Help Anders Ferry a real life hero

kr184,028 of kr1.7M goal

Raised by 167 people in 18 months
Anders Ferry: father, son, husband, hero.

Hero is a term used often too easily, but in the case of Anders Ferry, it is one nobody would deny him.

Diagnosed with terminal brain cancer at the age of 32 in 1999, Anders was given 2 years to live. 18 years, 5 neurosurgeries, and 2 children later, Anders has become a champion to cancer patients all over the world: Under the alias Andrew Yassin, he has helped thousands of patients navigate the landscape of terminal diagnosis, whereby patients are effectively told to 'go home and make the most of the time you have left'.... something Anders could never accept.


Battling back from the brink, not once but 5 times, Anders' pro-active and science based approach has been a model others have sought to follow. However, not sharing his scientific background, thousands of desperate people have sought his counsel over the last two decades. Despite his own devastating health problems,  Anders has never refused a call for help from anyone.

His story has been documented in the acclaimed documentary Surviving Terminal Cancer, and you can see an extract of the film on this page. 
Now, Anders cancer has returned a 6th time, this time 
inoperable, deep in his brain. Told to go home and make the most of his time left, yet again, Anders is not giving up on life, and his young family. He has worked with a famous neuro-oncologist in Germany to put together an aggressive immunotherapy cocktail, once again volunteering as a human guinea pig.  After one cycle Ander's is showing remarkable improvement, and the idea of having to stop due to financial problems is unthinkable.

Treatment & Costs


His family has never asked for financial help over the last 18 years, but now with his father's pension exhausted and no more support available from the Swedish medical system, there is no other option. Anders needs financial support as soon as possible, to enable him to complete the treatment he has started. This involves 8 trips from northern Sweden to the clinic in Germany, and Anders condition means he is not well enough to travel unaccompanied.  

Please help us give Anders a fighting chance, he has done it before, and he can do it again.

Fig 3. Me preparing a liquid form of DCA in  our kitchen, no less. Just removed the cats eating bowls first,


Fig 4. Me and Nadia post-OP in Melbourne, Early April 1999. I wear my Sandringham golf cap. We try to get a grip on this new world
Up until the say before my seizure the world was indeed our oyster! We both had good jobs
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Hi, Y'all!
Loooong time no nada from me - but not to worry; I'm tough as nails and I stay on my selected course of DC vaccination therapy at the IOZK in Cologne, Germany, if we find the monies to do so.
So far so good! I am in complete remission since Oct 2016! Thank you!!! But now I can't find any funding for more trips...
NB: Remission does NOT mean regression - different animal, but both are very good results after having seen continuous progression on MRIs throughout heavy PCV chemo.
It would be very interesting to see what DC-therapy could do if combined with NovoCure and/or gamma knife, or even Proton radiation. all of these would put extra pressure on your tumor, and thus release antigens! I could have NovoCure at the Karolinska in Stockholm for free if my NO just asked on my behalf - but he won't; so I don't (My No claims that NovoCure by itself is useless on slow-growing tumors, dah! He believes by default that any immunological modality is crap... But I fully ascribe my slow/non-evolution of tumors fully to the DC therapy at IOZK. The man to look for there is prof. Stefaan Van Gool. He features briefly in the documentary with a little boy who raises his arms out to the sides. Van Gool is a very nice - a chubby little talkative man very Cherub like. There are ongoing DC trials at the East coast in the US using some different tumor-seeking viral vectors. If you worm yourself into any trial it is for free! But my stuff at the IOZK is recognized as a proper treatment in Germany at that clinic in Cologne, but only there. It being labor intensive makes each visit costly, ca 1000 USD per day - The "boosts" needed to keep the anti-tumor action going on typically only go on for 3 consecutive days, so 3000EURO/USD every 6-8 weeks.
Inexpensive accommodation can be found nearby the clinic (15 minute walk), there is also a supermarket just around the corner on the way back to our youth hostel.

