Armand's Hope

$6,248 of $100k goal

Raised by 66 people in 75 months
Tim Hayes  DAYTON, OH
My son Armand was recently diagnosed with GM1 Gangliocidosis (Type II), a recessive genetic metabolic disorder with no known cure or proven treatment.  He also has another genetic mutation of the GBJ2 gene, which affects his hearing.  We are exploring clinical trials and possibly experimental treatments in hopes of slowing (or, even more hopefully) stopping the progress of his disorder until a cure or more proven treatment can be found.

The money collected will go towards his medical expenses including but not limited to specialist visits, hearing aids, drug treatments, travel expenses (his clinical trials are located at the University of Minnesota, while we live and work in Ohio), walkers, orthodics, and further expenses from testing and follow-ups.

Supporters can also help by supporting some of the organizations and charities that have helped us so far, including hideandseek.org, the Ronald McDonald House, the Global Gene Project, and the University of Minnesota Fairview Hospitat Pediatric Medical Team.
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Update 7
Posted by Tim Hayes
10 months ago
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If you're finding this page through our Chew.TV fundraise welcome and thank you. You can check out Armand's facebook page for more information on his disease and treatment. Any donation is appreciated. Thank you for listening watching and looking
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Update 6
Posted by Tim Hayes
16 months ago
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As of now any funds we raise will go towards purchasing a travel air concentrator for Armand to use during trips to Minnesota and other places where he might be away from home and need his oxygen.
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Update 5
Posted by Tim Hayes
25 months ago
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Today is Armand's 6th birthday! Thank you to everyone that has supported him in one way or another!
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Update 4
Posted by Tim Hayes
62 months ago
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We celebrated Armand's 3rd birthday yesterday. A tough day, because it's hard to say he's doing better than he was a year ago.

I will post more from the blog soon about this.

http://armandshope.wordpress.com
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$6,248 of $100k goal

Raised by 66 people in 75 months
Created February 28, 2011
$25
Judy Hayes
1 month ago
BM
$5
Benjamin Mann
1 month ago
1
1
$100
Anonymous
1 month ago
$20
NJ Louch
1 month ago
1
1

Hey man, hope you raise your goal :)

$100
Tim Hayes
1 month ago

Starting off the DJ set fundraiser with one of my own. Come join me today at http://bit.ly/xtra242017

$153
Crystal Del Vecchio
9 months ago
1
1

10% of my sales from June. Wish I could have been at the carnival! ♥

TH
$250
Tim Hall
10 months ago
1
1
HC
$15
Heather C
10 months ago
1
1
JS
$10
jennifer sanders
10 months ago
2
2
K.
$50
Kale .
10 months ago
3
3
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