Ashley Needs a Cure!
My daughter Ashley suffers from a rare disease - Parathyroid Disease, otherwise known as Hyperparathyroidism. It is especially rare in her case, as it usually doesn't affect people until they are in their 50's or older. My daughter is only 29. The only cure for this disease is to have the affected parathyroid gland(s) removed. This is her with her husband and two daughters:
Ashley's husband works full time, but his employer does not offer family medical coverage. Therefore, Ashley has been forced to purchase "Obamacare" insurance. She has a high monthly payment, ridiculous co-pays, with not very good coverage. On top of that, a lot of doctors, especially the GOOD ones, don't accept it.
Parathyroid disease causes your body to produce too much parathyroid hormone, which can lead to dangerously high levels of calcium in the bloodstream. This calcium is leached from the bones. This can cause kidney stones, memory problems, blood clots, decreased energy, depression, etc. If left uncured, this disease can cause calcification of certain organs, heart disease, including heart attack & strokes, various types of cancers, and osteoporosis, among other things.
She just had surgery last week on February 19, 2015 with a doctor that accepts her plan. After going in and out of the operating room TWICE, the doctor had removed two parathyroid glands that appeared normal, left one that appeared normal, and "couldn't find" the 4th one. There are a total of 4 parathyroid glands, located behind the thyroid, in the neck. Any, or all of them could be the cause of problems.
The morning after surgery, her parathyroid hormone levels had not only gone back up, but had exceeded the levels they were at pre-surgery. The doctor not being able to locate and remove the last gland, (more than likely the diseased one), had rendered this entire surgery a FAILURE, and a complete waste of time, money, and suffering!!!
There is a very good specialist in a city a few hours away from her. He is one of the leading doctors that treats this disease. People travel from all over the world to see him. This doctor is at The Norman Parathyroid Center in Tampa, FL. His stated success rate for re-operations when other surgeons were unsuccessful is near 99%.
To be seen by Dr. Norman, per his website, if you've already had a failed surgery, the complete treatment package covers all consultations , chart prep, surgeon, anesthesia, anesthesiologist, x-ray, hospital, laboratory, operating room, operating room team, and recovery room, and costs over $11,000.00. There would also be travel/hotel costs, meals, lost time from work (for her husband), etc.
This is a horrible disease that robs people of their ability to enjoy life. My daughter has two young daughters of her own that she barely has the energy to take care of, much less to have fun with anymore.
She's already had to endure numerous kidney stones, a bloodclot that required a 3-day hospital stay last summer, followed by numerous injections that she had to give herself in the stomach, and is still on blood-thinners. She's already been depressed, but learning that her surgery and beginnings of recovery this past week was for nothing has really pushed her to the edge. She hasn't even finished healing from this surgery, and has now learned that she will have to have another surgery to have any chance of getting rid of this disease.
She faces more pain and suffering, and the fact that she is so young to have this disease means that her life will probably be significantly shorter if it's not cured. Please take a look at parathyroid.com for more information on this disease.
Please find it in your heart to help me help her. I would pay for this all myself if I could, and I will contribute what I can. No parent should have to watch their child suffer. Thank you.
Because her insurance will cover most of the cost, the amount we need to raise will be significantly lowered. Ashley still has a lot of co-pays to deal with, for the hospital, doctor visits, and numerous tests she had to undergo to get here, but we're hoping that if we can just get to about $ 3,500-$4,000, that should cover everything.
Thank you all for your support, love, and prayers during Ashley's illness. We hope to have her back healthy again soon.
Just to explain the change of picture, the website removed both pictures of the incision of Ashley's neck after her recent failed surgery because they "may not be suitable for all audiences." If I upset anyone with the pictures, I apologize. I was simply trying to illustrate what she is dealing with, and faces again. Remember, she HAS to have the diseased gland removed, or it will slowly kill her. A second surgery is required - not just an option. Thankfully, the expert guy makes a much smaller incision.
On a side note, we are now showing up in the "search" here on GoFundMe. To find us, either follow the link, or search for "Ashley" then further search for zip code 32258. When I last tried it, we came up on the top of the list! I'm hoping that this extra exposure will encourage more donations from people with big hearts and a little extra in their wallets to help me get my daughter cured of this horrible disease.
For those of you reading this, if you haven't already, please take a few moments to read our entire page, view the video, and consider helping to save the life of my daughter.
Again, THANK YOU!!!!! <3
Please understand that this disease can kill her if left untreated. The only treatment is to surgically remove the affected gland(s). As a mother, this is heartbreaking to me that I can't just pay for her to go see this doctor. As a mother who's already lost one daughter, it's absolutely devastating to think that I could lose another - simply because we don't have the money.
If you've already donated, THANK YOU!! If not, would you please consider it? Every dollar that we can raise will get her in to be cured faster.
I just want to say THANK YOU to everyone who has contributed and shared this page. I am trying to stay positive and to see all of the love and support definitely helps. I deal with so much pain and exhaustion every day. I can not wait to be cured of this awful disease and be a better mom again. When we reach our goal, I promise to update with pictures and information about my experience. Thank you again to everyone who has helped so far, it means a lot to me.