So all in all This is a highly recommended therapy!
They treat every other kind of cancer in a similar way
I have recommended my US host-father the same therapy for his recently diagnosed pancreatic cancer.
And don't be afraid of travel to seek out the treatment you deserve. I have had surgery and photodynamic therapy in Dundee, Scotland twice, my original emergency operation I had in Melbourne Australia - I and Nadia lived there at the moment.
I do know that my pal Ben Williams currently is researching Propanolol for glioma therapy.
I hope to go back to IOZK in August for boosts, but at present we lack about 5000USD, so please consider a little donation!! Note - if so please use the indicated SWISH option or Paypal, so your donation is not slapped with any GoFund-me 11% surcharge. I add your contribution to the official tally as " offline" if you only give me your name, and enter IOZK somewhere.
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Hi y’all!
Come Monday me and daddy Arne are off to Cologne for more of same NDV + LOH therapy.
This time we go with heads held a notch higher , given the positive feedback on my Elispot analysis.
I tried to paste in a graph here, but no luck. I sit here behind my screen and listen to the Spotify playlist I created for my big party last Saturday. Now it is Liza Minnelli doing Cabaret, soon Sinatra in My Way.
The list is way too heavy on old jazz trumpeters like Chet Baker. Clifford Brown, and Miles Davis.
In fact it was a good thing I didn´t get around to start it up. We were all too busy having fun and eating fabulous dishes. And I got to blast away on my trumpet in old classics like All of me, Georgia – chorus sung in Finnish (!) by my trombone playing pal Frasse.
Anyway I am still high from the experience. I got plenty of overload – stimulation wise. I had the “cotton head” for several days. Today I slept through most of the day. Tomorrow is another day.
I will pick up the kids at school and walk them home. We still have no winter, possibly it is not coming this year. Since I don’t ski anymore so I guess it is better for me with no-Icy roads, but it is stil strange.

I didn´t sleep all day, me and a pal went out to my and Nadias cottage out in “Utifallan” to prepare it for winter – empty all water out from weak spots, and where that is not possible to mix in glycol, in order to prevent freezing.
There was one last apple hanging on to one of our 2 apple trees. This was in fact our best crop in 10+ years! But that sorry apple was hard frozen and had been attacked by birds. So I just let it hang in there. It occurred to me that is pretty much what I have been doing over the years! KOKO!!

There is no real topic of today
I have asked my expert team on their thoughts of me tapering off Valproic Acid and to replace it with something else to keep seizures away. VPA makes me too sleepy.
There are indications that VPA not only helps with EP, but that it also fights glioma. Jury still out…
Therefore I am a bit reluctant to throw it out “just because of tiredness”, Of note I added it in to my drug regimen when doing my big cocktail fall of 2009 – Yet I had no issue with seizures then. Marc Halatsch suggests I taper it down and do EEGs just in case.

I remind y'all - it is only your generosity which keeps my IOZK project on the road! So please Keep The Momentum Going or KTMG!!! as Nikki might have said!

Also, please note

Best options to support my fundraiser is via PayPal (contact me for that information) or SWISH to: +46761120502

Use these and I get all you send and I don't lose 11% to Gofundme-overhead surcharges
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Contnued from previous post
****
My comment toVan Gools analysis/advice is that – I choose every 7th week, and obviously skip any tinkering with Keytruda since it is not indicated (PDL1) nor is it covered by any insurance. NDV is the dreaded Newcastle Disease Virus. Poor farmers see their bovine stock rapidly succumb to it, when an opportunistic infection comes with an infected bird The daily dose I get would quickly kill a fully grown cow! Healthy human cells contain enzymes which break down the NDV. Importantly tumor cells like cows do NOT; this is obviously the reason for this kind of therapy. As a corollary it could be argued that everybody should get prophylactic IV NDV infusions to eradicate tumors before they cause problems. Given the treatment it is obvious that my immune system is primed to Virus antigens. Now it is also primed to tumor antigens!!! Hooray!!!

But the IOZK effort depends on the support from y’all!!! Our next trip is scheduled for Mon Nov 13th treatments on Tue – Thursday. I augmet these boosts using high-dose Accutane (starting the day before 1st treatment day)

Topic of today Nov 1st

To boost specific immunotherapy
Our next trip is scheduled for Nov 13th treatments on Tue – Thursday. I augment these boosts using high-dose Accutane (starting the day before 1st treatment. My size is about 2m^2; and my dose as determined by Stefaan himself is 3x 80mg daily. But this is only done for three consecutive days in order to eradicate immune suppressors inside tumor tissue). After that I switch over to sildenafilcitrate (I.e. Viagra !). I usethe version intended for weak hearts ( small 20mg capsules – Not the large blue 100mg tabs). The heart caps are fully covered by Swedish insurance! This drug has been shown in many models, and in people, to prevent any buildup of immune-suppressors in tumor tissue! So I’d venture to say these two should complement each other very nicely in any immunotherapy setting!

Van Gool had a quick meeting with the IOZK specialists, and they decided then and there to include Accutane in their protocol, so that future patients will benefit from my idea!;)
But I have not raised the Viagra idea with Stefaan yet – we exceptional patients need some integrity, non?!
Of note, last week Oct 25th something truly remarkable occurred! I got to live to experience my 50th birthday!!!
This was a true moonshoot launched in March 1999!, when prof Kaye told me to “ expect 6 months, but max 2 years, IF you survive surgery next week- your tumor is really very large”. My beautiful wife Nadia and the fab kids Linnea and Tim baked me a cake for the occasion.
Pictures will be posted at a later time.

