Help Anders Ferry a real life hero

kr182,428 of kr1.7M goal

Raised by 164 people in 10 months
Anders Ferry: father, son, husband, hero.

Hero is a term used often too easily, but in the case of Anders Ferry, it is one nobody would deny him.

Diagnosed with terminal brain cancer at the age of 32 in 1999, Anders was given 2 years to live. 18 years, 5 neurosurgeries, and 2 children later, Anders has become a champion to cancer patients all over the world: Under the alias Andrew Yassin, he has helped thousands of patients navigate the landscape of terminal diagnosis, whereby patients are effectively told to 'go home and make the most of the time you have left'.... something Anders could never accept.


Battling back from the brink, not once but 5 times, Anders' pro-active and science based approach has been a model others have sought to follow. However, not sharing his scientific background, thousands of desperate people have sought his counsel over the last two decades. Despite his own devastating health problems,  Anders has never refused a call for help from anyone.

His story has been documented in the acclaimed documentary Surviving Terminal Cancer, and you can see an extract of the film on this page. 
Now, Anders cancer has returned a 6th time, this time 
inoperable, deep in his brain. Told to go home and make the most of his time left, yet again, Anders is not giving up on life, and his young family. He has worked with a famous neuro-oncologist in Germany to put together an aggressive immunotherapy cocktail, once again volunteering as a human guinea pig.  After one cycle Ander's is showing remarkable improvement, and the idea of having to stop due to financial problems is unthinkable.

Treatment & Costs


His family has never asked for financial help over the last 18 years, but now with his father's pension exhausted and no more support available from the Swedish medical system, there is no other option. Anders needs financial support as soon as possible, to enable him to complete the treatment he has started. This involves 8 trips from northern Sweden to the clinic in Germany, and Anders condition means he is not well enough to travel unaccompanied.  

Please help us give Anders a fighting chance, he has done it before, and he can do it again.

Fig 3. Me preparing a liquid form of DCA in  our kitchen, no less. Just removed the cats eating bowls first,


Fig 4. Me and Nadia post-OP in Melbourne, Early April 1999. I wear my Sandringham golf cap. We try to get a grip on this new world
Up until the say before my seizure the world was indeed our oyster! We both had good jobs
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Hi y’all!
Come Monday me and daddy Arne are off to Cologne for more of same NDV + LOH therapy.
This time we go with heads held a notch higher , given the positive feedback on my Elispot analysis.
I tried to paste in a graph here, but no luck. I sit here behind my screen and listen to the Spotify playlist I created for my big party last Saturday. Now it is Liza Minnelli doing Cabaret, soon Sinatra in My Way.
The list is way too heavy on old jazz trumpeters like Chet Baker. Clifford Brown, and Miles Davis.
In fact it was a good thing I didn´t get around to start it up. We were all too busy having fun and eating fabulous dishes. And I got to blast away on my trumpet in old classics like All of me, Georgia – chorus sung in Finnish (!) by my trombone playing pal Frasse.
Anyway I am still high from the experience. I got plenty of overload – stimulation wise. I had the “cotton head” for several days. Today I slept through most of the day. Tomorrow is another day.
I will pick up the kids at school and walk them home. We still have no winter, possibly it is not coming this year. Since I don’t ski anymore so I guess it is better for me with no-Icy roads, but it is stil strange.

I didn´t sleep all day, me and a pal went out to my and Nadias cottage out in “Utifallan” to prepare it for winter – empty all water out from weak spots, and where that is not possible to mix in glycol, in order to prevent freezing.
There was one last apple hanging on to one of our 2 apple trees. This was in fact our best crop in 10+ years! But that sorry apple was hard frozen and had been attacked by birds. So I just let it hang in there. It occurred to me that is pretty much what I have been doing over the years! KOKO!!

There is no real topic of today
I have asked my expert team on their thoughts of me tapering off Valproic Acid and to replace it with something else to keep seizures away. VPA makes me too sleepy.
There are indications that VPA not only helps with EP, but that it also fights glioma. Jury still out…
Therefore I am a bit reluctant to throw it out “just because of tiredness”, Of note I added it in to my drug regimen when doing my big cocktail fall of 2009 – Yet I had no issue with seizures then. Marc Halatsch suggests I taper it down and do EEGs just in case.

