Helping Astrid Slay The MS Monster
We were recently given the grim news that she has developed multiple lesions in her brain and spine consistent with RRM Multiple Sclerosis (MS). This disease is one that is not well understood by doctors. There have been leaps and bounds over the last 20 years and they do have an approved method of treatment. This treatment does not cure the disease; rather, it is called a "disease modifying drug," or DMD.
In the course of our personal research, my wife found a doctor in Chicago, Dr. Richard K. Burt (MD), that is administering a stem-cell transplant therapy that has been shown to halt and even reverse the symptoms of the disease!
Dr. Burt's page at Northwestern: http://www.feinberg.northwestern.edu/faculty-profiles/az/profile.html?xid=14172
Stem Cell Research Facts article:
(this article has quite a few videos and links! check out the Telegraph article linked there!)
We absolutely must get her there to Chicago... we have to try every possible avenue to get her well again. And according to our research, this is the best way to do so!
Unfortunately our insurance is battling against us in our fight to get to Chicago. We were able to get Astrid evaluated by the doctor, and accepted as a patient. However, we thus far have not had any luck or headway with the actual treatment getting covered. At this point we are stuck treading water with this.
Any donation helps. Anything!
Astrid's MRI (brain) showing lesions.
Attached a picture of Shirts Thank You PC Printing & Embroidery Solutions for your time and the amazing quality work.
We lot's of love
The Trotter Family
I just wanted to come on here and update since it's been awhile, the struggle daily with Multiple Sclerosis is very real and trying to not stress about normal life to life matters is impossible cause life is life but with M.S just that more complicated. I had a start of a relapse a couple of weeks ago and was prescribed Acthar Gel which is a steroid to help stop it in it's tracks. But to even get medication my very well educated Neurologist Prescribes is a battle and very upsetting, Tricare is not making anything she has prescribed easy at all! I sit here and battle getting my medication that helps the quality of my life and prolong it but Tricare thinks they know more then what the Doctor is recommending or doing. This has put a lot of stress and worry and just stuck in this unknown, we are focused on getting me back to Doctor Burt as soon as possible the sooner the better chances I have at a good quality of life we been so focused on fundraising as much as we can. My Neurologist stated it best " I believe if insurance companies are going to direct the care that you can and can not have ... then they need to be held responsible for your well being and or demise . How can we let this continue ?? Put the care of patients BACK into the hands of physicians ... its way past time . Wow, and not to mention ..... your husband is serving in the military !!! He and his family have given the utmost sacrifice .. and this is how you are treated ??? " She spoke a major truth in our medical system and with big pharma!! Give the doctors their job back to decide what is best for their patient and just listen. I will end this with many thanks you and just know I appreciate every single one of you on this journey with me, I'am fighting and will not give up! Please continue to fight with me and give me that chance to get my life back for my children and I.
Please share,donate,advocate,educate! Help me reach my goal. Thank You Astrid
We just wanted to give a quick update. We are still awaiting the result of our first appeal to the insurance company. They denied our first claim a few weeks ago and the hospital is awesome, they turned around and submitted an appeal right away.
Please keep us in your prayers for a positive response for this appeal!