Andrea's Fight
Donation protected
My name is Andrea Taylor, I am 30 years old and I suffer from short gut, gastroparesis, long QT syndrom, iron deficiency anemia, and tachycardia generally brought on by orthostatic issues. I'm sure you are wonderng what all these complicated things mean, so I will run them down for you.
Short gut is a disease that makes it to where my intestines no longer absorb nutritions they they are suppose to, I have a seven minute transit, which means once something is in my stomach it is out in seven minutes because of the unfortunate dumping synrdome (yes that is real). The short gut has caused me to have to have some of my small bowel resected, leaving me dependent on a central line in my chest used for me to get my hydrations, electrolytes, and soon to go back on IV nutriton. I have failed every treatment and with all but three percent of my stomach left we are expected to be going to Nebraska in the beginning of next year for gut rehab eval along with transplant evaluation. The GI doc has now made that a requriement as soon as my husband gets home.
As for the Long QT, it is an irregular heart rhythm that often acts up when my electrolyes get out of whack because of the malnutrition. I also have runs of severe tachycardia, generally when I stand up or try to move too fast I will black out. I am dependent generally on a walker or wheelchair. We had started a gofundme a long time ago, but now that this is all coming around the corner we thought we would do another one. Nebraska is a long way from where we live in Missouri, so there will be a lot of commuting in a vehical that we no longer have. We will have to live in family housing when we are there which costs money.
My situation has become life and death, just at the end of January I got another run in with sepsis from my central line and this time they determined it as a very dangerous staph coming from my teeth, so yesterday they put me to sleep and took all my teeth out to protect my line and heart from infecton. We only have ten months to raise the funds to get what we need to head to Nebraska. The docs here say that I need to be seen by the experts and the closest ones are in Nebraska, supposedly a bowel transplant could give me back a quality of life.
I'm not writing this solely for myself, I'm writing because my son is also fighting for his little life in a very different way. He has severe ADHD, a massive sensory disorder, severe speech delay, it is is looking like high funcitoning autism. He has more specialists than I even know what to do with and the financial burden on getting him transportation is taking a toll as it is. I watch my little boy struggle to be like other five year olds his age and he just can't and he needs specialized help that money can buy, such as a compression vest and a weighted blanket that his medicaid won't cover. His whole routine is going tobe turned upside down when we have to go to Nebraska on a regular basis and part of this money is going to go to a special school when we are in Nebraska for my transplant eval and eventually trasplant. I have to survive for him, it is the most important thing in the world.
I know I am asking a lot from people, but I'm fighting for my life and my son is fighting for his also, just in a different way. We have precious little time to raise this money and any little bit helps even a dollar here and there. Without me taking the order from my GI to go to Nebraska when Josh gets home he will stop my TPN because I am so high risk, he said we never should have waited this long. I don't want to die and leave my baby behind struggling to do the simpliest of things kids his age do. If you could spare a dollar that would be helpful. This money is going solely to our trips to Nebraska, a reliable car to make the drive, and to my son's speical education. I hate asking for charity, but we are desperate right now,and I am scared, scared for my son's future and afraid that I don't have one, that my next line infection will kill me or my heart will give out before we can do anything about it. I know I made a previous page and that money will still go to transplant, but we are in crunch time, and my son adn I really need the help. I feel like a worthless person asking you for help, but we need it and everything litle bit counts. I will dobetter at updating, and one of my good friends is going to start a website so you can follow our journey through pictures. Thank you for reading this and I pray that if you can donate a dollar we can get there by January. God Bless all of you.
Short gut is a disease that makes it to where my intestines no longer absorb nutritions they they are suppose to, I have a seven minute transit, which means once something is in my stomach it is out in seven minutes because of the unfortunate dumping synrdome (yes that is real). The short gut has caused me to have to have some of my small bowel resected, leaving me dependent on a central line in my chest used for me to get my hydrations, electrolytes, and soon to go back on IV nutriton. I have failed every treatment and with all but three percent of my stomach left we are expected to be going to Nebraska in the beginning of next year for gut rehab eval along with transplant evaluation. The GI doc has now made that a requriement as soon as my husband gets home.
As for the Long QT, it is an irregular heart rhythm that often acts up when my electrolyes get out of whack because of the malnutrition. I also have runs of severe tachycardia, generally when I stand up or try to move too fast I will black out. I am dependent generally on a walker or wheelchair. We had started a gofundme a long time ago, but now that this is all coming around the corner we thought we would do another one. Nebraska is a long way from where we live in Missouri, so there will be a lot of commuting in a vehical that we no longer have. We will have to live in family housing when we are there which costs money.
My situation has become life and death, just at the end of January I got another run in with sepsis from my central line and this time they determined it as a very dangerous staph coming from my teeth, so yesterday they put me to sleep and took all my teeth out to protect my line and heart from infecton. We only have ten months to raise the funds to get what we need to head to Nebraska. The docs here say that I need to be seen by the experts and the closest ones are in Nebraska, supposedly a bowel transplant could give me back a quality of life.
I'm not writing this solely for myself, I'm writing because my son is also fighting for his little life in a very different way. He has severe ADHD, a massive sensory disorder, severe speech delay, it is is looking like high funcitoning autism. He has more specialists than I even know what to do with and the financial burden on getting him transportation is taking a toll as it is. I watch my little boy struggle to be like other five year olds his age and he just can't and he needs specialized help that money can buy, such as a compression vest and a weighted blanket that his medicaid won't cover. His whole routine is going tobe turned upside down when we have to go to Nebraska on a regular basis and part of this money is going to go to a special school when we are in Nebraska for my transplant eval and eventually trasplant. I have to survive for him, it is the most important thing in the world.
I know I am asking a lot from people, but I'm fighting for my life and my son is fighting for his also, just in a different way. We have precious little time to raise this money and any little bit helps even a dollar here and there. Without me taking the order from my GI to go to Nebraska when Josh gets home he will stop my TPN because I am so high risk, he said we never should have waited this long. I don't want to die and leave my baby behind struggling to do the simpliest of things kids his age do. If you could spare a dollar that would be helpful. This money is going solely to our trips to Nebraska, a reliable car to make the drive, and to my son's speical education. I hate asking for charity, but we are desperate right now,and I am scared, scared for my son's future and afraid that I don't have one, that my next line infection will kill me or my heart will give out before we can do anything about it. I know I made a previous page and that money will still go to transplant, but we are in crunch time, and my son adn I really need the help. I feel like a worthless person asking you for help, but we need it and everything litle bit counts. I will dobetter at updating, and one of my good friends is going to start a website so you can follow our journey through pictures. Thank you for reading this and I pray that if you can donate a dollar we can get there by January. God Bless all of you.
Organizer
Andrea Schneider
Organizer
Columbia, MO