I remind y'all - it is only your generosity which keeps my IOZK project on the road! So please Keep The Momentum Going or KTMG!!! as Nikki might have said!

Also, please note

Best options to support my fundraiser is via PayPal (contact me for that information) or SWISH to: +46761120502

Use these and I get all you send and I don't lose 11% to Gofundme-overhead surcharges
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Contnued from previous post
****
My comment toVan Gools analysis/advice is that – I choose every 7th week, and obviously skip any tinkering with Keytruda since it is not indicated (PDL1) nor is it covered by any insurance. NDV is the dreaded Newcastle Disease Virus. Poor farmers see their bovine stock rapidly succumb to it, when an opportunistic infection comes with an infected bird The daily dose I get would quickly kill a fully grown cow! Healthy human cells contain enzymes which break down the NDV. Importantly tumor cells like cows do NOT; this is obviously the reason for this kind of therapy. As a corollary it could be argued that everybody should get prophylactic IV NDV infusions to eradicate tumors before they cause problems. Given the treatment it is obvious that my immune system is primed to Virus antigens. Now it is also primed to tumor antigens!!! Hooray!!!

But the IOZK effort depends on the support from y’all!!! Our next trip is scheduled for Mon Nov 13th treatments on Tue – Thursday. I augmet these boosts using high-dose Accutane (starting the day before 1st treatment day)

Topic of today Nov 1st

To boost specific immunotherapy
Our next trip is scheduled for Nov 13th treatments on Tue – Thursday. I augment these boosts using high-dose Accutane (starting the day before 1st treatment. My size is about 2m^2; and my dose as determined by Stefaan himself is 3x 80mg daily. But this is only done for three consecutive days in order to eradicate immune suppressors inside tumor tissue). After that I switch over to sildenafilcitrate (I.e. Viagra !). I usethe version intended for weak hearts ( small 20mg capsules – Not the large blue 100mg tabs). The heart caps are fully covered by Swedish insurance! This drug has been shown in many models, and in people, to prevent any buildup of immune-suppressors in tumor tissue! So I’d venture to say these two should complement each other very nicely in any immunotherapy setting!

Van Gool had a quick meeting with the IOZK specialists, and they decided then and there to include Accutane in their protocol, so that future patients will benefit from my idea!;)
But I have not raised the Viagra idea with Stefaan yet – we exceptional patients need some integrity, non?!
Of note, last week Oct 25th something truly remarkable occurred! I got to live to experience my 50th birthday!!!
This was a true moonshoot launched in March 1999!, when prof Kaye told me to “ expect 6 months, but max 2 years, IF you survive surgery next week- your tumor is really very large”. My beautiful wife Nadia and the fab kids Linnea and Tim baked me a cake for the occasion.
Pictures will be posted at a later time.

Nov 4th I’ll throw a big party/fundraiser, about 100 friends and relatives will attend! I’ll play my trumpet with a minor Dixieland band; I surely hope for a joyful evening developing in a major key!
My daddy has prepared about 450 large Moose paddies, mama Margareta has prepared half a dozen of marinated moose touunges, along with a stew of moose heart, There will also be vegan options for the fainthearted. Fried felafel, and possibly hummus as well. My sister in law Heidi Andersson has managed to cultivate Kale in” Solitude = Ensamheten”, she is best known for winning on the order of+ 10 strong arm championships. She also features in the cult movie “Armbryterskan från Ensamheten”. So there will be vegan Kale pie as well.
Please Keep the momentum going! Ee just reached 160kkr
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Here comes part 2 more relevant to my IOZK therapy
Contnd from prev post
****
My comment to Van Gool¨s analyses – I choose every 7th week, and obviously skip any tinkering with Keytruda since it is not indicated (PDL1) nor is it covered by any insurance. NDV is the dreaded Newcastle Disease Virus. Poor farmers see their bovine stock rapidly succumb to it, when an opportunistic infection comes with an infected bird The daily dose I get would quickly kill a fully grown cow! Healthy human cells contain enzymes which break down the NDV. Importantly tumor cells like cows do NOT; this is obviously the reason for this kind of therapy. As a corollary it could be argued that everybody should get prophylactic IV NDV infusions to eradicate tumors before they cause problems. Given the treatment it is obvious that my immune system is primed to Virus antigens. Now it is also primed to tumor antigens!!! Hooray!!!
But the IOZK effort depends on the support from y’all!!! Our next trip is scheduled for Mon Nov 13th treatments on Tue – Thursday. I augmet these boosts using high-dose Accutane (starting the day before 1st treatment day)