Nov 4th I’ll throw a big party/fundraiser, about 100 friends and relatives will attend! I’ll play my trumpet with a minor Dixieland band; I surely hope for a joyful evening developing in a major key!
My daddy has prepared about 450 large Moose paddies, mama Margareta has prepared half a dozen of marinated moose touunges, along with a stew of moose heart, There will also be vegan options for the fainthearted. Fried felafel, and possibly hummus as well. My sister in law Heidi Andersson has managed to cultivate Kale in” Solitude = Ensamheten”, she is best known for winning on the order of+ 10 strong arm championships. She also features in the cult movie “Armbryterskan från Ensamheten”. So there will be vegan Kale pie as well.
Please Keep the momentum going! Ee just reached 160kkr
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Here comes part 2 more relevant to my IOZK therapy
Contnd from prev post
****
My comment to Van Gool¨s analyses – I choose every 7th week, and obviously skip any tinkering with Keytruda since it is not indicated (PDL1) nor is it covered by any insurance. NDV is the dreaded Newcastle Disease Virus. Poor farmers see their bovine stock rapidly succumb to it, when an opportunistic infection comes with an infected bird The daily dose I get would quickly kill a fully grown cow! Healthy human cells contain enzymes which break down the NDV. Importantly tumor cells like cows do NOT; this is obviously the reason for this kind of therapy. As a corollary it could be argued that everybody should get prophylactic IV NDV infusions to eradicate tumors before they cause problems. Given the treatment it is obvious that my immune system is primed to Virus antigens. Now it is also primed to tumor antigens!!! Hooray!!!
But the IOZK effort depends on the support from y’all!!! Our next trip is scheduled for Mon Nov 13th treatments on Tue – Thursday. I augmet these boosts using high-dose Accutane (starting the day before 1st treatment day)

Topic of today Nov 1st

To boost specific immunotherapy
Our next trip is scheduled for Nov 13th treatments on Tue – Thursday. I boost these boosts using high-dose Accutane (starting the day before 1st treatment my size is about 2m^2; and my dose as determined by Stefaan himself is 3x 80mg daily. But this is only done for three consecutive days in order to eradicate immune suppressors inside tumor tissue). After that I switch over to sildenafilcitrate (I.e. Viagra !). I get the version intended for weak hearts ( small 20mg capsules – Not the large blue 100mg tabs). The heart caps are fully covered by Swedish insurance! This drug has been shown in many models, and in people, to prevent any buildup of immune-suppressors in tumor tissue! So I’d venture to say these two should complement each other very nicely in any immunotherapy setting!

Van Gool had a quick meeting with the IOZK specialists, and they decided then and there to include Accutane in their protocol, so that future patients will benefit from my idea!;)
But I have not raised the Viagra idea with Stefaan yet – we exceptional patients need some integrity, non?!
Of note, last week Oct 25th something truly remarkable occurred! I got to live to experience my 50th birthday!!!
This was a true moonshoot launched in March 1999!, when prof Kaye told me to “ expect 6 months, but max 2 years, IF you survive surgery next week- your tumor is really very large”. My beautiful wife Nadia and the fab kids Linnea and Tim baked me a cake for the occasion.
Pictures will be posted at a later time.
Nov 4th I’ll throw a big party/fundraiser, about 100 friends and relatives will attend! I’ll play my trumpet with a minor Dixieland band; I surely hope for a happy evening developing in a major key!
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Read a Previous Update
James McCraw
8 months ago

My name is James McCraw. I am a Glioblastoma Multiforme Grade 4 Survivor. I beat it using garlic, turmeric, ginger, and cayenne pepper. No one believes me but everything is in a book I wrote. I wrote it because the people on my Facebook page insisted. It is called “Killing Cancer With Spices” It is on Amazon and Kindle. It is free in a PDF format on my Facebook page Facebook.com/GBM13

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kr184,028 of kr1.7M goal

Raised by 167 people in 18 months
Created April 17, 2017
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Birgit Lie
1 month ago

Fortsätt kämpa!

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Marilyn Taube
11 months ago

good luck Anders.

James McCraw
8 months ago

My name is James McCraw. I am a Glioblastoma Multiforme Grade 4 Survivor. I beat it using garlic, turmeric, ginger, and cayenne pepper. No one believes me but everything is in a book I wrote. I wrote it because the people on my Facebook page insisted. It is called “Killing Cancer With Spices” It is on Amazon and Kindle. It is free in a PDF format on my Facebook page Facebook.com/GBM13

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