Love for Annabelle

$298,285 of $350,000 goal

Raised by 4,213 people in 23 months
***UPDATE June 2ND 2017****

Kathie and Adam have made the decision to travel to Mexico so Annabelle can recieve intra-arterial chemotherapy treatment combined with Immunotherapy.

Annabelle will need to have the chemotherapy treatment every 3 weeks for an undefined period of time with each treatment costing around $25,000  and will need the immunotherapy also for the first few bumping the cost up to as much as $45,000  on each occasion.

The family will leave on the 12th of June so they can celebrate Annabelle's 4th birthday at home with  loved ones.

We thank you for your continued support of Annabelle and her family
.

***UPDATE MAY 4TH 2017****

Last night Kathie and Adam received a call from the Doctors in London where the CED treatment is based. They have had a closer look at Annabelle's MRI and the tumour is growing out of the pons which means the CED treatment will be too risky at this stage.

They have said the radiation may continue to work on shrinking the tumour so it isn't completely ruled out, however not wanting to waste any time, Kathie and Adam have been exploring other options - one of which is an intra-arterial chemotherapy treatment combined with Immunotherapy in Mexico.

***UPDATE MARCH 21ST 2017***


Annabelle has recently been accepted in to a clinical trial in the UK which is called Convection Enhanced Delivery which delivers drugs directly to the tumor. This method involves the surgical implantation of very fine catheters into the brain using a dedicated robotic technique. Early indications are that treatment costs in current trials are in excess of $250,000. Annabelle and her family will need to travel to the UK initially for the surgery and then every 4-6 weeks for infusions at least 6 times so the decision to redirect funds to cover the associated medical costs has been made.

We cannot thank you all enough for your generosity and support through this tough time. Kathie and Adam's main focus now is to buy as much time as possible for Annabelle while we all pray for a miracle.


On the 30th December 2016, our beautiful 3 yr old niece Annabelle Potts, was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), a highly aggressive and difficult to treat brain tumor found at the base of the brain.
Annabelle was rushed to the Sydney Children's Hospital at Randwick the same day as her diagnosis for further assessment but the prognosis is grim.

The news came as a huge shock to us all but especially to her Mum and Dad (Kathie and Adam) who not only had to come to terms with the initial diagnosis but the fact that they will most likely lose their beautiful little girl. They will no longer be able to look forward to seeing her graduate, get married or any other milestone that those of us with healthy children often take for granted.

Now with Annabelle requiring her parents by her side Kathie and Adam are unable to work and the family are faced with increasing financial pressures because of loss of income and medical expenses.

We decided to establish a Go Fund Me account so Kathie and Adam can focus all their attention on spending as much quality time with Annabelle as possible without the stress of worrying about working or paying the bills.

We love Annabelle as a niece, sister, daughter, granddaughter and friend and your support through this difficult time will mean more to Kathie and Adam than you can ever imagine

Please share xoxo
+ Read More
Last week, Annabelle just had her 10th IA treatment. The results from the MRI is not the news is not what we have hoped for. The original tumour is still essentially ‘dead’, but it looks as if there is some small new growth into the cerebellum. While this is absolutely not what we hoped for, we are so grateful that the doctors in Mexico picked this up before treatment and treated the area immediately!

What this means we will need to do, is bring treatment closer together again. We have had a beautiful three months of ‘normality’ with no travel and treatment, after the wonderful news that Annabelle’s tumor in the brain stem is inactive, but we will need to really get back into fight mode again.

For all of the Canberra locals, we are holding a dinner for Annabelle on the 30th June if you would like to come along so we can meet you and thank you for your support in person. It should be a really fun night

https://www.eventbrite.com.au/e/love-for-annabelle-fundraising-dinner-tickets-41739457842?aff=eac2

As always, lots of love and thank you for your support

Kathie and Adam
+ Read More
Yesterday Adam met with the Doctor's in Mexico to discuss Annabelle's recent PET scan results. We received some amazing news and are thrilled to share it with you.

Adam's summary of the meeting is:

‘Dr Francisco went through some of the PET scan pictures with me and the tumour did not absorb any of the three tracers. This means the tumour is not feeding/active. Dr Garcia and Siller are saying even though the tumour can be seen, there is no evidence of disease. Currently the main concern is swelling, so will be looking at treating this as a priority.’

This means the tumour is dead and there are NO active tumor cells detected.

IS ANNABELLE CURED?

