will be split equally 50-50 between Atticus & the Brain tumor charity.

Thank you for taking the time to read this.  On behalf of Atticus, the Feduchin-Pate family & everyone who has been lucky enough to be a part of this wonderful little boys life.

I will update this campaign with Atticus’s progress and the adventures he is able to complete thanks to everyone's kindness.

To ALL of you who donate, you are true champions of humanity.

THANK YOU!
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It has taken a few days for me to muster the strength to post the next update. I am sorry to say that Atticus lost his battle with DIPG in the early hours of Thursday morning (7th February). We went to UCLH to start a second round of radiotherapy but unfortunately Atticus’ condition went rapidly downhill, and by Wednesday it was clear the tumour was affecting his respiratory system. Atticus passed away peacefully in his sleep with myself and Blaize by his side. He was not in any pain, he was not scared, and he knew he was surrounded by people who loved him.

On Thursday we had Atticus moved to Naomi House Children’s Hospice in Hampshire, which is where we wanted him to go for his end of life care. They have a special bedroom where Atticus can stay tucked up in bed with his bear Boeuf, and family and friends can visit and say goodbye. We are so grateful for this facility because Atticus passed away quickly and unexpectedly and we were not quite ready to say goodbye yet.

We are currently making plans for a private burial and a public service. It is important to us to be able to thank our community and all those who have supported us/Atticus over these past 7 months.

We are keen to continue this campaign in Atticus’ name, and so we can raise funds for the many charities who have supported us (Naomi House being just one of them).

Thank you again for your support. Atticus was a very special boy and we hope his little lift will not be in vain.

Emily x
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Yesterday we went to UCLH for re-radiation planning. Atticus will receive 10 fractions over 2 weeks and, whilst there are risks of re-radiation, we all agree the potential benefit to quality of life is worth it.

As usual Atticus was an absolute star and continues to amaze us. Despite being wheelchair bound, and wearing a sling to help his right arm weakness, he was happy to be back at UCLH and was all smiles for the radiotherapy team and play specialists. Even when he had his new mask made (his bear went first of course) and a CT scan wearing the mask, he was sweet and polite and charming as ever. Sometimes it’s hard to forget he is still only 4!

Unfortunately today Atticus has been admitted to our local hospital with another infection, and is having IV antibiotics again. We hope to get him back to strength so we can start treatment on 4th February.
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Hello campaign family. Atticus’ last MRI scan showed some signal changes and whilst we did not really understand what that meant, in the last week we have noticed some of Atticus’ symptoms return. He has a squint in his left eye due to muscle weakness, and general weakness on the left side of his face.

Having now seen the consultant, unfortunately the fact the tumour is progressing means Atticus can no longer participate in the Biomede clinical trial. On the plus side that means no more oral chemo or monthly blood tests.

Our options now are to do nothing (not delay the inevitable) or perhaps undertake another round of radiotherapy. We are currently discussing with Southampton and UCLH.

We want to thank you all for your continued support, it has made a world of difference.

Lots of love x
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Despite being admitted to hospital on 23rd December for IV antibiotics, Atticus was allowed home on Christmas Eve and the family were able to celebrate a wonderful Christmas Day together (complete with visit from a lovely community nurse for more antibiotics). Atticus was thoroughly spoilt! Today we have the next MRI scan and Atticus is taking it all in his stride as usual. Merry Christmas to you all and thanks for your continued support x
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£16,333 of £25,000 goal

Raised by 360 people in 7 months
Created August 15, 2018
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