Alison's Medical and Research Fund

$20,809 of $50,000 goal

Raised by 255 people in 35 months
Our adorable daughter Alison was born with hypotonia (low muscle tone) and as a toddler was diagnosed with Autism, ADHD, Dyslexia and Dyscalculia.

She has struggled with learning in school and has had a large amount of behavioral challenges due to her speech and language deficits as well as impulsivity from ADHD.

Alison was recently diagnosed with a life-threatening immune deficiency disease called HLH (Hemophagocytic Lymphohistiocytosis). It took over a month to diagnose her since the symptoms are difficult to assess. She had fever every day, a distended stomach from excess fluid, vomiting, an enlarged liver and spleen etc. She is currently enduring daily blood tests, MRI's, Ultrasounds, CT-scans and more even during treatment.

We would like to raise money to pay for her excessive medical bills as well as raise money for HLH awareness among the general public and physician community. We are planning on donating a portion of proceeds to Cohen's Children's Medical Center/LIJ for clinical trials and research. Only one in 1.2 million people are diagnosed with HLH and the genetic form will make her in need of a bone marrow transplant (we are still waiting for testing results to come back). 

Thank you in advance for your prayers and support - we don't want to see our daughter suffer anymore and want to make her as comfortable as possible. Anything you can contribute would be greatly appreciated! 

Love,
The Trontz Family

P.S. Please feel free to post/pass along our link!
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Alison just got through her first cold post-diagnosis without reactivating!
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Thank you so much to everyone who came out to support Alison and HLH awareness at the Zumba fundraiser last weekend. It was so much fun and we are $30K away from reaching our goal for CCMC's Histiocytosis research program! We will continue to update everyone with Alison's progress and thank you again for all of your continued support!
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We are looking forward to seeing everyone next Sunday 9/11 from 1-3pm at Alison's Zumba Fundraiser (Temple Beth-El) in Great Neck. Please feel free to come with or without your kids! There will also be a bone marrow drive if anyone is interested in donating. Thank you in advance for your support!
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Thank you for your continued support for Alison! Please spread the word (parents and kids are welcome) about our upcoming Zumba fundraiser on 9/11 (1-3pm) at Temple Beth-El in Great Neck, NY. Donations will benefit HLH research and awareness. We still don't know if Alison will need a bone marrow transplant as we are doing additional genetic testing and will keep everyone informed. Hope to see you there!
Ali's fundraiser for parents and kids!
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Read a Previous Update
Tamara Lombardo
34 months ago

Dear Helene, Rob & Ali, I am so very sorry to hear about Ali's diagnosis. I will do everything I can to help. I am planning on attending the Zumba fundraiser with my boyfriend and I will try to get more people to attend and donate. My heart is broken at the thought of anything bad for Ali. I will pray and please let m know if there is anything that you need or any way that I can help. God bless you all. Hugs to Ali and all of you. Hang in there. Love,Tamara

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Jocelyn Lund Ringler
35 months ago

We love you! Sending love and prayers

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$20,809 of $50,000 goal

Raised by 255 people in 35 months
Created July 7, 2016
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$52
Sara Duani
16 months ago
SS
$5
Sean Sedaghatpour
21 months ago
MS
$36
Marian and Frank Setzman
30 months ago

Wishing Alison all the best.

RF
$50
Renee' F.
31 months ago

Thoughts and prayers for Ali. <3 Miss you girls! I wish you all well and hope she never loses that wonderful smile.

$10
Anonymous
32 months ago
LW
$100
Leah Wahba
32 months ago
ST
$180
susan teich
32 months ago
SG
$500
Suellyn Giserman
33 months ago

On behalf of Mill Neck. We have Alison in our thoughts!

JW
$36
Joan Wheeler
33 months ago
TM
$50
Tom McGee
33 months ago
Tamara Lombardo
34 months ago

Dear Helene, Rob & Ali, I am so very sorry to hear about Ali's diagnosis. I will do everything I can to help. I am planning on attending the Zumba fundraiser with my boyfriend and I will try to get more people to attend and donate. My heart is broken at the thought of anything bad for Ali. I will pray and please let m know if there is anything that you need or any way that I can help. God bless you all. Hugs to Ali and all of you. Hang in there. Love,Tamara

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Jocelyn Lund Ringler
35 months ago

We love you! Sending love and prayers

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