Topic of today Nov 1st

To boost specific immunotherapy
Our next trip is scheduled for Nov 13th treatments on Tue – Thursday. I boost these boosts using high-dose Accutane (starting the day before 1st treatment my size is about 2m^2; and my dose as determined by Stefaan himself is 3x 80mg daily. But this is only done for three consecutive days in order to eradicate immune suppressors inside tumor tissue). After that I switch over to sildenafilcitrate (I.e. Viagra !). I get the version intended for weak hearts ( small 20mg capsules – Not the large blue 100mg tabs). The heart caps are fully covered by Swedish insurance! This drug has been shown in many models, and in people, to prevent any buildup of immune-suppressors in tumor tissue! So I’d venture to say these two should complement each other very nicely in any immunotherapy setting!

Van Gool had a quick meeting with the IOZK specialists, and they decided then and there to include Accutane in their protocol, so that future patients will benefit from my idea!;)
But I have not raised the Viagra idea with Stefaan yet – we exceptional patients need some integrity, non?!
Of note, last week Oct 25th something truly remarkable occurred! I got to live to experience my 50th birthday!!!
This was a true moonshoot launched in March 1999!, when prof Kaye told me to “ expect 6 months, but max 2 years, IF you survive surgery next week- your tumor is really very large”. My beautiful wife Nadia and the fab kids Linnea and Tim baked me a cake for the occasion.
Pictures will be posted at a later time.
Nov 4th I’ll throw a big party/fundraiser, about 100 friends and relatives will attend! I’ll play my trumpet with a minor Dixieland band; I surely hope for a happy evening developing in a major key!
+ Read More
GOLF and brain function, This was too long so part 2 will follw promptly
I never was never any good at the game, but it made me happy and at times furious (just missing a few too many short puts does that to angels). And now that my balance is rather off I was curious to see how my game would be affected.
About my balance: before my final surgery in Dec 2012 I was an avid cross country skier, and would keep fit outdoors skiing several times a week But last winter I didn’t manage a children’s track on a lake (i.e., completely flat…). I fell backwards and hit my head on the hard icy surface. So I foresee there will be no more skiing for me. Since I hit the golf balls OK – that reassured me nothing terrible had developed in my brain since my last scan
Moreover, I tried to ride my bike the summer before that. But I had no luck. II even tried one with 3 wheels (1 front for steering and 2 back for stability), but not even that worked. So I don’t ride a bike anymore. I always need to be careful about my footing so that I don´t fall over; jogging/running is easier – then the momentum keeps my path straight
My posting frequency is hampered by a chronic tendon infection in my right arm, and so is my research.
Come Sept 25 we went to Cologne again, and that totally depleted the accumulated funds raised so far. I had a blood sample drawn on Sept 26th, prior to the weeks´ therapy (for Elispot analysis) Now I borrow from my kids future inheritance – my family owns a nice cottage up in the mountains, and live in a large grand villa with no mortgages. We are 3 brothers. Thus I stand to inherit a 3rd of the value of these properties down the line. And in case I have crossed over that would all go to my wife and kids. So there it is. I am retired from university work since 2008, and I get but a meager pension. My wife works. But this is Sweden, low wages, and high taxes. Sure, I am among the main beneficiaries of the high taxation policy. I have had a lot of basically free medical care, including most medications. Well there is a rather symbolic limit before the high-cost shut off kicks in (on the order of 200 USD each for treatment/consultations MRIs etc., and medications, respectively). Moreover Linnea + Tim had first class kindergarten for free. Likewise they will attend university free of charge if they so desire. I do my best now to plant seeds of an eagerness for higher learning. We live in an apartment very close to the University, and to the main hospital of north Sweden. Given harsh winters our kids must remain warm and dry. L
But she is fine now, but we need to plan her activities carefully.
NB:
To avoid the fee “gufundme” takes on all incoming funds, I have created a new email account. This novel account is to be used as a better PayPal option. All funds sent to it end up at the same savings account to which the fundraiser is directed. The new email is: gofundandersferry@gmail.com This way we avoid the 11% overhead charged by Gofundme.com! The funds are earmarked for my Cologne therapy, even though they will not appear on the official fundraiser barometer. I will write updates such as this and detail every transaction to the new PP account.
My latest MRI was totally stable – no change whatsoever between October 2016, and Aug 30th 2017.
It is a good result in my book, that my malignant tumor is stabilized for so long. It kept growing slowly during PCV therapy up until Oct 2016. Then I decided to mix it up and change my game plan. I sought out prof van Gool again. He had been head hunted from Leuven/Belgium to Cologne/Germany. And upon me asking if he had anything to offer – I got a resounding YES as reply.

