Arms Around Sophia Smith
With 6 weeks of radiation completed, and test results in hand from Sophia's medical team in Boston, the next step in her journey is promising new pioneering treatment currently not available in the United States. In just a few weeks, Sophia's battle is taking her to the Harley Street Clinic in London where she has gained acceptance for treatment. Time is of the essence, as Sophia's parents found out just last Friday afternoon there is opening for her at the end of June for surgery and treatment to begin. The family would greatly appreciate any assistance with the significant anticipated medical bills, transportation and related costs, which are not covered by insurance.
Through the challenging treatment thus far, Sophia's spirit has never broken. Her laugh is infectious, her smile always bright. So loving and feisty, Sophia has always been the girl who loves to be outside and never stops moving! When feeling well, she goes a mile a minute! Sophia loves to play softball. At the same time, she is very artistic and enjoys coloring, painting, crafts, puzzles, and building big Lego structures!
Sophia is an awesome photographer who has an natural eye. It is amazing that somehow, she is always able to capture a moment. Sophia lives by the water, which might be the reason her favorite color is blue. One of her favorite things to do is to go to the beach to collect sea glass and shells! She also loves
helping her Fisherman Dad paint buoys and work on lobster traps.
She is the greatest little sister to Tessa, and the best of friends with her twin sister, Annabelle. She loves being with her family, helping her Dad and spending time with her Mom, doing everyday things like snuggling, telling stories, and giggling. Sophia loves time spent with her friends and her big, extended family. As one of 11 cousins, her aunts, uncles, and her wide circle of friends -- old, young, near, and far, you name it -- adore Sophia. At all of 10-years-old, she has stolen our hearts.
Above all, Sophia is truly a warrior! She is so brave and has been so tough, throughout all of this. Never once has she complained, looked for pity from anyone or said, "poor me." Every day Sophia inspires us with her willingness to try, her courage and determination.
The truth is that cancer is never kind or anyone's friend. But an even greater truth, which we all know deep in our hearts and with undeniable certainty, is that close friends and family will always stand together with us as one to fight this unimaginable battle. Together with you, we wrap our #armsaroundsophia with great love, hope, and our prayers for her good health and healing.
The Smith family is incredibly grateful for your friendship, kindness, and support and sincerely appreciate your continued support for Sophia with the prayers, messages, and contributions. All of you have enabled the family to focus their time and attention on Sophia as they navigate this "new normal" and plans for treatment. Thank you from the bottom of our hearts.
Love from the "5 Honest Ladies" Anne, Janet, Nadine, Tracy and Deb
HOW YOU CAN HELP TODAY
1. Donate what you can; no amount is too small!
2. Share on all social media with the hashtag #ArmsAroundSophia
3. Email GoFundMe link and these steps to all contacts
4. Share immediately and share often, time is of the essence
As you may know from the last update, Sophia had a lesion on her spine and surgery was performed at Children's Hospital. She then endured several weeks of radiation to target what was remaining and to alleviate the pain. She will be having another MRI on her brain and doctors in Boston are consulting with her specialists in London on the next course of treatment. It has been several months since they've seen their team in London - the plan is to head back the last week of June. It will be here before you know it! Sophia has continually faced obstacles since this journey started and she continues to fight! Sophia recently celebrated her 12th birthday with her twin sister Annabelle and was a flower girl in her best friend's, Deb and Cutter Lavoie's, wedding. Please keep Sophia and the whole family in your thoughts and prayers as they battle this disease. As always, we appreciate your continued support!!!!!! #armsaroundsophia
We have GREAT news from Jennifer today. She's currently in London with Sophia for treatment. The power of prayer and community is being felt today!! Sophia is a warrior and winning! As always, we appreciate your continued support!! <3
So here we are in London again. Yesterday was one of those extremely stressful days, Soph had her big MRI, checking both status of tumor and spine for Any indication of tumor growth, this morning we sat in front of the computer as Dr Z showed us the scans, since last month Sophia’s tumor has shrunk to half the size with no signs of activity, her spine is clear, she is feeling and doing great. After this we will have 2 more trips and then work w Dr Kieran at Dana Farber to continue to fight this beast. I have sat with this info for a couple hours feeling lighter than I have in many many months. I can write this a million times and never be able to do it without crying. Sophia is strength and bravery and hopefulness time one million. I hate this awful disease w a passion, and we need to keep bringing attention to the fact that a cure is long past due #FU DIPG. Thank you all for allowing us to be here, for taking away the worry of funds and who is caring for our family while we are here. Thank you for holding us up, your continued support and prayers are shining lights so we happily share this will all of you who have loved us... our fight in not over but we are going into the next round energized❤️❤️❤️
Come on down to Marblehead High School tonight, Friday Oct 13th as the MHS Football team takes on Gloucester! Our warrior Sophia Smith will be doing the coin toss and the team has dedicated the game to this beautiful girl! All the boys will be wearing #armsaroundsophia stickers on their helmets to show support and unity as Sophia continues to fight her opponent! Hope to see you there!!
We are one week away from Sophia Smith's Fundraiser!! Limited tickets still available so please go online to eventbrite/armsaroundsophia or down to National Grand Bank and get them fast!!
Catch a glimpse of some of our exciting Live Auction items :
1) Sporting Tickets- 2 Celtics, 4 Bruins, 4 Red Sox, and 2 Patriots!
2) Date Night for 2 in Boston - Dinner and drinks at Stephanie's with overnight stay at the Lenox Hotel
3)Foursome at Tedesco Country Club with private short game lesson with Head Pro. Lunch included.
4) Justin Epstein Masonry- full stone walkaway.
5) Dr. Bednar - full orthodontic treatment for braces.
6) Signed football by our own's Pat's Danny Amendola (signed framed pics of Gronk and Edelman)
It is going to be a fantastic night and look forward to seeing you!!
So glad to see Sophie enjoying her colored pencils. ♥ Sending love from Massachusetts!
I moved away from Marblehead years ago....is this a Babine and Castner? This needs to be funded!!! I do not know the Smiths...just want peeps to know....