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All Mighty Brycey

$52,362 of $75,000 goal

Raised by 941 people in 11 months
Created February 24, 2018

27970742_1525744628.7147_funddescriptionHi!
Our names are Michelle and Meg. We've been friends with Jamie since elementary days. 2017 proved to be one of the toughest years for her and her husband Jeremy. 2018 has been even harder for them. Both of their children suffer from a mitochondrial disease labeled as P.O.L.G. They have spent numerous hours in and out of hospitals and doctors offices. Jamie is often on the phone with the insurance company having to fight to get them to cover medications that her children need. Medications that can cost hundreds of dollars. 

On Wednesday morning Jamie woke up and went to work. Shortly after getting there she received a FaceTime message from her husband and text message asking her to answer her FaceTime.  With no service in her office Jamie ran outside to  FaceTime with her husband. Jeremy stated that something seemed off with Bryce and put the camera on him. Jamie noticed immediately that Bryce's eye was twitching. She then witnessed her sons little body go into complete convulsions. She hung up with her husband so he could call 911.  Jamie rushed to the hospital to see that her son was still having a very severe seizure. After 2 hours of trying to get his vitals stable Bryce was transferred to Boston Children's Hospital all the while still seizuring and pretty intensely. Bryce went on to seizure for 20 hours. To get the seizures to stop the doctors put Bryce into a medically induced coma. 

Jamie's latest update stated that Bryce was still in the coma.  He's on a lot of medications. Bryce is hooked up to a breathing tube and a feeding tube. They had Bryce baptized in the hospital and said it was beautiful.

It could be a few days before he wakes up. The concern of what the 20 hour seizure has done to his little body is the biggest concern for them right now and there's no way to know that until he wakes up. There's also the concern of what happens when they start weening him off of the anti-seizure medications.   

If there has ever been a family who needs our prayers and support more it's Jamie, Jeremy and Aubriella as well as their extended family. They are currently staying at a hotel in Boston near Children's though Jamie has been sleeping on a small bed behind Bryce in the ICU. 


They are not out of the woods yet. There will be lot's of missed work and lot's of time away from home.  Together, if we could raise funds to make that one less thing they have to worry about then let's stand together and support this family! Never have they needed friends, family and community more than now! 

#ALLMIGHTYBRYCEY
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From Jamie This is what heartbreak feels like...goodbye my sweet baby boy!!! You’ll be my hero and love for life.. life will never be the same...RIP sweet Bryce

Please take a moment to say a prayer for this sweet boy who fought harder and longer than anyone expected. That was Bryce. A friend called him a true warrior and that he was. The devastation Jamie, Jeremy and their families are feeling right now leaves me with no words. Please continue to pray for them all as they say their final goodbyes to the most loved little boy. Bryce you will forever live on in the hearts of all you have touched. The countless lives you have changed will continue to grow long after your time with us. To Jamie and Jeremy, thank you from the bottom of my heart for sharing Bryce’s story. It was a blessing and it has made me a better person. Love and prayers to you! Bryce fly high sweet boy and watch over your Mommy and Daddy. They will never stop missing you! #allmightybrycey
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As many of you have heard and seen Bryce is finally home! Jamie and Jeremy will throw both Bryce and Aubriella a birthday party tomorrow. This is sure to be a memory the family will never forget.

Though tomorrow will be a bright spot, it does not change the course that Bryce is on. He and his family need your love and support. Please continue praying for Bryce.

Home care is sure to be exspensive. If you can donate to help off set some of the costs the family will endure that would be amazing. To all of you who have donated and continue to make multiple donations, we thank you! Jamie wanted Bryce’s story shared because as she’s always said “he matter’s, it matter’s”! Between the escort home from the hospital yesterday, the visitors lining the streets and the news picking up Bryce’s story you’ve helped Jamie get his story out there! Thank you! #allmightybrycey
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So they are now seeing he has a obstruction in his bowels and is not a candidate for surgery in his condition...

All treatments are life threatening on top of his life limiting diagnosis...

Leaning on God for strength and faith...

This is incredibly hard...

We are concerned this will speed up the time line for Bryce...

Please prayer warriors keep our sweet boy in your thoughts...looking for him to be pain free
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Hi Everyone!

Jamie’s last update informed us that unfortunately Bryce had a seizure this morning. The doctors aren’t sure what the cause was today but the hope is that it’s not his mitochondrial disease. It could be an infection. They aren’t sure. They are focusing on and discussing what meds they give him because they are hard on his liver and they don’t want to “tip” his liver into more liver failure. He’s getting lots of one on one care from one of their favorite nurses. Bryce is also getting nebulizer treatments. Bryce vomited before the seizure this am so the doctors have stopped his feeds for the time being and have him on fluids. Bryce is resting comfortably. Hopefully the worst is behind him. Please send your prayers their way. #allmightybrycey
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$52,362 of $75,000 goal

Raised by 941 people in 11 months
Created February 24, 2018
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