Brief recap: I and my father Arne started to commute to Cologne in January, for immunological treatment at the prestigious private clinic IOZK. There van Gool has been able to translate his extensive experimental work into the clinic. The Aldara cream (Immiquimode) is not part of the current paradigm to potentiate the vaccinations (intradermal shots of activated dendritic cells, exposed to your own tumor antigens.) Now they skip the 5h leukapheresis step. Now a small 5ml blood sample is enough! From this they extract dendritic stem cells, circulating tumor cells This is all grown and cultivated/expanded in the lab, and antigens from the NDV. My therapy started 3 weeks later with an intradermal injection of the vaccine, on the upper arms (This is near the lymph nodes in the armpits and on the throat. This was after 5 days of localized heat therapy to my brain, followed by an IV infusion of the NDV.
All of this was repeated after another 3 weeks. After this we have been on a 7 week schedule, only doing 3 day boosts of localized heat+NDV. And now finally independent confirmation of therapy success by Elispot analysis! See below: Hooray!!! My immune system is slowly chewing away at the cancer cells!!
***
The results look really good. There is a response via the NDV antigens, but there is also a response directly via the tumor antigens.
All other blood tests show a good evolution: general immune reactivity, Apo10/TKTL1 test.
No upregulation of mRNA for PDL1 on the circulating tumor cells.

So from our side so far so good. We propose to have you here about each 6 to 8 weeks for further maintenance cycles of NDV/mEHT, just to keep ongoing the immune pathway.


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James McCraw
7 hours ago

My name is James McCraw. I am a Glioblastoma Multiforme Grade 4 Survivor. I beat it using garlic, turmeric, ginger, and cayenne pepper. No one believes me but everything is in a book I wrote. I wrote it because the people on my Facebook page insisted. It is called “Killing Cancer With Spices” It is on Amazon and Kindle. It is free in a PDF format on my Facebook page Facebook.com/GBM13

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kr182,428 of kr1.7M goal

Raised by 164 people in 10 months
Created April 17, 2017
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TH
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Torbjörn Hahn
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LB
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Lars G. Burman
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LL
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Leif Larsson
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KK
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MS
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Malin SalongCut
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MT
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Marilyn Taube
3 months ago

good luck Anders.

ÖK
kr500
Örjan Kunosson
3 months ago

I livets bok du femtionde bladet vänder-vänd många än,men bara ett i sänder! Örjan & Ann

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Anonymous
3 months ago
James McCraw
7 hours ago

My name is James McCraw. I am a Glioblastoma Multiforme Grade 4 Survivor. I beat it using garlic, turmeric, ginger, and cayenne pepper. No one believes me but everything is in a book I wrote. I wrote it because the people on my Facebook page insisted. It is called “Killing Cancer With Spices” It is on Amazon and Kindle. It is free in a PDF format on my Facebook page Facebook.com/GBM13

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