No, Annabelle is not cured. The tumour is currently dead and we still need to continue with the IA treatment as all it takes is one tiny tumour cell for the tumor to have a chance to grow. The amazing news is that we will be able to stretch these treatments out again. Our current plan is to look at doing treatment every eight weeks to start, and then, all going well, every three months. It is much more financially sustainable and our family won’t need to be split up as often.

WHAT DOES THE SYDNEY CHILDREN’S HOSPITAL HAVE TO SAY ABOUT THIS?

We have been in contact with the SCH and waiting to see what they have to say. Two weeks ago they said Annabelle was in progression. And one week ago they couldn’t agree if there was tumour growth or just swelling. We have asked to be put in contact with someone who can interpret PET scans and provide advice on the tracers used to verify all of this for us.

WHERE TO NOW?

We need to get Annabelle’s swelling down and stay on top of it all. We need to continue fundraising more than ever as we know that this treatment is working. We need to continue to raise awareness! We said from the start that we would keep Annabelle going as long as possible, not impacting on her quality of life, to give Australia a chance to catch up. There needs to be a treatment in Australia!

We need to relax a little and enjoy life, I do think for now, Adam and I can breath

We can not thank you all enough for your love and support. Every dollar, every post shared and every beautiful message has gotten us here. We will never be able to show the full extent of the love and gratitude we have for you all.

Lots of love
Adam and Kathie
+ Read More
We haven't given a detailed update on Annabelle and how she is going for a while. Annabelle had a lovely Christmas celebrating with all of her little cousins. She is still very tired as she was just before her last treatment in late November. That seems to be the only major symptom at the moment, but again, when she is very tired, it does have a flow on effect which may include other symptoms such as slightly slurred speech and she may be a bit unsteady on her feet. What I do need to keep reminding myself is that most four year olds are tired this time of year and most four year olds do become unsteady when they are tired. It is so hard not to worry and analyse every minute though.

Adam and Annabelle are off to Mexico next Monday for Annabelle's 8th Intra Arterial treatment. It has been eight weeks since Annabelle's last treatment, even though the doctors recommended 5-6 weeks between treatments. Unfortunately we had no other choice as flights over Christmas were ridiculously expensive and long (40-50 hours each way). We are extremely anxious with the unavoidable delay in treatment, but unfortunately, it is one of the things we have to do when the only available treatment is half way around the world.

2018 WILL be a better year! Annabelle will be starting preschool in a few weeks and it will be the year that we show brain cancer who is the boss! We are of course planning to keep going with Annabelle's treatment this year.

Thank you all for your love and support through 2017! We would honesty not be here without it.

Lots of love Kathie and Adam xo
+ Read More
An update from Annabelle's Mum Kathie

With Christmas coming up, I have so many mixed feelings. As a parent with young children, it is such an exciting time of year, but I can't help but feel sad. Will this be Annabelle's last Christmas with us? According to the doctors in Australia and DIPG stats on the internet, Annabelle's time is already up. Yet she is still running around, playing, going to childcare and preparing for preschool next year. She is still able to be a little kid.

This time last year, we had seen our doctor a number of times. Annabelle's wakeful nights were diagnosed as night terrors, despite my protests to the doctor that it wasn't, and that she was waking up to seven times a night, sometimes awake, sometimes not, sometimes just walking around. I was told that her slurred speech, was just from been tired and having hay fever. I was told her behavioral changes were because she had anxiety. The doctor recommended that Annabelle, three years at the time, see a psychologist.

By mid November, her dizzy spells were were explained by a middle ear issue and her random vomiting was from numerous tummy bugs despite the rest of the family not been affected. At my insistence, a full blood test was done. The doctor said we were looking for a brain tumour, worst case scenario. Tests came back all clear, only for us to find out later that blood tests can not detect many brain tumours including DIPG.

Throughout December, we carried on as normal. The doctor had told us that Annabelle was fine. I asked for a second opinion. In the referral to the paediatrician, the doctor felt the need to write 'mother is very anxious about her daughter'.

As it was Christmas time, we dragged Annabelle here, there and every where thinking she was just tired and run down from the end of the year. She fell asleep in the car wherever we would go, but the doctor had told us she was fine, the blood tests told us she was fine.

Looking at our family Christmas photo from last year, it is obvious that she was not fine. Her face is drooping. About two weeks after that photo was taken, Annabelle started to limp and then the doctors started to listen. An MRI was done on the 30th of December 2016, six months after her first symptoms.

This year has been such a roller coaster. In February, we were sent home from the Sydney Children's Hospital with no hope and told there is nothing they can do. We need to 'make memories and enjoy the few months we may have'.

