Armand's Hope

$6,398 of $100,000 goal

Raised by 70 people in 92 months
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My son Armand was recently diagnosed with GM1 Gangliocidosis (Type II), a recessive genetic metabolic disorder with no known cure or proven treatment.  He also has another genetic mutation of the GBJ2 gene, which affects his hearing.  We are exploring clinical trials and possibly experimental treatments in hopes of slowing (or, even more hopefully) stopping the progress of his disorder until a cure or more proven treatment can be found.

The money collected will go towards his medical expenses including but not limited to specialist visits, hearing aids, drug treatments, travel expenses (his clinical trials are located at the University of Minnesota, while we live and work in Ohio), walkers, orthodics, and further expenses from testing and follow-ups.

Supporters can also help by supporting some of the organizations and charities that have helped us so far, including hideandseek.org, the Ronald McDonald House, the Global Gene Project, and the University of Minnesota Fairview Hospitat Pediatric Medical Team.
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Apparently GoFundMe isn't playing as well with PayPal, which is where Armand's donations go before going into his medical fund with PNC. We have to set up a new fundraiser here and invite you all to continue your support for Armand at http://www.gofundme.com/armandsnewhope

Thank you.
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Please watch and share this new short documentary on Armand!
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If you're finding this page through our Chew.TV fundraise welcome and thank you. You can check out Armand's facebook page for more information on his disease and treatment. Any donation is appreciated. Thank you for listening watching and looking
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As of now any funds we raise will go towards purchasing a travel air concentrator for Armand to use during trips to Minnesota and other places where he might be away from home and need his oxygen.
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Read a Previous Update
Joshua Van Horn
13 months ago

Tim, its Josh from back in the gravity days, is this new? I know it is old but I mean is your son doing any better? sorry to hear this man let me know!

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$6,398 of $100,000 goal

Raised by 70 people in 92 months
No Longer Accepting Donations
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Created February 28, 2011
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TN
$20
Teresa Nicholas
13 months ago
1
1

Prayers for this beautiful boy!!

NK
$100
Nicole Kuntz
15 months ago
1
1

Absolutely touching video I watched on you tube. I think of you guys often. I hope this helps and little.

$100
Anonymous
19 months ago
$20
NJ Louch
19 months ago
1
1

Hey man, hope you raise your goal :)

$100
Tim Hayes
19 months ago

Starting off the DJ set fundraiser with one of my own. Come join me today at http://bit.ly/xtra242017

$153
Crystal Del Vecchio
27 months ago
1
1

10% of my sales from June. Wish I could have been at the carnival! ♥

Joshua Van Horn
13 months ago

Tim, its Josh from back in the gravity days, is this new? I know it is old but I mean is your son doing any better? sorry to hear this man let me know!

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