The treatment in Mexico fills us with so much hope and we have been so blessed to have such a wonderful supportive community around us who not only give us love, encouragement and moral support, but are financially making this Mexico treatment a possibility. For this, we are grateful.

Please continue to share our story. We need to continue to raise awareness. There is such little awareness around childhood brain cancer that our Doctor was unable to recognise the symptoms of a brain tumour or know how to test for it, despite brain tumours been the number one killer of children in Australia. This is not good enough!
+ Read More
Read a Previous Update
Tamara Black Drewett
22 months ago

Hi family My name is Tamara and I own a Jumping Castle company in Queanbeyan and I would love to donate a Jumping Castle for your family to enjoy for a day to smile on your beautiful children's faces. If you are interested please Call TBC CASTLE HIRE 0406451414

+ Read More
Corina Cummins
23 months ago
8
8

They should contact Dr Teo... He is a angel from heaven!! All the best xx

+ Read More
Helen Victoria Read
22 months ago
7
7

Hi guys I'm so sorry this is happening she's a beautiful little girl! My husband and I went through this last year with our 2yr old son who had a brain tumour and we lived at Randwick Ronald for 10mnths. It's a tough road but you can get through it. We are doing a big fundraiser in feb for Randwick house after all the hard work they do looking after families there. Take care of your selves and no matter what the situation always stay positive and strong, kids are amazing and they surprise you even in the hardest of situations xx

+ Read More
Megan Peters
23 months ago
6
6

Omg not another baby with dipg I'm so sorry for your diagnosis. my baby boy passed away 8 months ago to dipg after battling for a whole year forever 5 he will be my prayers and thoughts are with your family in this very difficult journey

+ Read More
Belinda Sell
23 months ago
6
6

Contact Dr Teo. His offices are right next to the children's hospital at Randwick. Take care x

+ Read More
Damien MacRae
18 months ago
5
5

Hi - Have you checked whether Annabelle can fly? I have stage 4 melanoma with tumors in the brain and I was told not to fly because of the risk of stroke or aneurysm. My heart goes out to you. I'm in a similar position.

+ Read More
Shannon Griffiths
22 months ago
3
3

So proud of you Kathie and Adam, both demonstrating amazing strength during the most difficult challenge anyone could endure as parents. We love you so much, keep going, we are with you xx

+ Read More
Amy Leigh Ridsdale
23 months ago
3
3

I pray to God and the angels above that this little princess kicks this illness in the butt and lives a full happy fulfilling life beside her family and friends.. I have children of my own and I really hope you get through this kiddo. Much love , prayers and heaps of cuddles.. from my family to you and your family darling xoxo

+ Read More
Joseph Kamau
18 months ago
2
2

May the good Lord see you through

+ Read More
Andrew Dimpel
22 months ago
2
2

What really sad story about Annabelle , where I was listen to 106.3 this morning show.I hope the best, it was very emotional.

+ Read More
Jacinta Richards
23 months ago
2
2

will Share the Go Fund Me , Far & wide.... Keep your chin up guys.... in our prayers and our hearts.... the Abideens ( Chris' Parents)...

+ Read More
Jodi Keegan
23 months ago
2
2

Sending you all prayers for Annabelle. My son Lachie use to go to the same daycare as Annabelle until Kathie left to go on maternity leave. Lachie us sending Annabelle a lot of hugs xxxx

+ Read More
Annie Lancaster
23 months ago
2
2

So tragic! Sending our love & prayers! Stay strong x

+ Read More
Judy Howe
16 months ago
1
1

Fantastic news that Annabelle has had an improvement with her treatment. All the very best to you all and thanks for the update. xx

+ Read More
Katie Carrington
17 months ago
1
1

Wishing you all the best for the treatment. Much love Jeff, Katie, Molly and Buster x

+ Read More
Earcy Di Fedral
18 months ago
1
1
Dina M Safy
18 months ago
1
1
Linda Crowson
18 months ago
1
1

Hi, Such a heart breaking story. I beg you to look into the "ESSIAC TEA" This tea along with a organic natural, preservative, sugar free diet has saved so many cancer sufferers. The product is not available in Australia at the moment. New Zealand and Canada is where we purchased my friends supply. ^6 years cancer free now!!!! Sending love, light and heaps of healing energy xxx

+ Read More
Daniel Breen
19 months ago
1
1

i wish yu the best and please can anyone also support my campaign named Daniel Breen Tuition fees

+ Read More
Karina Low
23 months ago
1
1

Sending love and strength to your beautiful family Kathy. Please let me know if you need anything. Thinking of you all xx

+ Read More

$298,285 of $350,000 goal

Raised by 4,213 people in 23 months
Created December 30, 2016
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
CL
$25
Caroline Layton
11 days ago

I heard of Annabelle' story through my daughter's dance school last weekend, Bom Funk. My thoughts and best wishes are sent your way little Annabelle xx

VD
$90
Vladilena Dzolic
15 days ago

May God give you long life and good health little angel.

$100
Anonymous
25 days ago
$300
Anonymous
28 days ago
$100
Anonymous
1 month ago
Tamara Black Drewett
22 months ago

Hi family My name is Tamara and I own a Jumping Castle company in Queanbeyan and I would love to donate a Jumping Castle for your family to enjoy for a day to smile on your beautiful children's faces. If you are interested please Call TBC CASTLE HIRE 0406451414

+ Read More
Corina Cummins
23 months ago
8
8

They should contact Dr Teo... He is a angel from heaven!! All the best xx

+ Read More
Helen Victoria Read
22 months ago
7
7

Hi guys I'm so sorry this is happening she's a beautiful little girl! My husband and I went through this last year with our 2yr old son who had a brain tumour and we lived at Randwick Ronald for 10mnths. It's a tough road but you can get through it. We are doing a big fundraiser in feb for Randwick house after all the hard work they do looking after families there. Take care of your selves and no matter what the situation always stay positive and strong, kids are amazing and they surprise you even in the hardest of situations xx

+ Read More
Megan Peters
23 months ago
6
6

Omg not another baby with dipg I'm so sorry for your diagnosis. my baby boy passed away 8 months ago to dipg after battling for a whole year forever 5 he will be my prayers and thoughts are with your family in this very difficult journey

+ Read More
Belinda Sell
23 months ago
6
6

Contact Dr Teo. His offices are right next to the children's hospital at Randwick. Take care x

+ Read More
Damien MacRae
18 months ago
5
5

Hi - Have you checked whether Annabelle can fly? I have stage 4 melanoma with tumors in the brain and I was told not to fly because of the risk of stroke or aneurysm. My heart goes out to you. I'm in a similar position.

+ Read More
Shannon Griffiths
22 months ago
3
3

So proud of you Kathie and Adam, both demonstrating amazing strength during the most difficult challenge anyone could endure as parents. We love you so much, keep going, we are with you xx

+ Read More
Amy Leigh Ridsdale
23 months ago
3
3

I pray to God and the angels above that this little princess kicks this illness in the butt and lives a full happy fulfilling life beside her family and friends.. I have children of my own and I really hope you get through this kiddo. Much love , prayers and heaps of cuddles.. from my family to you and your family darling xoxo

+ Read More
Joseph Kamau
18 months ago
2
2

May the good Lord see you through

+ Read More
Andrew Dimpel
22 months ago
2
2

What really sad story about Annabelle , where I was listen to 106.3 this morning show.I hope the best, it was very emotional.

+ Read More
Jacinta Richards
23 months ago
2
2

will Share the Go Fund Me , Far & wide.... Keep your chin up guys.... in our prayers and our hearts.... the Abideens ( Chris' Parents)...

+ Read More
Jodi Keegan
23 months ago
2
2

Sending you all prayers for Annabelle. My son Lachie use to go to the same daycare as Annabelle until Kathie left to go on maternity leave. Lachie us sending Annabelle a lot of hugs xxxx

+ Read More
Annie Lancaster
23 months ago
2
2

So tragic! Sending our love & prayers! Stay strong x

+ Read More
Judy Howe
16 months ago
1
1

Fantastic news that Annabelle has had an improvement with her treatment. All the very best to you all and thanks for the update. xx

+ Read More
Katie Carrington
17 months ago
1
1

Wishing you all the best for the treatment. Much love Jeff, Katie, Molly and Buster x

+ Read More
Earcy Di Fedral
18 months ago
1
1
Dina M Safy
18 months ago
1
1
Linda Crowson
18 months ago
1
1

Hi, Such a heart breaking story. I beg you to look into the "ESSIAC TEA" This tea along with a organic natural, preservative, sugar free diet has saved so many cancer sufferers. The product is not available in Australia at the moment. New Zealand and Canada is where we purchased my friends supply. ^6 years cancer free now!!!! Sending love, light and heaps of healing energy xxx

+ Read More
Daniel Breen
19 months ago
1
1

i wish yu the best and please can anyone also support my campaign named Daniel Breen Tuition fees

+ Read More
Karina Low
23 months ago
1
1

Sending love and strength to your beautiful family Kathy. Please let me know if you need anything. Thinking of you all xx

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.